Hi All,
I've been on hydrea (hydoxycarbamide 500mg) for about 20 mths now. Platelets are normal, so my dose is reduced to 500mg daily. I am still suffering with chronic tummy bloat. For someone who is normally slim, it's annoying to be burdened with a balloon tummy. It has added about 2 kg of weight and no amount of calorie restriction will shift it. I have tried many 'remedies' e.g. a daily prebiotic (inulin powder), a probiotic, a low Fodmap /chemo belly plan and a brisk daily walk for 30 mins.
I'm trying to pluck some courage to bring this up once more with the haematologist (in mid October). From previous conversations about this, he does not think a consult with dietician would be beneficial at all. I wonder if a gastroenterologist referral would be a better option?
At the end of the day, would I be silly to ask for a different medication? I've researched the self- injectable Interferon, but I have no idea if all the platelet-reducing drugs have the same bloating side effect.
I'd appreciate some teasing out of this issue or if you have had success in deflating tummy bloat?
Cheers for now 😀