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Interferon alfa-2b
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Ruxolitinib and aggressive squamous cell skin cancers.
Hi. Update as promised. I got in touch with my MPN specialist feeling rather desperate after having had the SCC on my cheek excised. I’d followed up the research that people here had pointed me to on the link between rux and aggressive SCCs and sent some on to him What I’d taken from the research
Hi. Update as promised. I got in touch with my MPN specialist feeling rather desperate after having had the SCC on my cheek excised. I’d followed up the research that people here had pointed me to on the link between rux and aggressive SCCs and sent some on to him What I’d taken from the research
Rachelthepotter
in
MPN Voice
5 years ago
Aches and pains....
I'm 44, JAK2+ with ET. I generally don't suffer from symptoms apart from frustrating fatigue and have had some thromboses. Now though, I have noticed severe stiffness and pain in my lower back. I'm like a very old lady. Heat treatment helps but I wonder if this is related to ET or just 'one of those
I'm 44, JAK2+ with ET. I generally don't suffer from symptoms apart from frustrating fatigue and have had some thromboses. Now though, I have noticed severe stiffness and pain in my lower back. I'm like a very old lady. Heat treatment helps but I wonder if this is related to ET or just 'one of those
Karol_Rua
in
MPN Voice
5 years ago
Have to decide between Hydroxycarbide or Interferon on July 4th? Cant i just keep having a Venesection every few months? I have ET
Can anyone help me chose ? I am 59yrs so have been told that I have a choice as Interferon used for younger people and Hydro used for older people, both have risks. I platelet count of 550 and really don't want to take any tablets or have injections as I have so much work to do and finish off and very
Can anyone help me chose ? I am 59yrs so have been told that I have a choice as Interferon used for younger people and Hydro used for older people, both have risks. I platelet count of 550 and really don't want to take any tablets or have injections as I have so much work to do and finish off and very
Hildrethbird
in
MPN Voice
5 years ago
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Spa treatments
Hi quick question, I have et jak 2 on aspirin and interferon once a week 45mg. My husband bought me a spa stay in for my bday. Me and my friends booked full body massage. I just found out I can't have full body massage without doctors note. I was all ready to go in the treatment room. Iam so upset as
Hi quick question, I have et jak 2 on aspirin and interferon once a week 45mg. My husband bought me a spa stay in for my bday. Me and my friends booked full body massage. I just found out I can't have full body massage without doctors note. I was all ready to go in the treatment room. Iam so upset as
Elab
in
MPN Voice
5 years ago
Inteferon and remission?
I know there’s been a lot of research on the peg interferon being successful with complete molecular remission. It has been very exciting to read about this. I just had my hemo appointment today. I have been on the interferon for about eight months. 45 MCG weekly. Platelets down from 1.4 million to
I know there’s been a lot of research on the peg interferon being successful with complete molecular remission. It has been very exciting to read about this. I just had my hemo appointment today. I have been on the interferon for about eight months. 45 MCG weekly. Platelets down from 1.4 million to
Miriammusic
in
MPN Voice
5 years ago
Anybody taking interferon for ET ?
I was diagnosed with ET at the age of 37.Until now I have been taking 75 mg of aspirin and been having regular check ups.Yesterday had appointment and now my platelets are 1500-my haematologist want me to go back in 2 weeks time for more tests and depends on the results I will need to choose a treatment.Reading
I was diagnosed with ET at the age of 37.Until now I have been taking 75 mg of aspirin and been having regular check ups.Yesterday had appointment and now my platelets are 1500-my haematologist want me to go back in 2 weeks time for more tests and depends on the results I will need to choose a treatment.Reading
Welbi
in
MPN Voice
5 years ago
Dry cough
Hello I read a few days ago about someone having a breathing problems linked to Interferon. I was wondering what this felt like. I’m 3 months into taking Pegasys and have increased asthma symptoms at the moment. Information about anyone else’s experiences would be reassuring.
Hello I read a few days ago about someone having a breathing problems linked to Interferon. I was wondering what this felt like. I’m 3 months into taking Pegasys and have increased asthma symptoms at the moment. Information about anyone else’s experiences would be reassuring.
Charlieapple2018
in
MPN Voice
5 years ago
My story so far. Hi I’m new!
It’s been a rollercoaster of tests and procedures since being diagnosed with chronic hep b back in November 2018 at 37 years old. It looks like I wasn’t treated when my mother pregnant as my brother is positive but sister was treated. My diagnoses only came about as I thought it was gallbladder pain
It’s been a rollercoaster of tests and procedures since being diagnosed with chronic hep b back in November 2018 at 37 years old. It looks like I wasn’t treated when my mother pregnant as my brother is positive but sister was treated. My diagnoses only came about as I thought it was gallbladder pain
Steven_
in
British Liver Trust
5 years ago
Treatment with Tofacitinib Helps Relieve Arthritis and Rash Symptoms in Lupus Patients, Study Shows
SOURCE: lupusnewstoday.com/2019/05/31/tofacitinib-relieve-arthritis-skin-rash-symptoms-sle/ Ana Pena May 31, 2019 Treatment with Tofacitinib Helps Relieve Arthritis and Rash Symptoms in Lupus Patients, Study Shows Tofacitinib tablets, a medicine approved to treat rheumatoid and psoriatic arthritis, may
SOURCE: lupusnewstoday.com/2019/05/31/tofacitinib-relieve-arthritis-skin-rash-symptoms-sle/ Ana Pena May 31, 2019 Treatment with Tofacitinib Helps Relieve Arthritis and Rash Symptoms in Lupus Patients, Study Shows Tofacitinib tablets, a medicine approved to treat rheumatoid and psoriatic arthritis, may
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Et
I have ET for 10 years been on interferon 2b,been to hospital to pick meds up today and they said dont do 2b anymore,so my new med is interferon 2a any advice would be great ,does it do the same x
I have ET for 10 years been on interferon 2b,been to hospital to pick meds up today and they said dont do 2b anymore,so my new med is interferon 2a any advice would be great ,does it do the same x
Jbut
in
MPN Voice
5 years ago
Regular interferon vs pegylated interferon side effects.
Has anyone noticed an improvement in side effects swapping from regular to pegylated? My fatigue, weakness, exercise intolerance, hair loss etc is ruining my life and I wondered if the change would help with this. I've been on regular interferon for 1 1/2 years.
Has anyone noticed an improvement in side effects swapping from regular to pegylated? My fatigue, weakness, exercise intolerance, hair loss etc is ruining my life and I wondered if the change would help with this. I've been on regular interferon for 1 1/2 years.
fee13
in
MPN Voice
5 years ago
It is not as hard as you think
No a diagnosis(DX) of Relapsing Remitting ms (RRms) is not a disaster or an impossible incurable life sentence. Let me correct myself. Yes, today in 2019 it is incurable, and likely will be for the next twenty or so years at the least, so I guess that could be a life sentence depending upon your
No a diagnosis(DX) of Relapsing Remitting ms (RRms) is not a disaster or an impossible incurable life sentence. Let me correct myself. Yes, today in 2019 it is incurable, and likely will be for the next twenty or so years at the least, so I guess that could be a life sentence depending upon your
RoyceNewton
in
My MSAA Community
5 years ago
‘Sharps’ Bin
Hi , Sorry to ask such a trivial question, but I was given a sharps bin when I started Interferon a couple of months ago, but not told exactly what to put in it. I know you knowledgeable people will have the answer. Do you put just the needles in it for disposal, or should the empty syringes go in as
Hi , Sorry to ask such a trivial question, but I was given a sharps bin when I started Interferon a couple of months ago, but not told exactly what to put in it. I know you knowledgeable people will have the answer. Do you put just the needles in it for disposal, or should the empty syringes go in as
swimswam
in
MPN Voice
5 years ago
recurrent infections
Hi was just wondering if anyone had any advice - I have for the last 2 years have had recurrent chest/ear infections always needs treatment with antibiotics. When I discussed with the haematologists they have said its unlikely to be down to ET worsening as my platelets remain the same. The platelets
Hi was just wondering if anyone had any advice - I have for the last 2 years have had recurrent chest/ear infections always needs treatment with antibiotics. When I discussed with the haematologists they have said its unlikely to be down to ET worsening as my platelets remain the same. The platelets
cheeks1
in
MPN Voice
5 years ago
Feeling rough - high BP?
Hi Sorry for the long post, I have MF, diagnosed January 2018 currently taking Pegasys Interferon (45mcg per week) and aspirin, for a while before Easter I had been feeling 'odd' - getting tired quickly, light headed etc. My hematology dept has a 24 hour helpline and they advised me to come in (on a
Hi Sorry for the long post, I have MF, diagnosed January 2018 currently taking Pegasys Interferon (45mcg per week) and aspirin, for a while before Easter I had been feeling 'odd' - getting tired quickly, light headed etc. My hematology dept has a 24 hour helpline and they advised me to come in (on a
Not2bad
in
MPN Voice
5 years ago
Pegasys interferon shortage
Hi, Had my monthly haematology check up the other day and my consultant advised that there is a manufacturing shortage of peg interferon at the moment so they couldn’t prescribe my normal 4 weeks supply. Has anyone else heard this or is it maybe just a Scotland thing? I’ve to go back on Friday as they
Hi, Had my monthly haematology check up the other day and my consultant advised that there is a manufacturing shortage of peg interferon at the moment so they couldn’t prescribe my normal 4 weeks supply. Has anyone else heard this or is it maybe just a Scotland thing? I’ve to go back on Friday as they
Spam1979
in
MPN Voice
5 years ago
Remission with peg interferon
I was wondering if people have had any success with remission using this drug for certain amount of years. Is there hope to reduce their burden even if is 56%.
I was wondering if people have had any success with remission using this drug for certain amount of years. Is there hope to reduce their burden even if is 56%.
Zar77
in
MPN Voice
5 years ago
Diagnosis with Polycythemia today
Today I went to see my Hematologist he said I have mpn Polycythemia. I had bloods taken shows my bloods are evaluating and everything else. My ct scan shows my spleen is fine and everything else is ok. He wants me to take Asprin. He wants me to decide treatment either Hydroxyurea or peg interferon treatment
Today I went to see my Hematologist he said I have mpn Polycythemia. I had bloods taken shows my bloods are evaluating and everything else. My ct scan shows my spleen is fine and everything else is ok. He wants me to take Asprin. He wants me to decide treatment either Hydroxyurea or peg interferon treatment
Zar77
in
MPN Voice
5 years ago
Interferon--does ones age make a difference?
I'm on Hydroxy and would like to try interferon. My hematologist has told me that she will apply to see if I can go on it (I'm in Canada) however she warned me that as I'm 74 I might have difficulties. She added that she has an older patient who has started on it and is not doing well. Has anyone
I'm on Hydroxy and would like to try interferon. My hematologist has told me that she will apply to see if I can go on it (I'm in Canada) however she warned me that as I'm 74 I might have difficulties. She added that she has an older patient who has started on it and is not doing well. Has anyone
jeanr
in
MPN Voice
5 years ago
Absolutely different experience entirely!
Hi all,I had my new appointment with a new haematologist at a new NHS authority yesterday and the contrast to when i was first diagnosed and my treatment in the last 11 years was unbelieveable. I was really never told a lot about the condition I have, etjak2, I had to find out everything for myself through
Hi all,I had my new appointment with a new haematologist at a new NHS authority yesterday and the contrast to when i was first diagnosed and my treatment in the last 11 years was unbelieveable. I was really never told a lot about the condition I have, etjak2, I had to find out everything for myself through
Tico
in
MPN Voice
5 years ago
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