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Interferon alfa-2b
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High sugar levels
Hi had ET for 10 years,asprin and interferon 2a had bloods done last week raised sugar levels,have to see doctor tomorrow,worried i have dry mouth, having problem with eyes blurred when reading .could this be the interferon injections any advice please x
Hi had ET for 10 years,asprin and interferon 2a had bloods done last week raised sugar levels,have to see doctor tomorrow,worried i have dry mouth, having problem with eyes blurred when reading .could this be the interferon injections any advice please x
Jbut
in
MPN Voice
5 years ago
Interferon and ears!
This is probably a daft question but is there any link with interferon and eustachian tube dysfunction?
This is probably a daft question but is there any link with interferon and eustachian tube dysfunction?
hansyhand
in
MPN Voice
5 years ago
Interleukin (IL) -27
Journal of Interferon & Cytokine Research VOL. 39, NO. 8 | Research Reports normal Poly(I:C)-Mediated Death of Human Prostate Cancer Cell Lines Is Induced by Interleukin-27 Treatment Olena Kourko, Robin Smyth, Daniela Cino, Kyle Seaver, Carlene Petes, So Young Eo, Sam Basta, and Katrina Gee Published
Journal of Interferon & Cytokine Research VOL. 39, NO. 8 | Research Reports normal Poly(I:C)-Mediated Death of Human Prostate Cancer Cell Lines Is Induced by Interleukin-27 Treatment Olena Kourko, Robin Smyth, Daniela Cino, Kyle Seaver, Carlene Petes, So Young Eo, Sam Basta, and Katrina Gee Published
Graham49
in
Advanced Prostate Cancer
5 years ago
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Hydroxy effecting Haemoglobin and RBC
Age 35 Taking Hydroxy since 1.7 years Last 4 weeks taking Hydroxy : 6500/week (1500+ 1000+ 1500 + 1000+1500 off off) for last 2 weeks) JAK 2 negative Today’s blood report not good :( Haemoglobin: 13.4 g/dl (gown down in 3 months from 14.5) RBC : 4.04 x 10E12/L ( down from 4.24 in 3 months) Platelets
Age 35 Taking Hydroxy since 1.7 years Last 4 weeks taking Hydroxy : 6500/week (1500+ 1000+ 1500 + 1000+1500 off off) for last 2 weeks) JAK 2 negative Today’s blood report not good :( Haemoglobin: 13.4 g/dl (gown down in 3 months from 14.5) RBC : 4.04 x 10E12/L ( down from 4.24 in 3 months) Platelets
MrThara
in
MPN Voice
5 years ago
Pegasys - possibly closer to slowing progression than anything else?
Hopefully this is not an irresponsible header since may raise false hopes, especially for those who can not tolerate Pegasys. However the quote is from a highly respected MPN specialist today. I saw him about 18 months ago and asked, if you were me, would you start Pegasys (I was coping on venesections
Hopefully this is not an irresponsible header since may raise false hopes, especially for those who can not tolerate Pegasys. However the quote is from a highly respected MPN specialist today. I saw him about 18 months ago and asked, if you were me, would you start Pegasys (I was coping on venesections
Paul123456
in
MPN Voice
5 years ago
My update, for mouth sores test.
Hi all, I saw the oncologist yesterday, and after testing where my mouth sores were coming from, over the past two months, they took me off Hydroxycarbomide and as the mouth sores have virtually disappeared, have decided that was the cause. So now, no more Hydroxycarbomide but in two weeks time I will
Hi all, I saw the oncologist yesterday, and after testing where my mouth sores were coming from, over the past two months, they took me off Hydroxycarbomide and as the mouth sores have virtually disappeared, have decided that was the cause. So now, no more Hydroxycarbomide but in two weeks time I will
Yvette49
in
MPN Voice
5 years ago
"Dry skin" and Pegasys
Many people here report that Pegasys gives them dry skin. No doubt this is often true because Pegasys has a GIGANTIC range of side-effects. But I wanted to call attention to something else Pegasys does which could be confused with dry skin. Pegasys is a recombinant alpha interferon (IFN-α) and as
Many people here report that Pegasys gives them dry skin. No doubt this is often true because Pegasys has a GIGANTIC range of side-effects. But I wanted to call attention to something else Pegasys does which could be confused with dry skin. Pegasys is a recombinant alpha interferon (IFN-α) and as
pnArt
in
MPN Voice
5 years ago
Two side effects from Pegasys
Now that I've been on the Pegasys (45 mcg/ml) for 5 weeks I'm fighting two major side effects - itching and anxiety/restlessness and I'm wondering what others have learned. 1. Itching. Because itching (pruritis) is a common effect of PCV many patients think it's from the PCV. But the research literature
Now that I've been on the Pegasys (45 mcg/ml) for 5 weeks I'm fighting two major side effects - itching and anxiety/restlessness and I'm wondering what others have learned. 1. Itching. Because itching (pruritis) is a common effect of PCV many patients think it's from the PCV. But the research literature
pnArt
in
MPN Voice
5 years ago
Need advice
Hello to all my MPN's. Last year in September I had a heart attack and had angioplasty and had three stints put in. I was also put on medication for heart and one of them is Clopidogrel. I am also on 75mg Aspirin and 135 mc Pegulated Interferon every three weeks. The reason for heart attack was not
Hello to all my MPN's. Last year in September I had a heart attack and had angioplasty and had three stints put in. I was also put on medication for heart and one of them is Clopidogrel. I am also on 75mg Aspirin and 135 mc Pegulated Interferon every three weeks. The reason for heart attack was not
light
in
MPN Voice
5 years ago
Pegasys Interferon side affects
Hi Everyone, Happy Monday Anyone here experienced issues with the skin on your palms peeling on Pegasys Interferon? Currently on 45mcg weekly injections and issue only seems to have started since I restarted the injections about 4/5 weeks ago? Thanks Ben
Hi Everyone, Happy Monday Anyone here experienced issues with the skin on your palms peeling on Pegasys Interferon? Currently on 45mcg weekly injections and issue only seems to have started since I restarted the injections about 4/5 weeks ago? Thanks Ben
Crofty7
in
MPN Voice
5 years ago
New to ms the first week of many weeks
New to Relapsing Remitting ms (RRms) its first week month decade. Everything is a learning experience. Mistakes will be made, I most certainly made mine. People will give “YOU” suggestions and make recommendations. They may appear reasonable but, this is an incurable progressive chronic condition
New to Relapsing Remitting ms (RRms) its first week month decade. Everything is a learning experience. Mistakes will be made, I most certainly made mine. People will give “YOU” suggestions and make recommendations. They may appear reasonable but, this is an incurable progressive chronic condition
RoyceNewton
in
My MSAA Community
5 years ago
New Zealanders, brilliant news for interferon
Brilliant news to Roferon A users! Just enquired about the shortage and this was the reply from haematology department which takes effect by the end of this year. "I believe the drug company is due to stop manufacturing interferon alpha. However it is our understanding that a replacement product will
Brilliant news to Roferon A users! Just enquired about the shortage and this was the reply from haematology department which takes effect by the end of this year. "I believe the drug company is due to stop manufacturing interferon alpha. However it is our understanding that a replacement product will
fee13
in
MPN Voice
5 years ago
Interferon injections
Hello everyone.... saw my oncologist last week, I have been given another 3 weeks off of Hydroxycarbomide ( it’s shown it is that that is giving me mouth sores) it has been mentioned I could go onto interferon. I am nervous of injections, let alone giving it to myself 🥴 how easy is it, and does it hurt
Hello everyone.... saw my oncologist last week, I have been given another 3 weeks off of Hydroxycarbomide ( it’s shown it is that that is giving me mouth sores) it has been mentioned I could go onto interferon. I am nervous of injections, let alone giving it to myself 🥴 how easy is it, and does it hurt
Yvette49
in
MPN Voice
5 years ago
First experiences with Pegasys for Polythycemia Vera
I've had PV for about 10 years, managing it with phlebotomies and aspirin but I've been eager to try Pegasys and avoid HU. HU is a really old, pharmacokinetically poorly characterised drug which causes DNA damage (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5126785/, https://www.researchgate.net
I've had PV for about 10 years, managing it with phlebotomies and aspirin but I've been eager to try Pegasys and avoid HU. HU is a really old, pharmacokinetically poorly characterised drug which causes DNA damage (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5126785/, https://www.researchgate.net
pnArt
in
MPN Voice
5 years ago
Interferon shortage?
Hi I'm Jimango. Have been monitoring this forum for a few years but never needed to post, although I have replied to a few. I'm ET, Jak2 neg, since 2007. HU intolerant, anagralide ineffective on it's own, but very effective in combination with Interferon alpha 2a (roferon). Have just been told that
Hi I'm Jimango. Have been monitoring this forum for a few years but never needed to post, although I have replied to a few. I'm ET, Jak2 neg, since 2007. HU intolerant, anagralide ineffective on it's own, but very effective in combination with Interferon alpha 2a (roferon). Have just been told that
Jimango
in
MPN Voice
5 years ago
Understanding the Role of Polyautoimmunity in Rheumatic Diseases
Understanding the Role of Polyautoimmunity in Rheumatic Diseases Linda Peckel July 16, 2019 An estimated 5 percent of the world’s population is diagnosed with one of a group of heterogeneous autoimmune rheumatic diseases (ARDs) including systemic lupus erythematosus (SLE), rheumatoid arthritis (RA)
Understanding the Role of Polyautoimmunity in Rheumatic Diseases Linda Peckel July 16, 2019 An estimated 5 percent of the world’s population is diagnosed with one of a group of heterogeneous autoimmune rheumatic diseases (ARDs) including systemic lupus erythematosus (SLE), rheumatoid arthritis (RA)
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Vaccines FYI
[u]Vaccine Safety When You Have MS[/u] Which Ones Are Safe and Which Ones Are Not By Colleen Doherty, MD Updated June 25, 2019 Medically reviewed by Andy Miller, MD
https://www.verywellhealth.com/vaccine-safety-in-ms-4119468?utm_term=&utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content
[u]Vaccine Safety When You Have MS[/u] Which Ones Are Safe and Which Ones Are Not By Colleen Doherty, MD Updated June 25, 2019 Medically reviewed by Andy Miller, MD
https://www.verywellhealth.com/vaccine-safety-in-ms-4119468?utm_term=&utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content
sashaming1
in
My MSAA Community
5 years ago
Pv with mouth ulcers using peg interferon
I have had mouth ulcers over a month (white blister on right side of the tongue and marks inside cheek). Stopped peg interferon 45 dosage so my mouth can heal recently Last Tuesday suppose to be my day to inject myself. 4 weeks break. How long can it take to heal my mouth? Right now using cordyol toothpaste
I have had mouth ulcers over a month (white blister on right side of the tongue and marks inside cheek). Stopped peg interferon 45 dosage so my mouth can heal recently Last Tuesday suppose to be my day to inject myself. 4 weeks break. How long can it take to heal my mouth? Right now using cordyol toothpaste
Zar77
in
MPN Voice
5 years ago
ET since 2001, now anxious about changes in blood counts
Hello, I am new here. I was diagnosed with ET in 2001 and, with a few ups and downs, it has mostly been stable on Hydroxycarbamide, Anagrelide and Aspirin until now. At my last appointment, my haemaglobin had dropped to 96, platelets 109 and WBC in the 20s (but have been stable around that for a year
Hello, I am new here. I was diagnosed with ET in 2001 and, with a few ups and downs, it has mostly been stable on Hydroxycarbamide, Anagrelide and Aspirin until now. At my last appointment, my haemaglobin had dropped to 96, platelets 109 and WBC in the 20s (but have been stable around that for a year
Otterfield
in
MPN Voice
5 years ago
Essential Thrombocythemia - Recent Diagnosis Interferon
Hello All, I was recently diagnosed with ET and have Googled the subject extensively (as most would do) I felt quite confident with the knowledge I acquired until the reality of taking the proposed treatment sunk in. I have been told by my consultant that I will commence with Interferon in a few weeks
Hello All, I was recently diagnosed with ET and have Googled the subject extensively (as most would do) I felt quite confident with the knowledge I acquired until the reality of taking the proposed treatment sunk in. I have been told by my consultant that I will commence with Interferon in a few weeks
Threelions
in
MPN Voice
5 years ago
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