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Interferon beta-1a
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Interferon transportation on flights
We are hoping to fly to Thailand next year, just been in contact with the airline regarding keeping the interferon refrigerated. They said no, doe to Health and safety. Any suggestions? Will a cool bag be good enough to keep cool for possibly up to 17 hours? Is there a small usb cool bag?
We are hoping to fly to Thailand next year, just been in contact with the airline regarding keeping the interferon refrigerated. They said no, doe to Health and safety. Any suggestions? Will a cool bag be good enough to keep cool for possibly up to 17 hours? Is there a small usb cool bag?
shiftzz
in
MPN Voice
2 years ago
Make claim for PIP Allowance
I have polycythemia vera have since 2019. I want to claim PIP not sure i am entitled to it. My family telling me i should be applying for this because of my condtion. I make sure my consultant knows i am feeling ok with the lowest dosage interferon every 2 weeks. I dont want to loose my treatment saying
I have polycythemia vera have since 2019. I want to claim PIP not sure i am entitled to it. My family telling me i should be applying for this because of my condtion. I make sure my consultant knows i am feeling ok with the lowest dosage interferon every 2 weeks. I dont want to loose my treatment saying
Taz777
in
MPN Voice
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
MPN Voice
2 years ago
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Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
Fight MPN
2 years ago
pain and numbness in finger tips
hi I wrote a couple of weeks ago re starting interferon. Thank you everyone for your helpful words. Will be starting end of October. I have another question. Over the last year I’ve been getting an intense pain and heat in my thumb , index and middle fingers preceded by numbness and/or tingling.
hi I wrote a couple of weeks ago re starting interferon. Thank you everyone for your helpful words. Will be starting end of October. I have another question. Over the last year I’ve been getting an intense pain and heat in my thumb , index and middle fingers preceded by numbness and/or tingling.
Sanga
in
MPN Voice
2 years ago
Keeping Interferon refrigerated
Hi, I've recently started taking Peginterferon alfa-2a, and I keep it in my fridge because that's what the instructions say. I'm going to visit my girlfriend in Scotland a week tomorrow. My journey is going to take two days, so I'll leave home on Saturday morning, stay in a hotel halfway on Saturday
Hi, I've recently started taking Peginterferon alfa-2a, and I keep it in my fridge because that's what the instructions say. I'm going to visit my girlfriend in Scotland a week tomorrow. My journey is going to take two days, so I'll leave home on Saturday morning, stay in a hotel halfway on Saturday
little_oblivion
in
MPN Voice
2 years ago
Interferon Alpha 2-a (PEG) vs 2-b,(Bes) exactly what's the diff?
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
EPguy
in
MPN Voice
2 years ago
vitamin A test results
I’d be very grateful for an opinion on my vitamin A test results from Medichecks. (My GP told me ‘We don’t test vitamin A’, (!!!?), so I got private testing, though it’s not one of the cheaper tests. ) I know conversion of beta-carotene to retinol can be an issue in hypothyroidism, and although I have
I’d be very grateful for an opinion on my vitamin A test results from Medichecks. (My GP told me ‘We don’t test vitamin A’, (!!!?), so I got private testing, though it’s not one of the cheaper tests. ) I know conversion of beta-carotene to retinol can be an issue in hypothyroidism, and although I have
bluejourney
in
Thyroid UK
2 years ago
ET normal range platelets.
sorry with late reply. My bloods Hb 139 wbc 9.28 Neut 2.9 Plt 299 With platelets being in normal range for a while there checking me for bone marrow transformation to myelofibrosis. I hope this is ruled out, will also have ultrasound,repeat JAK 2. A few weeks ago my consultant said its rare for
sorry with late reply. My bloods Hb 139 wbc 9.28 Neut 2.9 Plt 299 With platelets being in normal range for a while there checking me for bone marrow transformation to myelofibrosis. I hope this is ruled out, will also have ultrasound,repeat JAK 2. A few weeks ago my consultant said its rare for
Jbut
in
MPN Voice
2 years ago
[i][b]DxTerity Test to Guide SLE Therapy Now Available in All 50 US States[/b][/i]
Blood test measures the activity of four IFN-1-related genes
by Marisa Wexler, MS | September 19, 2022
[i]
[/i] [i]
DxTerity Diagnostics’ interferon-1 gene signature test, which can be used to help guide treatment decisions for people with systemic lupus erythematosus
Blood test measures the activity of four IFN-1-related genes
by Marisa Wexler, MS | September 19, 2022
[i]
[/i] [i]
DxTerity Diagnostics’ interferon-1 gene signature test, which can be used to help guide treatment decisions for people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
starting on Interferon
hi everyone I’ve been diagnosed with PV 6 years ago and am 57. I live in Uk and have been managing blood levels with a baby aspirin and venesections. Last year my white blood has started consistently rising. My haematologist has suggested I go onto 45 mic Pegasus starting in October. She’s asked
hi everyone I’ve been diagnosed with PV 6 years ago and am 57. I live in Uk and have been managing blood levels with a baby aspirin and venesections. Last year my white blood has started consistently rising. My haematologist has suggested I go onto 45 mic Pegasus starting in October. She’s asked
Sanga
in
MPN Voice
2 years ago
PEGASYS and Besremi Site injection pain
Hi guys, Has anyone else experienced immense injection site pain from Interferon? I have had PV for about 10 years or so now and was just last year in Feb 2021 formally diagnosed with it. My white blood count has been extremely high for that duration. No one really looked into PV or any MPN because
Hi guys, Has anyone else experienced immense injection site pain from Interferon? I have had PV for about 10 years or so now and was just last year in Feb 2021 formally diagnosed with it. My white blood count has been extremely high for that duration. No one really looked into PV or any MPN because
S_anth
in
MPN Voice
2 years ago
Another week and another issue with my consultant
After my infuriating visit to the consultant last week, I got an infuriating letter from them. It has sent me into a fit of rage. Not only is it completely unreadable and lists lots of analysis that was not mentioned to me or explained, but the opposite word to the correct one has been used - which I
After my infuriating visit to the consultant last week, I got an infuriating letter from them. It has sent me into a fit of rage. Not only is it completely unreadable and lists lots of analysis that was not mentioned to me or explained, but the opposite word to the correct one has been used - which I
Fjdjdjdjd
in
MPN Voice
2 years ago
Allele burden shock
During the visit with the MPN consultant yesterday to organise going on Pegasys, I found out the results of my JAK2 allele burden test: 79% ! I am shocked. Consider that I am practically symptom-free. Not sure how to interpret this and am trying to be very rational and calm, but I must admit
During the visit with the MPN consultant yesterday to organise going on Pegasys, I found out the results of my JAK2 allele burden test: 79% ! I am shocked. Consider that I am practically symptom-free. Not sure how to interpret this and am trying to be very rational and calm, but I must admit
Aldebaran25
in
MPN Voice
2 years ago
will I tolerate Hydroxy after interferon?
hello everyone. After having given Interferon for ET a good go, I haven’t been able to continue on it. Currently just on aspirin awaiting next blood results to see if I need medication again after a 10 month break. Dr’s are planning on Hydroxy…. i’m worried that if I didn’t tolerate IFN I won’t tolerate
hello everyone. After having given Interferon for ET a good go, I haven’t been able to continue on it. Currently just on aspirin awaiting next blood results to see if I need medication again after a 10 month break. Dr’s are planning on Hydroxy…. i’m worried that if I didn’t tolerate IFN I won’t tolerate
Baimead
in
MPN Voice
2 years ago
Litifilimab Shown to Reduce Number of Swollen Joints in Phase 2 Trial
September 12, 2022 litifilimab reduces number of swollen joints in LILAC trial | Lupus News Today | joint pain illustration of man lying on couch with ice on knee Litifilimab (BIIB059), Biogen’s investigational antibody-based treatment for systemic lupus erythematosus (SLE), significantly reduced the
September 12, 2022 litifilimab reduces number of swollen joints in LILAC trial | Lupus News Today | joint pain illustration of man lying on couch with ice on knee Litifilimab (BIIB059), Biogen’s investigational antibody-based treatment for systemic lupus erythematosus (SLE), significantly reduced the
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Help just been seen by consultant
hello all. Had Et for 12 years Interferon for 11 years Asprin. The last 12 months i have been off interferon for 1 year platlets normal range. Today consultant said he wanted to check jk2 again 12 years ago was positive ? Wanting to do scan of my spleen Asked questions about my bone marrow biopsy
hello all. Had Et for 12 years Interferon for 11 years Asprin. The last 12 months i have been off interferon for 1 year platlets normal range. Today consultant said he wanted to check jk2 again 12 years ago was positive ? Wanting to do scan of my spleen Asked questions about my bone marrow biopsy
Jbut
in
MPN Voice
2 years ago
Bone marrow result - cryptic
Hi All. I have ET, and I had a bone marrow biopsy in June. I haven't had the formal results back in a letter from my consultant. The GP told me there was a note that said confirm ET but he didn't understand the rest of the results (literally what he said). I had my regular blood check up with the consultant
Hi All. I have ET, and I had a bone marrow biopsy in June. I haven't had the formal results back in a letter from my consultant. The GP told me there was a note that said confirm ET but he didn't understand the rest of the results (literally what he said). I had my regular blood check up with the consultant
Fjdjdjdjd
in
MPN Voice
2 years ago
Tingling Toes
Hi hope you are all well. I have been diagnosed with Pre Myelofibrosis from having ET for 13 years. I am waiting to start Pegylated Interferon in October. For the last few weeks I have moved had tingling Toes nad and my 2 big toes are painful. Is this symptoms will it improve on its own. Some days it
Hi hope you are all well. I have been diagnosed with Pre Myelofibrosis from having ET for 13 years. I am waiting to start Pegylated Interferon in October. For the last few weeks I have moved had tingling Toes nad and my 2 big toes are painful. Is this symptoms will it improve on its own. Some days it
JeniMac
in
MPN Voice
2 years ago
Chronic Belly Bloating on Hydrea
Hi All, I've been on hydrea (hydoxycarbamide 500mg) for about 20 mths now. Platelets are normal, so my dose is reduced to 500mg daily. I am still suffering with chronic tummy bloat. For someone who is normally slim, it's annoying to be burdened with a balloon tummy. It has added about 2 kg of weight
Hi All, I've been on hydrea (hydoxycarbamide 500mg) for about 20 mths now. Platelets are normal, so my dose is reduced to 500mg daily. I am still suffering with chronic tummy bloat. For someone who is normally slim, it's annoying to be burdened with a balloon tummy. It has added about 2 kg of weight
Hidden
in
MPN Voice
2 years ago
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