High TSH levels : Hi all, Just wondering is there... - MPN Voice

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High TSH levels

Sheila-collins profile image
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Hi all,

Just wondering is there anybody on interferon that have had a raise in their TSH level (hypothyroidism)

Thanks!

Sheila

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Sheila-collins
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Applesnpears profile image
Applesnpears

Interferon is known to cause thyroid problems in some people. Figures vary and the type of interferon may be a factor but most reports suggest 1 -10% of people on interferon may be affected by hypothroidism or hyperthyroidism. Hypothyroidism is more common. The size of effect on the thyroid can vary from person to person, from minor through to severe.

You need to discuss this with your doctor to decide what additional monitoring is needed and whether you need any changes to your medication. Its worth keeping a diary to keep track of any symptoms.

Sheila-collins profile image
Sheila-collins in reply to Applesnpears

Thank you for your reply. My consultant is waiting to hear back from an endochronologist but in the mean time I've been told to stop interferon.

Miriammusic profile image
Miriammusic

I just had my thyroid level checked due to fatigue. It was indeed elevated. Have been on the Peg for around a year and a half. My doctor did not suggest stopping my interferon at all. He is monitoring right now. He offered me a drug that would address the level and perhaps help with the fatigue. I didn't even get into discussing it with him because frankly, I just don't want more meds. I mean, I am tired but coping as I guess we all are.

Applesnpears profile image
Applesnpears in reply to Miriammusic

You need to check what medication your doctor was recommending. It might be you need thyroxine. This could make a big difference to the way you feel.

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