Hi guys,
Has anyone else experienced immense injection site pain from Interferon?
I have had PV for about 10 years or so now and was just last year in Feb 2021 formally diagnosed with it. My white blood count has been extremely high for that duration. No one really looked into PV or any MPN because I looked very physically fit. It came to an head as I aged. Currently in my mid 40's.
I started Pegasys about 2 months ago and experienced extreme pain where I injected myself on my first dose. At first my Dr thought it might have been infection but it happened again during me second dose. There was a 2 day delay and then redness, tenderness and extreme pain. I have had other symptoms like chills, muscle pain, clouded thoughts, depression, lack of energy, etc. However my main concern is the pain.
We stopped treatment after 2 doses (500 mg) becauses the pain was just too unbearable. It took me over a month to recover and last week I started on Besremi (50 mg since I am still taking HU). My Dr advised more than likely it was the dosage amount. After 2 days I told him I was expecting to feel the site pain again because it is still inferon. He gave me better pain medication vs otc that was initially taken during Pegasys. The pain is here and it is a little lighter. A 7 vs the 15 I had prior and the pain medication is making it tolerable.
I want to stay on Besremi because of the remission capabilities that no other drug offers.
My question is has anyone else gone through this and am I having adverse reactions to Interferon itself? Thank you kindly.
Sam