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Interferon alfa-2b
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Increasing evidence that Interferons are our best treatment option for PV
Both low risk and high risk PV. Fhttps://mpn-hub.com/medical-information/does-interferon-alpha-prolong-survival-and-prevent-progression-in-patients-with-pv?fbclid=IwAR1oof9NGBRYa__4oOCaPl1L56lphvj0RPe4iIvN7F0S2sLfUA5Iknzxb9g
Both low risk and high risk PV. Fhttps://mpn-hub.com/medical-information/does-interferon-alpha-prolong-survival-and-prevent-progression-in-patients-with-pv?fbclid=IwAR1oof9NGBRYa__4oOCaPl1L56lphvj0RPe4iIvN7F0S2sLfUA5Iknzxb9g
Paul123456
in
MPN Voice
4 years ago
Anagrelide or Peg Interferon
Hi everyone. Since having to give up Hydroxy nearly 2 years ago, because of side effects , I have been on aspirin and omeprazole only. That has worke until now, but I saw my haemotologist yesterday and , while the red count is still within a normal range, my platelets are now beginning to climb. The
Hi everyone. Since having to give up Hydroxy nearly 2 years ago, because of side effects , I have been on aspirin and omeprazole only. That has worke until now, but I saw my haemotologist yesterday and , while the red count is still within a normal range, my platelets are now beginning to climb. The
Splb3317
in
MPN Voice
4 years ago
Interferon
Hi all I have just read a article about people suffering long Covid mentioning about Interferon Wondering if it has any connection to interferon medication?? Can someone explain what this means to people taking interferon? ( in Lehman terms please) COVID-19 patients had “dramatic increases in
Hi all I have just read a article about people suffering long Covid mentioning about Interferon Wondering if it has any connection to interferon medication?? Can someone explain what this means to people taking interferon? ( in Lehman terms please) COVID-19 patients had “dramatic increases in
Gunner73
in
MPN Voice
4 years ago
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Genetic clue to severe Covid: “It is part of the system that makes your immune cells more angry, and more inflammatory”...sound like lupus ?
Covid research will help with SLE and autoimmunity, without a shadow of a doubt! :) 'Two other recent studies published in the journal Science have also implicated interferon in Covid cases, through both genetic mutations and an autoimmune disorder that affects its production.' https://www.bbc.co.uk
Covid research will help with SLE and autoimmunity, without a shadow of a doubt! :) 'Two other recent studies published in the journal Science have also implicated interferon in Covid cases, through both genetic mutations and an autoimmune disorder that affects its production.' https://www.bbc.co.uk
eekt
in
LUPUS UK
4 years ago
Pegasys and Blood Pressure Medication
I’ve been put on low dose Ramipril ( an ACE inhibitor ) by my GP nurse practitioner for borderline hypertension. I am also on a high dose 180mcg Pegasys and aspirin for ET. I inquired about drug interaction and she seemed to think it was ok, but on taking my first tablet of Ramipril, I’ve felt awful
I’ve been put on low dose Ramipril ( an ACE inhibitor ) by my GP nurse practitioner for borderline hypertension. I am also on a high dose 180mcg Pegasys and aspirin for ET. I inquired about drug interaction and she seemed to think it was ok, but on taking my first tablet of Ramipril, I’ve felt awful
swimswam
in
MPN Voice
4 years ago
Interferon in Polycythemia Vera (PV) Yields Improved Myelofibrosis-Free and Overall Survival
« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV myelofibrosis, and prolong overall survival of PV pts » https://ash.confex.com/ash/2020/webprogram/Paper141796.html
« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV myelofibrosis, and prolong overall survival of PV pts » https://ash.confex.com/ash/2020/webprogram/Paper141796.html
Manouche
in
MPN Voice
4 years ago
Starting meds & worried
Hi all. Had phone call with doc yesterday & platelets are now over the 1500 mark (1569) so I need to start medication. I’m only 41 with 2 young kids so I’m feeling very emotional. I’ve got the CAL-R mutation. Interferon by injection is looking most likely but I’m waiting for face to face appointment
Hi all. Had phone call with doc yesterday & platelets are now over the 1500 mark (1569) so I need to start medication. I’m only 41 with 2 young kids so I’m feeling very emotional. I’ve got the CAL-R mutation. Interferon by injection is looking most likely but I’m waiting for face to face appointment
DoubleF79
in
MPN Voice
4 years ago
Prof Harrison, interferons and disease progression
Very useful video including Prof Harrison discussing Ropeg (Pegasys should offer similar results) and the correlation between reducing JAK2 AB and slowing down disease progression. This is the first ‘evidence’ that interferons can impact progression https://mpninfo.org/category/video-library/
Very useful video including Prof Harrison discussing Ropeg (Pegasys should offer similar results) and the correlation between reducing JAK2 AB and slowing down disease progression. This is the first ‘evidence’ that interferons can impact progression https://mpninfo.org/category/video-library/
Paul123456
in
MPN Voice
4 years ago
Hair loss
I am horrified by the amount of hair loss since starting on hydrocarbamide in April. Since this is a life long treatment it will only get worse. Would switching to interferon make any difference any ladies out there for any advice I don't want to be a badly woman.
I am horrified by the amount of hair loss since starting on hydrocarbamide in April. Since this is a life long treatment it will only get worse. Would switching to interferon make any difference any ladies out there for any advice I don't want to be a badly woman.
ciye
in
MPN Voice
4 years ago
Arsenic with interferon
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7579737/ Does anyone know if there is or will be a clinical trial from this research?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7579737/ Does anyone know if there is or will be a clinical trial from this research?
markgenious1981
in
Positive Wellbeing During Self-Isolation
4 years ago
New hope to cure patients with MPNs
« Myeloproliferative neoplasms (MPNs) are a group of blood cancers that are maintained by stem cell populations. In this issue of JEM, Dagher et al. (https://doi.org/10.1084/jem.20201268) combine arsenic and interferon α to deliver a knockout punch to MPN stem cells and provide new hope to cure patients
« Myeloproliferative neoplasms (MPNs) are a group of blood cancers that are maintained by stem cell populations. In this issue of JEM, Dagher et al. (https://doi.org/10.1084/jem.20201268) combine arsenic and interferon α to deliver a knockout punch to MPN stem cells and provide new hope to cure patients
Manouche
in
MPN Voice
4 years ago
Lowering platelets
Afternoon Guys Hope someone can advise or has had the same issue to assist? I have ET and have been stable on Peg interferon for a few years now but my last couple of blood test shows my platelets are dropping, my latest has dropped below the average? I am waiting to hear from my specialist as only
Afternoon Guys Hope someone can advise or has had the same issue to assist? I have ET and have been stable on Peg interferon for a few years now but my last couple of blood test shows my platelets are dropping, my latest has dropped below the average? I am waiting to hear from my specialist as only
Gunner73
in
MPN Voice
4 years ago
Experience on interferon.
Hi. My partner has hep B and the consultant has been advising on treatment and suggested interferon. He is concerned about the side effects especially in light of his job as a driver. I appreciate everyone is different but please can you let me know of experience on interferon treatment. Thanks.
Hi. My partner has hep B and the consultant has been advising on treatment and suggested interferon. He is concerned about the side effects especially in light of his job as a driver. I appreciate everyone is different but please can you let me know of experience on interferon treatment. Thanks.
Maisy76
in
British Liver Trust
4 years ago
Question for those taking PEG Interferon
I started on PEG Interferon at start of the year injecting 135mcg (it’s been slow at reducing levels) to treat my JAK2 PV. Have noticed that recently, I have been having some “fuzzy” (don’t know how best to term it) moments, where I could be in mid conversation and then I cannot tell what the other
I started on PEG Interferon at start of the year injecting 135mcg (it’s been slow at reducing levels) to treat my JAK2 PV. Have noticed that recently, I have been having some “fuzzy” (don’t know how best to term it) moments, where I could be in mid conversation and then I cannot tell what the other
Tylerdog1
in
MPN Voice
4 years ago
Update. Clinical trial finds inhaled immune response protein increases odds of recovery for hospitalised COVID-19 patients
Here is the original report that I posted back in July: https://www.southampton.ac.uk/news/2020/07/synairgen-results.page This the update to that trial: "Interferons are cytokines that modulate immune responses to viral infection. The type I interferons (interferon-α and interferon-β) have been tested
Here is the original report that I posted back in July: https://www.southampton.ac.uk/news/2020/07/synairgen-results.page This the update to that trial: "Interferons are cytokines that modulate immune responses to viral infection. The type I interferons (interferon-α and interferon-β) have been tested
2greys
in
Lung Conditions Community Forum
4 years ago
Jak2 allele burden results
31%. I have had PV since 2005 and been on Interferon most of the time. Logically I think 31% is good. In fact great. Am I right? Should I dance for joy? I haven't got the medical knowledge to relate it to the bigger picture. I may get more info when I see the consultant but I thought I would ask
31%. I have had PV since 2005 and been on Interferon most of the time. Logically I think 31% is good. In fact great. Am I right? Should I dance for joy? I haven't got the medical knowledge to relate it to the bigger picture. I may get more info when I see the consultant but I thought I would ask
MPort
in
MPN Voice
4 years ago
IS DEPRESSION A SYMPTOM OR SIDE EFFECT IN MPNS?
Post by MPN-MATE Admin » Mon Oct 26, 2020 8:41 am Morning all... :D Recently came across this article, which in turn reminded me of the 'Depressive' bout I suffered from earlier on in my diagnosis of having an MPN. At that time, I was also being treated w/ Interferon Alpha after not being able to
Post by MPN-MATE Admin » Mon Oct 26, 2020 8:41 am Morning all... :D Recently came across this article, which in turn reminded me of the 'Depressive' bout I suffered from earlier on in my diagnosis of having an MPN. At that time, I was also being treated w/ Interferon Alpha after not being able to
socrates_8
in
MPN Voice
4 years ago
Stopped my treatment for ET
I have ET and been on interferon Alpha for 11 years changed recently to peg, after a month on peg my platelets went low so stopped treatment in July.Over the last 3months having bloods done every four weeks, my platelets have been around the 300, so been great.consultant phoned today after having my
I have ET and been on interferon Alpha for 11 years changed recently to peg, after a month on peg my platelets went low so stopped treatment in July.Over the last 3months having bloods done every four weeks, my platelets have been around the 300, so been great.consultant phoned today after having my
Jbut
in
MPN Voice
4 years ago
Allele burden results on Pegasys
After 22 months on Pegasys my Jak2 allele burden has gone from 28% 4 years ago to 24% today. I have pmf and control my blood counts with Pegasys. My counts have been normal for about a year and a half, with the exception of monocytes, which run high. I thought that some people might be interested in
After 22 months on Pegasys my Jak2 allele burden has gone from 28% 4 years ago to 24% today. I have pmf and control my blood counts with Pegasys. My counts have been normal for about a year and a half, with the exception of monocytes, which run high. I thought that some people might be interested in
charl17
in
MPN Voice
4 years ago
Post 698 You have some choice 50 Oct 2020
My dearest ms family, G'day (hello) good morning welcome to a new week of our adventure, journey along our life with ms. Relapsing-remitting (RRms) in particular for that is what I have and what I live with. Live quite well in reality. I long ago came to terms with my RRms. I accept many things
My dearest ms family, G'day (hello) good morning welcome to a new week of our adventure, journey along our life with ms. Relapsing-remitting (RRms) in particular for that is what I have and what I live with. Live quite well in reality. I long ago came to terms with my RRms. I accept many things
RoyceNewton
in
My MSAA Community
4 years ago
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