My dearest ms family, G'day (hello) good morning welcome to a new week of our adventure, journey along our life with ms. Relapsing-remitting (RRms) in particular for that is what I have and what I live with. Live quite well in reality. I long ago came to terms with my RRms. I accept many things. Very few physical friends, wearing protective underwear when I leave the house. A hot cup of tea must be lukewarm to be able to be drunk. I will spray tea out of my mouth when I go to drink it. My mouth mostly does not seal shut anymore. Thank you Trigeminal Neuralgia surgeries. I accept many frustrating things. I accept them with a shrug of my shoulder and a sigh. I can not and will not fight this condition. I can not win.
WHAT I WILL DO. Is wake up every morning and take my Tecfidera, once I used to get injected every other day with Interferon beta 1 b. I am scared of needles. Not so much anymore but I still dislike them. I will exercise at most every opportunity. I will do everything that I can think of to keep myself on two legs. I am prepared for when I can not. I know what the prognosis for this disease is. BUT, I will do what I can to be an exception, just because I can. If I can that means so can “YOU”. Be an exception. Break the rule. Be something that nobody expects. There is no hard and fast ruleforo this illness. Yes, it is progressive, Yes it is chronic. BUT, to the best of my knowledge, there is nothing written that says that “YOU” have x years then “YOU” are using a cane. Then Y years and “YOU” are using a walker. The list goes on.
We are all declining and that is a fact of our life. The rate in which we decline is up to us. WE make the choice, it is in OUR hands. I decided long ago that I would try to be an exception. When I was first diagnosed (Dx’d) a lot of the people I met have declined. I choose not to be that way and “YOU” do not have to follow them either. “YOU”, can be unique. How about “YOU” decide to be the first woman\man that stopped RRms. Could that be a plan? Stop feeling forlorn and make a plan to do it.
Royce (your ms writer and brother)
go on START
Written by
RoyceNewton
To view profiles and participate in discussions please or .
Hi Royce, I understand when you say "i accept it, I cannot win." but when you say "I will be the first to stop RRMS" i don't get that. Could you help me understand how you can do two opposite things? I really want to get it. Struggling with my own decline but during my first 8 years my decline was invisible. I thought "It won't happen to me." they said i had "benign MS" I thought it was from clean living but now i am living even cleaner (vegetarian, working from home) but getting worse with walking. thanks
Hang in there Lisa, Sorry I meant "YOU" the proverbial "YOU" will be the first one, not me in particular. Hang in there, you may already be dfoing the best for yourself. Hang in there and smile a little, you are doing your best, aren't you?
yes we just go on and on as best we can for we are some great and strong warriors that are going to keep on keeping on ....love and happiness...just laugh and smile ...cry if needed ...
Good reminder that it is perspective and being honest with ourselves on how we look at MS. The difference of living miserably or happy to be alive makes such a difference in how we actually feel on any given day. Thank you again for your insight.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
