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Interferon beta-1a
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PPMS...
~No l dont have this, but we never do posts on PPMS. (I have been told🤣)~ ~Please Let Me Know What Your Thoughts Are!~ Per... https://my.clevelandclinic.org/health/diseases/14202-primary-progressive-multiple-sclerosis-ppms What is primary progressive multiple sclerosis? Multiple sclerosis (MS)
~No l dont have this, but we never do posts on PPMS. (I have been told🤣)~ ~Please Let Me Know What Your Thoughts Are!~ Per... https://my.clevelandclinic.org/health/diseases/14202-primary-progressive-multiple-sclerosis-ppms What is primary progressive multiple sclerosis? Multiple sclerosis (MS)
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
Waste
I have just over £900 worth of interferon in my fridge I no longer take and it will have to be destroyed. It was delivered in a cool bag and went straight in fridge but rules prevent hospitals reusing it. I recently checked medication in chemist, which I couldn't take as I hadn't left chemist it could
I have just over £900 worth of interferon in my fridge I no longer take and it will have to be destroyed. It was delivered in a cool bag and went straight in fridge but rules prevent hospitals reusing it. I recently checked medication in chemist, which I couldn't take as I hadn't left chemist it could
ciye
in
MPN Voice
2 years ago
New here - help needed
Back story, I have a chronic blood disease which is now controlled well with interferon. I should be feeling good but I'm not (one of the side effects of interferon can be that it has an effect on the thyroid). The blood disease and thyroid problems seem to have a lot of similar symptoms I'm especially
Back story, I have a chronic blood disease which is now controlled well with interferon. I should be feeling good but I'm not (one of the side effects of interferon can be that it has an effect on the thyroid). The blood disease and thyroid problems seem to have a lot of similar symptoms I'm especially
Izzys-Mum
in
Thyroid UK
2 years ago
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Hello Hello Interferon users
Hi gave myself a third Pegusus injection last night all whent well sort of. Although the first 2 syringe needles appeared very fine, last night's needle looked larger in diameter and left a puncture mark. Should l be asking the pharmacy about needle size or perhaps it's just me lm still very new
Hi gave myself a third Pegusus injection last night all whent well sort of. Although the first 2 syringe needles appeared very fine, last night's needle looked larger in diameter and left a puncture mark. Should l be asking the pharmacy about needle size or perhaps it's just me lm still very new
Hidden
in
MPN Voice
2 years ago
Gout in back?
Hi all, I have seen a few posts recently regarding Gout. My query is a recent CT scan to check for kidney stones showed Degenerative disc disease as I have had 3 recent episodes (still ongoing) with severe nerve pain generating from my spine in my lower back. I have also read someone had said it could
Hi all, I have seen a few posts recently regarding Gout. My query is a recent CT scan to check for kidney stones showed Degenerative disc disease as I have had 3 recent episodes (still ongoing) with severe nerve pain generating from my spine in my lower back. I have also read someone had said it could
Grendall
in
MPN Voice
2 years ago
Checks up appointments
Hi guys Haven't been om a while has had quite a few appointments and still git few on the way ,I mentioned symptoms to my haematologist in August she saw me face to face explain to me now am in the medium risk group has age (40-60 years old ) and has platelets are rising up and not going down not alot
Hi guys Haven't been om a while has had quite a few appointments and still git few on the way ,I mentioned symptoms to my haematologist in August she saw me face to face explain to me now am in the medium risk group has age (40-60 years old ) and has platelets are rising up and not going down not alot
Jody00
in
MPN Voice
2 years ago
MPN experts invaluable.
Thought I would share this useful information . Having been treated by my local Haemotology Department since early this year upon my ET Jak2 positive diagnosis I have done lots of reading on this valuable website we have. ET was discovered from my sports injury NOT any symptoms. Hydroxy
Thought I would share this useful information . Having been treated by my local Haemotology Department since early this year upon my ET Jak2 positive diagnosis I have done lots of reading on this valuable website we have. ET was discovered from my sports injury NOT any symptoms. Hydroxy
Exeter21
in
MPN Voice
2 years ago
headaches & Peg Interferon
on my 4 th dose of Peg Interferon. First 2 we’re ok headaches on day after injection. But after 3 & 4th injections I have constant headache & dizziness. I speak to consultant this week. I hoped for improvement by now but headaches continue. So annoying as Hydroxy was terrible effects also
on my 4 th dose of Peg Interferon. First 2 we’re ok headaches on day after injection. But after 3 & 4th injections I have constant headache & dizziness. I speak to consultant this week. I hoped for improvement by now but headaches continue. So annoying as Hydroxy was terrible effects also
Exeter21
in
MPN Voice
2 years ago
ET Jak2 Tet2
Hello, Recently diagnosed and Specialist wants to follow for a few years till I hit 60 and then begin Besremi or Interferon (Ropeg). Hunter5582 please weigh in. Last time my platelets WNL was 2012. Slow climb to above 800. Does anyone have specifically ET with Jak2 and Tet2. My specialist skimmed
Hello, Recently diagnosed and Specialist wants to follow for a few years till I hit 60 and then begin Besremi or Interferon (Ropeg). Hunter5582 please weigh in. Last time my platelets WNL was 2012. Slow climb to above 800. Does anyone have specifically ET with Jak2 and Tet2. My specialist skimmed
DiveGoddess
in
MPN Voice
2 years ago
new to interferon Hunter can you help ?
When switching to interferon injections, should you still be on 3 a day hydroxy at same time ?
When switching to interferon injections, should you still be on 3 a day hydroxy at same time ?
Hidden
in
MPN Voice
2 years ago
Anagrelid to Interferon and Hashimoto.
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
Anag
in
MPN Voice
2 years ago
Living with ET+CALR and new to the group…Hello Everyone
Currently on a high dose of Hydro (3 pills a day) and trying to keep consistent numbers. My platelets spiked up to the millions last month because we have been adjusting my dosage and it backfired. I’m currently in normal range but the high dose is daunting, especially because I’m only 38 years old.
Currently on a high dose of Hydro (3 pills a day) and trying to keep consistent numbers. My platelets spiked up to the millions last month because we have been adjusting my dosage and it backfired. I’m currently in normal range but the high dose is daunting, especially because I’m only 38 years old.
Zeppelin11
in
MPN Voice
2 years ago
Peg Interferon or HU
Hi everyone! Does anyone know if Interferon or HU is safer in the long run? I've done some readings and it seems like HU is more toxic and can lead to some cancers. While interferon is safe for pregnancy, i am assuming it is the safest meds of all. I have been on HU for 3 months and it gave me thick
Hi everyone! Does anyone know if Interferon or HU is safer in the long run? I've done some readings and it seems like HU is more toxic and can lead to some cancers. While interferon is safe for pregnancy, i am assuming it is the safest meds of all. I have been on HU for 3 months and it gave me thick
Timtams
in
MPN Voice
2 years ago
2nd dose of interferon
l have awful flu like symptoms, headache and migraine a week following my first Pegasys injection also ceased Hydroxycarbamide on the same day. 2nd injection this Thursday. These symptoms are not uncommon apparently for Pegasys interferon but apart from paracetamol any other suggestions would be most
l have awful flu like symptoms, headache and migraine a week following my first Pegasys injection also ceased Hydroxycarbamide on the same day. 2nd injection this Thursday. These symptoms are not uncommon apparently for Pegasys interferon but apart from paracetamol any other suggestions would be most
Hidden
in
MPN Voice
2 years ago
Update of Mithradite Trial
I am now one year into the Mithradite trial and thought a good time for update. The Mithradite trial is a randomised trial of Ruxolitnib against best available therapy which is either Hydrea or Interferon. My background is diagnosed with ET three years at age 67 and prescribed Hydrea. The Hydrea
I am now one year into the Mithradite trial and thought a good time for update. The Mithradite trial is a randomised trial of Ruxolitnib against best available therapy which is either Hydrea or Interferon. My background is diagnosed with ET three years at age 67 and prescribed Hydrea. The Hydrea
JP1952
in
MPN Voice
2 years ago
Travel with Interferon
I have read posts regarding travel and transporting my drug whilst flying. I'm travelling from Heathrow to Sydney in December with a stopover in Malaysia. So far through my research I have found out I must not take the phials out of the box they come in and find some sort of container that with keep
I have read posts regarding travel and transporting my drug whilst flying. I'm travelling from Heathrow to Sydney in December with a stopover in Malaysia. So far through my research I have found out I must not take the phials out of the box they come in and find some sort of container that with keep
Abrams
in
MPN Voice
2 years ago
Interferon and thyroid
Is anyone on interferon who also has a thyroid condition ? I have been told by my consultant that they would not be happy with me trying interferon as I have an underactive thyroid and am on thyroxine. I am aware that interferon can affect the thyroid and they have to monitor it but if it is already
Is anyone on interferon who also has a thyroid condition ? I have been told by my consultant that they would not be happy with me trying interferon as I have an underactive thyroid and am on thyroxine. I am aware that interferon can affect the thyroid and they have to monitor it but if it is already
jodary
in
MPN Voice
2 years ago
Anagrelide
I know we all react very differently to meds can I ask those who take Anagrelide for et how they have found it. I can't take interferon currently on hu.
I know we all react very differently to meds can I ask those who take Anagrelide for et how they have found it. I can't take interferon currently on hu.
ciye
in
MPN Voice
2 years ago
pegasys interferon injections & flu jab
Hello there, Just need some advice. I've been taking my interferon injections every Tues eve for a few months & am due a flu jab. I would imagine it's not good to have it same day as my injections.So should leave it for a few days?... ie:interferon injections Tue evening & flu jab on a friday? 
Hello there, Just need some advice. I've been taking my interferon injections every Tues eve for a few months & am due a flu jab. I would imagine it's not good to have it same day as my injections.So should leave it for a few days?... ie:interferon injections Tue evening & flu jab on a friday? 
keviekev
in
MPN Voice
2 years ago
Recent TSH Results
Hi All, It's been a while since I posted anything about myself. Since my last post maybe a year ago, my thyroid blood results have been very stable since deciding NOT to take the radioiodine option, I was offered. My latest results after being on 5mg carbimazole for 16 months has seen my: TSH rise
Hi All, It's been a while since I posted anything about myself. Since my last post maybe a year ago, my thyroid blood results have been very stable since deciding NOT to take the radioiodine option, I was offered. My latest results after being on 5mg carbimazole for 16 months has seen my: TSH rise
LadyAbash
in
Thyroid UK
2 years ago
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