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Interferon beta-1b
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Worth reading if considering Pegasys
Dr Silver is the Interferon guru, based of his long experience using Interferon as a first line treatment choice. Also he recommends INF/Pegasys at an early stage when patients still low risk. Most Hems tend to use HU as front line drug and won’t medicate for low risk patients https://www.onclive.com
Dr Silver is the Interferon guru, based of his long experience using Interferon as a first line treatment choice. Also he recommends INF/Pegasys at an early stage when patients still low risk. Most Hems tend to use HU as front line drug and won’t medicate for low risk patients https://www.onclive.com
Paul123456
in
MPN Voice
5 years ago
Pegasys struggles..any tips?
Hi All 48 and diagnosed with ET (mpl mutation) after a routine blood test 10+ years ago. Platelets average around the 720 mark and on daily aspirin until I had blood clots in my leg last year. Medication changed to interferon, initially 3miu twice a week, but now moved to pegasys weekly 135mig injections
Hi All 48 and diagnosed with ET (mpl mutation) after a routine blood test 10+ years ago. Platelets average around the 720 mark and on daily aspirin until I had blood clots in my leg last year. Medication changed to interferon, initially 3miu twice a week, but now moved to pegasys weekly 135mig injections
Crofty7
in
MPN Voice
5 years ago
38 Foods That Contain Almost Zero Calories
This article was written and published on
healthline.com originally by: Lizzie Streit, MS, RDN, LD on June 11, 2018 ( [u]"38 Foods That Contain Almost Zero Calories"[/u].
[u]38 Foods That Contain Almost Zero Calories[/u]
Calories provide the energy that your body needs to function and
This article was written and published on
healthline.com originally by: Lizzie Streit, MS, RDN, LD on June 11, 2018 ( [u]"38 Foods That Contain Almost Zero Calories"[/u].
[u]38 Foods That Contain Almost Zero Calories[/u]
Calories provide the energy that your body needs to function and
suramo
Star
in
Healthy Eating
5 years ago
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Interferon and neuralgia?
For the past week I've had pain from neuralgia (pain and numbness across one side of my face) - I went to the GP and was told that it would probably 'settle down' in a couple of weeks. I hadn't been to the GP since my diagnosis so spent a bit of time catching him up on my treatment. The literature he
For the past week I've had pain from neuralgia (pain and numbness across one side of my face) - I went to the GP and was told that it would probably 'settle down' in a couple of weeks. I hadn't been to the GP since my diagnosis so spent a bit of time catching him up on my treatment. The literature he
Not2bad
in
MPN Voice
5 years ago
HU vs Pegalated Interferon?
Hi Everyone. I'm 35 and have recently been diagnosed JAK2 positive ET. I'm currently on 1500 HU and aspirin daily. It's making me feel pretty rubbish. I would like to talk to my Haematologist about changing to Pegalated Interferon. Can anyone tell me their experiences with pros and cons of both. Thanks
Hi Everyone. I'm 35 and have recently been diagnosed JAK2 positive ET. I'm currently on 1500 HU and aspirin daily. It's making me feel pretty rubbish. I would like to talk to my Haematologist about changing to Pegalated Interferon. Can anyone tell me their experiences with pros and cons of both. Thanks
Artelou
in
MPN Voice
5 years ago
Pegasys Interferon
Hi Just a wee update - still got MF, still coping 'not too bad' - in fact I'm doing better than that as a result of changing medication to Pegasys from Hydroxy. I had suffered incredible fatigue with the Hydroxy and the platelets hadn't really come down as much as the Haem expected. I have found it easy
Hi Just a wee update - still got MF, still coping 'not too bad' - in fact I'm doing better than that as a result of changing medication to Pegasys from Hydroxy. I had suffered incredible fatigue with the Hydroxy and the platelets hadn't really come down as much as the Haem expected. I have found it easy
Not2bad
in
MPN Voice
5 years ago
Tamarin study update and a new study now recruiting
Tamarin Study
Effects of Tamoxifen on the Mutant Allele Burden and Disease Course in Patients with Myeloproliferative Neoplasms – ET/PV and MF The TAMARIN study has been running in 13 hospitals across the UK since 2018 and to date the preliminary results are very exciting. The study is a
Tamarin Study
Effects of Tamoxifen on the Mutant Allele Burden and Disease Course in Patients with Myeloproliferative Neoplasms – ET/PV and MF The TAMARIN study has been running in 13 hospitals across the UK since 2018 and to date the preliminary results are very exciting. The study is a
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Diagnosed with ET
Hi , Feeling very nervous about writing this as never done anything like this before . I am 45 and was diagnosed with ET last June struggling to comes to terms with it . At the moment I am on aspirin . I visited my hematologist last week and my bloods were 1200 told they need to reach 1500 before I
Hi , Feeling very nervous about writing this as never done anything like this before . I am 45 and was diagnosed with ET last June struggling to comes to terms with it . At the moment I am on aspirin . I visited my hematologist last week and my bloods were 1200 told they need to reach 1500 before I
Maxid
in
MPN Voice
5 years ago
My Experience With Melanoma
Obviously, my name is Ryan. I am 28 years old. I currently have stage 4 melanoma. I will share my story in order to help those whose path intersects mine. If you ever have any questions, feel free to ask. The time I have been blessed with is best used helping others. When I was 21 years old I was abusing
Obviously, my name is Ryan. I am 28 years old. I currently have stage 4 melanoma. I will share my story in order to help those whose path intersects mine. If you ever have any questions, feel free to ask. The time I have been blessed with is best used helping others. When I was 21 years old I was abusing
Ryan2
in
Young Adults with Melanoma
5 years ago
Hydrea
I am 76, Polycythaemia Vera for 9 years, taking Hydrea 3 capsules daily now. This controls white blood cells well, but not red blood corpuscles, so I will have to have another bleed. I tolerate these well but find they make me tired and breathless. Should I be considering alternative medication eg Interferon
I am 76, Polycythaemia Vera for 9 years, taking Hydrea 3 capsules daily now. This controls white blood cells well, but not red blood corpuscles, so I will have to have another bleed. I tolerate these well but find they make me tired and breathless. Should I be considering alternative medication eg Interferon
lucieboo
in
MPN Voice
5 years ago
How Does Pegasy help ET?
Before I start on Pegasy Im trying to understand the process, the mechanism that Interferons use to lower platelets. There isnt much on the net, but from what I watched and read, Interferons stimulate the auto-immune system and thats why patients often get flu-like symptoms. Because white-blood cells
Before I start on Pegasy Im trying to understand the process, the mechanism that Interferons use to lower platelets. There isnt much on the net, but from what I watched and read, Interferons stimulate the auto-immune system and thats why patients often get flu-like symptoms. Because white-blood cells
BloodZero
in
MPN Voice
5 years ago
ET and treatmeant choices
Hi All, Was diagnosed with ET about 10 years ago and platelet count averages around 700 and have been on low dose aspirin ever since. Other than general fatigue I have had no issues until I recently had a proximal DVT on a long haul flight. My Hematology consultant has now recommend starting drug therapy
Hi All, Was diagnosed with ET about 10 years ago and platelet count averages around 700 and have been on low dose aspirin ever since. Other than general fatigue I have had no issues until I recently had a proximal DVT on a long haul flight. My Hematology consultant has now recommend starting drug therapy
Crofty7
in
MPN Voice
5 years ago
Miracles Do Happen
We find out one day after being at the doctor for a check up that we have cancer. We know its from the prostate but not sure what that all really means. The Doctor tells us we have what they call a high grade aggressive type of cancer. After biopsy he says that it is a Jackie Gleason 9, with 12 positive
We find out one day after being at the doctor for a check up that we have cancer. We know its from the prostate but not sure what that all really means. The Doctor tells us we have what they call a high grade aggressive type of cancer. After biopsy he says that it is a Jackie Gleason 9, with 12 positive
duckman52
in
Advanced Prostate Cancer
5 years ago
Antioxidant supplement ivf
Hi all, just wondering if anyone took an antioxidant supplement during ivf. I’m taking a prenatal vitamin (which has the recommended folic acid and vitamin d advised by my clinic) but this has also been suggested by a friend. From what I can tell antioxidant supplements have the same level of selenium
Hi all, just wondering if anyone took an antioxidant supplement during ivf. I’m taking a prenatal vitamin (which has the recommended folic acid and vitamin d advised by my clinic) but this has also been suggested by a friend. From what I can tell antioxidant supplements have the same level of selenium
Apples2665
in
Fertility Network UK
5 years ago
Stem cell transplant appointment for post PV MF
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
tracey13
in
MPN Voice
5 years ago
Drink is a curse!
Help!! I contracted Hepatitis C through drug use and was treated twice with interferon almost 20 years later and finally was clear of the virus. My problem is that while I gave up drugs I picked up alcohol so actually, in terms of liver health I am no better off. My husband is a daily very heavy drinker
Help!! I contracted Hepatitis C through drug use and was treated twice with interferon almost 20 years later and finally was clear of the virus. My problem is that while I gave up drugs I picked up alcohol so actually, in terms of liver health I am no better off. My husband is a daily very heavy drinker
BedeB
in
British Liver Trust
5 years ago
Beta-Sitosterol
I came across this regarding beta-sitosterol, but nothing further regarding PCa potential benefits. Curious why there's not more on this, if anyone knows. http://cancerres.aacrjournals.org/content/67/9_Supplement/1650 Jeff
I came across this regarding beta-sitosterol, but nothing further regarding PCa potential benefits. Curious why there's not more on this, if anyone knows. http://cancerres.aacrjournals.org/content/67/9_Supplement/1650 Jeff
Spaceman210
in
Advanced Prostate Cancer
6 years ago
Treatment not working
Hello everyone, I was on Hydroxyurea for a couple of months after my platelets reached 900 and it helped at first but after a while my platelets count kept raising again to 750 and during that period I suffered from horrible vertigo and nasuea and nothing helped. My doctor decided to switch to an injection
Hello everyone, I was on Hydroxyurea for a couple of months after my platelets reached 900 and it helped at first but after a while my platelets count kept raising again to 750 and during that period I suffered from horrible vertigo and nasuea and nothing helped. My doctor decided to switch to an injection
Wadz
in
MPN Voice
6 years ago
Persistent cold symptoms with Pegasys?
One great side effect of being on Pegasys for the last 3 years is that I’ve had hardly any colds, as interferon helps combat the cold virus. More recently, since I’ve reduced my dose to just 45mcg every 4 weeks, I’ve started to get some cold symptoms again which I guess is logical due to lower levels
One great side effect of being on Pegasys for the last 3 years is that I’ve had hardly any colds, as interferon helps combat the cold virus. More recently, since I’ve reduced my dose to just 45mcg every 4 weeks, I’ve started to get some cold symptoms again which I guess is logical due to lower levels
AndyT
in
MPN Voice
6 years ago
Parotid removal and Hydroxychloroquine
Hi everyone, thanks for having me. I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps and chronic pain and swelling. Am awaiting biopsy results, I've previously had mediastinal lymphoma. I was also recommenced
Hi everyone, thanks for having me. I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps and chronic pain and swelling. Am awaiting biopsy results, I've previously had mediastinal lymphoma. I was also recommenced
MajorTom
in
The Australian Sjögren's Syndrome Association
6 years ago
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