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Interferon alfa-2b
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Interferon Injection
Hello. Over five weeks ago I have been placed on Interferon Alpha Injections. At this moment I am only taking half the dosage . Then I have to change the needle the following week and use the other half of the dosage. The needle is slightly larger than the normal needle that is in the packet. I have
Hello. Over five weeks ago I have been placed on Interferon Alpha Injections. At this moment I am only taking half the dosage . Then I have to change the needle the following week and use the other half of the dosage. The needle is slightly larger than the normal needle that is in the packet. I have
vegas22
in
MPN Voice
3 years ago
Start interferon or "watch and wait"?
First, thank you to all who have reached out to me this last week since I joined the forum. Your kindness has truly helped me come to terms with all this. I have my first meeting with my MPN specialist coming up soon. He will be giving me the results of the genetic testing to see which driver mutation
First, thank you to all who have reached out to me this last week since I joined the forum. Your kindness has truly helped me come to terms with all this. I have my first meeting with my MPN specialist coming up soon. He will be giving me the results of the genetic testing to see which driver mutation
cmc_ufl
in
MPN Voice
3 years ago
Pain aches interferon
Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps. But it’s been
Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps. But it’s been
Dovme
in
Fight MPN
3 years ago
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HU versus Interferon - choices, timing of switch and other related decisions
Hello, I am jak 2 positive calr negative person who has polycythemia Vera as well as GCA. Was diagnosed 2 years ago when I had abnormally high platelet count and hemoglobin and am on HU since then ,500 mg everyday of the week. Initially did 3-4 phlebotomies. Currently all blood parameters are perfect
Hello, I am jak 2 positive calr negative person who has polycythemia Vera as well as GCA. Was diagnosed 2 years ago when I had abnormally high platelet count and hemoglobin and am on HU since then ,500 mg everyday of the week. Initially did 3-4 phlebotomies. Currently all blood parameters are perfect
Iwillwin123
in
MPN Voice
3 years ago
Change from Hydroxy to Interferon
Good morning, would love to hear looking from patients who have moved from Hydroxy to Interferon. I am 48 and been on hydroxy for 4 years but my consultant is now suggesting moving over to interferon. I am a bit reluctant to change my treatment and deal with potential new side effects and learn to self
Good morning, would love to hear looking from patients who have moved from Hydroxy to Interferon. I am 48 and been on hydroxy for 4 years but my consultant is now suggesting moving over to interferon. I am a bit reluctant to change my treatment and deal with potential new side effects and learn to self
Belgobrit72
in
MPN Voice
3 years ago
Weekly Pegasys and COVID vaccine
Hi folks Quick question; has anyone had vaccine on weekly interferon injections? If so does it present issues? Apparently people are being asked if they’ve had any injections in the last seven days. Thanks Pete
Hi folks Quick question; has anyone had vaccine on weekly interferon injections? If so does it present issues? Apparently people are being asked if they’ve had any injections in the last seven days. Thanks Pete
PT99
in
MPN Voice
3 years ago
Interferon therapy in the management of myeloproliferative neoplasms
Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95]; p < 0.001), and was associated with a mortality risk reduction by 6% per year (HR 0.94 [95% CI, 0.90–0.99]; p < 0.012). Discontinuation rates
Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95]; p < 0.001), and was associated with a mortality risk reduction by 6% per year (HR 0.94 [95% CI, 0.90–0.99]; p < 0.012). Discontinuation rates
Manouche
in
MPN Voice
3 years ago
hepatitis Delta
Someone with suprainfection of hepatitis B and D chronic?Is there any treatment available on market or the fight is already lost for me?Feel so sad,the whole world crashed on me..feel so weak.After one year of Pegasys interferon ,i found out that i m in f3 stage of fibrosis,with an 1.47 Fib4score.I feel
Someone with suprainfection of hepatitis B and D chronic?Is there any treatment available on market or the fight is already lost for me?Feel so sad,the whole world crashed on me..feel so weak.After one year of Pegasys interferon ,i found out that i m in f3 stage of fibrosis,with an 1.47 Fib4score.I feel
ionutz79
in
British Liver Trust
3 years ago
Interferon
My hematologist decided to try interferon. Starting it soon kind of scared cause I heard it causes depression and anxiety, also flu like symptoms. Anyone else experienced anything like that while on interferon?
My hematologist decided to try interferon. Starting it soon kind of scared cause I heard it causes depression and anxiety, also flu like symptoms. Anyone else experienced anything like that while on interferon?
faith949
in
MPN Voice
3 years ago
Interferon muscle cramps
I am in the process of switching from HU 18 pills per week to interferon. Taking both at present. I had my second injection yesterday and no symptoms no flu like etc However during the night l had bad pain in my leg and hip. It felt a little like swimmers cramp. I am seeing my haematologist this week
I am in the process of switching from HU 18 pills per week to interferon. Taking both at present. I had my second injection yesterday and no symptoms no flu like etc However during the night l had bad pain in my leg and hip. It felt a little like swimmers cramp. I am seeing my haematologist this week
Dovme
in
MPN Voice
3 years ago
Interferon Injection before Covid Vaccine Q;
I am booked for my first Covid vaccine next Saturday. I am due my interferon injection on Wednesday. Is it ok to have the interferon injection just before the vaccine injection? Many Thanks x
I am booked for my first Covid vaccine next Saturday. I am due my interferon injection on Wednesday. Is it ok to have the interferon injection just before the vaccine injection? Many Thanks x
Threelions
in
MPN Voice
3 years ago
Shingles and essential thrombocythemia
Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X
Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X
BeckyG88
in
MPN Voice
3 years ago
Is it time for interferon in low-risk patients with polycythaemia vera?
« The use of interferon for the treatment of myeloproliferative neoplasms has a long tradition. Pioneering studies were done by Silver and Gisslinger in the late 1980s. 1 , 2 They showed interferon alfa (then conventional interferon alfa) to be effective in controlling erythrocytosis, thrombocytosis
« The use of interferon for the treatment of myeloproliferative neoplasms has a long tradition. Pioneering studies were done by Silver and Gisslinger in the late 1980s. 1 , 2 They showed interferon alfa (then conventional interferon alfa) to be effective in controlling erythrocytosis, thrombocytosis
Manouche
in
MPN Voice
3 years ago
Teeth
Hi, Has anyone experience or knowledge concerning any impact on teeth for MF patients? One of my molars has just cracked and needs removing. I’m 40yo and started Peg. Interferon 6 months ago after being dx with secondary MF. I’ve never had any dental problems before. Was wondering if I can blame my
Hi, Has anyone experience or knowledge concerning any impact on teeth for MF patients? One of my molars has just cracked and needs removing. I’m 40yo and started Peg. Interferon 6 months ago after being dx with secondary MF. I’ve never had any dental problems before. Was wondering if I can blame my
LucyGeering
in
MPN Voice
3 years ago
PharmaEssentia Initiates Pivotal Trial of Ropeginterferon alfa-2b to Treat Essential Thrombocythemia
« With a diversifying pipeline, the company is evaluating applications for pegylated interferon to address underserved hematologic cancers » https://www.pharmiweb.com/press-release/2021-01-07/pharmaessentia-initiates-pivotal-trial-of-ropeginterferon-alfa-2b-to-treat-essential-thrombocythemia
« With a diversifying pipeline, the company is evaluating applications for pegylated interferon to address underserved hematologic cancers » https://www.pharmiweb.com/press-release/2021-01-07/pharmaessentia-initiates-pivotal-trial-of-ropeginterferon-alfa-2b-to-treat-essential-thrombocythemia
Manouche
in
MPN Voice
3 years ago
Confirmation please
Hi Mazcd Could you please put everyone’s minds at rest and clarify via consultants, if vaccines live or not , can be administered if you are on peg interferon or other medications for MPNs. This would very much be appreciated. Many thanks💐
Hi Mazcd Could you please put everyone’s minds at rest and clarify via consultants, if vaccines live or not , can be administered if you are on peg interferon or other medications for MPNs. This would very much be appreciated. Many thanks💐
Hearingu
in
MPN Voice
3 years ago
If I had known then, how would I have lived my life differently?
Just thinking out loud here... Recently, I had the realization that my MS symptoms (foot drop) began @ 1987 rather than when I was diagnosed in 2009. I did see a neurologist at the time but MS wasn’t even considered. There were 3 treatment options in 2009 (2 interferons and copaxone). There were essentially
Just thinking out loud here... Recently, I had the realization that my MS symptoms (foot drop) began @ 1987 rather than when I was diagnosed in 2009. I did see a neurologist at the time but MS wasn’t even considered. There were 3 treatment options in 2009 (2 interferons and copaxone). There were essentially
erash
in
My MSAA Community
4 years ago
When can we safely discontinue Pegasys in patients with MPN?
« During the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition, the MPN Hub spoke to the Steering Committee Chair, Jean-Jacques Kiladjian, Université de Paris, Paris, FR. We asked, When can we safely discontinue interferon alpha therapy in patients with myeloproliferative neoplasms
« During the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition, the MPN Hub spoke to the Steering Committee Chair, Jean-Jacques Kiladjian, Université de Paris, Paris, FR. We asked, When can we safely discontinue interferon alpha therapy in patients with myeloproliferative neoplasms
Manouche
in
MPN Voice
4 years ago
Does interferon alpha prolong survival and prevent progression in patients with PV?
« During the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition, the MPN Hub spoke to Ghaith Abu-Zeinah, Weill Cornell Medicine, New York, US. We asked, Does interferon alpha prolong survival and prevent progression in patients with polycythemia vera (PV)? » https://mpn-hub.com/
« During the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition, the MPN Hub spoke to Ghaith Abu-Zeinah, Weill Cornell Medicine, New York, US. We asked, Does interferon alpha prolong survival and prevent progression in patients with polycythemia vera (PV)? » https://mpn-hub.com/
Manouche
in
MPN Voice
4 years ago
Sharps Bin
I have a sharps bin for my Interferon needles, it's getting full, so I ring my local surgery to see if they can dispose, NO. Rang the pharmacy, NO They suggested I ring the local council, which I did, they will only pick up when I have 4 sharp bins full, that could take 4 years.. What does everyone
I have a sharps bin for my Interferon needles, it's getting full, so I ring my local surgery to see if they can dispose, NO. Rang the pharmacy, NO They suggested I ring the local council, which I did, they will only pick up when I have 4 sharp bins full, that could take 4 years.. What does everyone
shiftzz
in
MPN Voice
4 years ago
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