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Interferon beta-1b
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Just random thoughts for today I think
I did
interferon
beta
1b
once because it was my only option. Needles are not my friend so when I could I switched to a tablet. I have tried various eating regimes, because strokes and heart attacks can kill YOU" ms can not so best that I try to stay healthy.
I did
interferon
beta
1b
once because it was my only option. Needles are not my friend so when I could I switched to a tablet. I have tried various eating regimes, because strokes and heart attacks can kill YOU" ms can not so best that I try to stay healthy.
RoyceNewton
in
My MSAA Community
6 years ago
Ropeg versus HU/BAT results after 3 years
This is very interesting summary of trial results after 3 years. (CHR is Complete Haematological Response.) “After 36 months of treatment Ropeginterferon alfa-2b sustained higher CHR response rates compared to HU/BAT (70.5% vs. 51.4%; p=0.0122). Further, the composite endpoint, CHR including disease
This is very interesting summary of trial results after 3 years. (CHR is Complete Haematological Response.) “After 36 months of treatment Ropeginterferon alfa-2b sustained higher CHR response rates compared to HU/BAT (70.5% vs. 51.4%; p=0.0122). Further, the composite endpoint, CHR including disease
Paul123456
in
MPN Voice
6 years ago
New mpn
Hi diagnosed with ET 3 years ago age 28 been stable since now 31 and platelets high at 1560 started interferon last week last check platelets dropped to 1200!! Just wondering if anyone else on this and how it makes them feel am ok apart from I just feel quite disconnected from things, and sleepless nights
Hi diagnosed with ET 3 years ago age 28 been stable since now 31 and platelets high at 1560 started interferon last week last check platelets dropped to 1200!! Just wondering if anyone else on this and how it makes them feel am ok apart from I just feel quite disconnected from things, and sleepless nights
Samlowery17
in
MPN Voice
6 years ago
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Pegasys
Hi everyone I saw my haematologist yesterday for my ET. Platelet count is gradually going up. He has said in a few months I may need to start treatment other than aspirin and whereas previously he's mentioned hydroxy this has now changed to interferon. I've read up about it including side effects. Does
Hi everyone I saw my haematologist yesterday for my ET. Platelet count is gradually going up. He has said in a few months I may need to start treatment other than aspirin and whereas previously he's mentioned hydroxy this has now changed to interferon. I've read up about it including side effects. Does
hall2
in
MPN Voice
6 years ago
Advice
Hello , I was diagnosed earlier this year .... ET...I am being asked to take Hydra carbo but I have declined .... now am considering interferon ... Still waiting for a buddy ...I’m so concerned about these treatments .. Grateful got any advice ... Melanie .
Hello , I was diagnosed earlier this year .... ET...I am being asked to take Hydra carbo but I have declined .... now am considering interferon ... Still waiting for a buddy ...I’m so concerned about these treatments .. Grateful got any advice ... Melanie .
Melanie66
in
MPN Voice
6 years ago
PV and/or ET - JAK2+ - currently asymptomatic
This is my first posting with the support group. I was diagnosed with PV in March 2018 where at that point my hematocrit was 62 and of course the hemoglobin was also elevated. However, all other data within the CBC were normal to near normal at the time of diagnosis. After four (4) phlebotomies of the
This is my first posting with the support group. I was diagnosed with PV in March 2018 where at that point my hematocrit was 62 and of course the hemoglobin was also elevated. However, all other data within the CBC were normal to near normal at the time of diagnosis. After four (4) phlebotomies of the
Pat032018
in
MPN Voice
6 years ago
Essential Thrombocythemia & Pain Killers
Hi All. I was just wondering what pain killers others have used for Bone pain headaches etc with ET. I paid a visit to my GP which again was a doctor i have never seen before. I have been taking paracetamol for my migraine, headache, bone & joint pain which does not work as most of you will already know
Hi All. I was just wondering what pain killers others have used for Bone pain headaches etc with ET. I paid a visit to my GP which again was a doctor i have never seen before. I have been taking paracetamol for my migraine, headache, bone & joint pain which does not work as most of you will already know
Mycancerconcern1
in
MPN Voice
6 years ago
Allow myself to introduce myself...
Hi I was diagnosed at almost 48 in January 2018. In November 2017 I went to the GP with pins and needles in my feet and got a full blood work up. The results came back with platelets that were a 'bit high' (over 900). The GP referred me to haematology, I was seen pretty quickly - by December I'd
Hi I was diagnosed at almost 48 in January 2018. In November 2017 I went to the GP with pins and needles in my feet and got a full blood work up. The results came back with platelets that were a 'bit high' (over 900). The GP referred me to haematology, I was seen pretty quickly - by December I'd
Not2bad
in
MPN Voice
6 years ago
Interferon advice please
I've had PV for eleven years and recently started on Interferon Peg. I have had two injections so far (dose 90 per week) with no improvement whatsoever. My red cell and platelet count have in fact got much worse. Is it too early for the Interferon to be having any effect? Does it take longer than this
I've had PV for eleven years and recently started on Interferon Peg. I have had two injections so far (dose 90 per week) with no improvement whatsoever. My red cell and platelet count have in fact got much worse. Is it too early for the Interferon to be having any effect? Does it take longer than this
jazzyb
in
MPN Voice
6 years ago
Multivitamins
I have spent a lot of time searching for the best iron free multivitamin. I know someone here posted that the vit A should be as beta carotene. Suggestions?
I have spent a lot of time searching for the best iron free multivitamin. I know someone here posted that the vit A should be as beta carotene. Suggestions?
gwillistexas
in
PBC Foundation
6 years ago
Help
Advice please,I have ET,I take interferon alpha injections 2 times a week,tonight I took out fridge and it didn't feel cold enough,put thermostat inside checked was 10 should be under 5,so my fridge has been faulty,don't know how long could be weeks, phoned out of hrs they said shouldn't harm me but
Advice please,I have ET,I take interferon alpha injections 2 times a week,tonight I took out fridge and it didn't feel cold enough,put thermostat inside checked was 10 should be under 5,so my fridge has been faulty,don't know how long could be weeks, phoned out of hrs they said shouldn't harm me but
Jbut
in
MPN Voice
6 years ago
Today's Rheumy Appt: Wish You'd Been There! 👍⭐️🌈
I had a 9am rheumy appt today in the clinic overseen by one of the professors, and I have another next week in a clinic overseen by another professor. I haven't, and most definitely wouldn't , question why I have 2 appointments. Gold dust comes to mind. At today's I was called in by a very pleasant
I had a 9am rheumy appt today in the clinic overseen by one of the professors, and I have another next week in a clinic overseen by another professor. I haven't, and most definitely wouldn't , question why I have 2 appointments. Gold dust comes to mind. At today's I was called in by a very pleasant
Lupiknits
in
LUPUS UK
6 years ago
Experience with Pegasys
Just joined MPN Voice, I was diagnosed with ET 2 years ago, recently had a more definitive diagnosis, CALRins5 (Type 2), other non driver mutations not known. Only taking Aspirin at the moment but may be starting Pegasys at the beginning of 2019. I have read that a high proportion of people come off
Just joined MPN Voice, I was diagnosed with ET 2 years ago, recently had a more definitive diagnosis, CALRins5 (Type 2), other non driver mutations not known. Only taking Aspirin at the moment but may be starting Pegasys at the beginning of 2019. I have read that a high proportion of people come off
welshhuw
in
MPN Voice
6 years ago
MF with falling Hb: what drugs to go to next?
Hi guys, I have MF, platelets fine, whites a bit high (23), Hb dropping, now 90. On 10mg x2 Jakafi a day, spleen expanding again and liver. Haematologist not sure what to do - back in 4 weeks after he has taken advice. Mentioned Interferon and both higher and lower doses of Jakafi. Sorry about the similarity
Hi guys, I have MF, platelets fine, whites a bit high (23), Hb dropping, now 90. On 10mg x2 Jakafi a day, spleen expanding again and liver. Haematologist not sure what to do - back in 4 weeks after he has taken advice. Mentioned Interferon and both higher and lower doses of Jakafi. Sorry about the similarity
jane13
in
MPN Voice
6 years ago
Nauseous with ET
Hello all,haven't been on for a while,just after advice,Et for 9 years diagnosed at 39 after stroke,had tia'also bleed in bowl,been on interferon alpha injections 2x week for 9 years and asprin 75mg daily,just recently I have been feeling nausea of a morning and when travelling in car,don't see my hematologist
Hello all,haven't been on for a while,just after advice,Et for 9 years diagnosed at 39 after stroke,had tia'also bleed in bowl,been on interferon alpha injections 2x week for 9 years and asprin 75mg daily,just recently I have been feeling nausea of a morning and when travelling in car,don't see my hematologist
Jbut
in
MPN Voice
6 years ago
Peg Interferon and lower phosphate levels
Hi all, The last couple of blood tests I have had my phosphate level is below normal. I have been told normal is 0.8 and my readings have been 0.62 followed by 0.64. Between these 2 readings I had a phosphate top up in the form of a kind of electrolyte drink for a week. My symptoms are muscle aches and
Hi all, The last couple of blood tests I have had my phosphate level is below normal. I have been told normal is 0.8 and my readings have been 0.62 followed by 0.64. Between these 2 readings I had a phosphate top up in the form of a kind of electrolyte drink for a week. My symptoms are muscle aches and
Jocko
in
MPN Voice
6 years ago
Pegasy and interferon dosage
My heamo prescribed for me Pegasy 135mcg, he said dosage is same like roteferon 3UI, one weakly.Last year I was on only 3ui roteferon weakly , but stopped becouse of bad side effect . In last 12 month I have 9 venosection becouse my hct was 48 , platets always stable all 12 month 420 , rbc5,6, wbc
My heamo prescribed for me Pegasy 135mcg, he said dosage is same like roteferon 3UI, one weakly.Last year I was on only 3ui roteferon weakly , but stopped becouse of bad side effect . In last 12 month I have 9 venosection becouse my hct was 48 , platets always stable all 12 month 420 , rbc5,6, wbc
Lilly1958
in
MPN Voice
6 years ago
My Hep B journey...
Hi there, I was diagnosed with chronic hepatitis B in 2008 after apparently having the disease petty much symptom free for around 20 years. I was given entecavir which was quite effective in managing the condition, but in 2014 the virus had started to become resistant to the drug and it was discontinued
Hi there, I was diagnosed with chronic hepatitis B in 2008 after apparently having the disease petty much symptom free for around 20 years. I was given entecavir which was quite effective in managing the condition, but in 2014 the virus had started to become resistant to the drug and it was discontinued
Hb39
in
British Liver Trust
6 years ago
Does Interferon affect BMB results?
Dx ET JAK2+ with platelets rarely over 600 (just from blood tests). Was on hydroxyurea for 3 years, now on Roferon A (interferon) 3 x weekly for 10 months. I have just started noticing an improvement with symptoms but i would like to request a BMB and was wondering whether interferon can affect the results
Dx ET JAK2+ with platelets rarely over 600 (just from blood tests). Was on hydroxyurea for 3 years, now on Roferon A (interferon) 3 x weekly for 10 months. I have just started noticing an improvement with symptoms but i would like to request a BMB and was wondering whether interferon can affect the results
fee13
in
MPN Voice
6 years ago
Delaying Treatment No More - Pegasys, here I come.
It's been a little over 2 weeks since my first MPN doctor prescribed me with Pegasys which I decided to put off. I was debating for a while and speaking with another MPN specialist, I am going to start my peg interferon treatment this week. My platelets have increased from the 800s to now 960. I had
It's been a little over 2 weeks since my first MPN doctor prescribed me with Pegasys which I decided to put off. I was debating for a while and speaking with another MPN specialist, I am going to start my peg interferon treatment this week. My platelets have increased from the 800s to now 960. I had
annem22
in
MPN Voice
6 years ago
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