My dearest ms family, G'day (hello) good morning welcome to a new week of our adventure, journey along our life with ms. Relapsing-remitting (RRms) in particular for that is what I have and what I live with. Live quite well in reality. I long ago came to terms with my RRms. I accept many things. Very few physical friends, wearing protective underwear when I leave the house. A hot cup of tea must be lukewarm to be able to be drunk. I will spray tea out of my mouth when I go to drink it. My mouth mostly does not seal shut anymore. Thank you Trigeminal Neuralgia surgeries. I accept many frustrating things. I accept them with a shrug of my shoulder and a sigh. I can not and will not fight this condition. I can not win.
WHAT I WILL DO. Is wake up every morning and take my Tecfidera, once I used to get injected every other day with Interferon beta 1 b. I am scared of needles. Not so much anymore but I still dislike them. I will exercise at most every opportunity. I will do everything that I can think of to keep myself on two legs. I am prepared for when I can not. I know what the prognosis for this disease is. BUT, I will do what I can to be an exception, just because I can. If I can that means so can “YOU”. Be an exception. Break the rule. Be something that nobody expects. There is no hard and fast ruleforo this illness. Yes, it is progressive, Yes it is chronic. BUT, to the best of my knowledge, there is nothing written that says that “YOU” have x years then “YOU” are using a cane. Then Y years and “YOU” are using a walker. The list goes on.
We are all declining and that is a fact of our life. The rate in which we decline is up to us. WE make the choice, it is in OUR hands. I decided long ago that I would try to be an exception. When I was first diagnosed (Dx’d) a lot of the people I met have declined. I choose not to be that way and “YOU” do not have to follow them either. “YOU”, can be unique. How about “YOU” decide to be the first woman\man that stopped RRms. Could that be a plan? Stop feeling forlorn and make a plan to do it.
Royce (your ms writer and brother)
go on START
