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AMG 509 personal update
I hope everyone is having a great holiday weekend. AMG 509 is working for others, but not me. My last update was 30 days ago, and the theme was No News is Good News. Since then, back pain and neck pain have evolved to become my constant companions. My oncologist agreed to order scans at 4 weeks instead
I hope everyone is having a great holiday weekend. AMG 509 is working for others, but not me. My last update was 30 days ago, and the theme was No News is Good News. Since then, back pain and neck pain have evolved to become my constant companions. My oncologist agreed to order scans at 4 weeks instead
Philly13
in
Advanced Prostate Cancer
3 years ago
1yr 3 months Sober but still Scared
They tested me and put me in
intensive
care
for most of my time there. In the beginning they thought I had covid and wouldn’t come near me without the hazmat suites on. They couldn’t understand why I was so sick because I wouldn’t be honest with them .
They tested me and put me in
intensive
care
for most of my time there. In the beginning they thought I had covid and wouldn’t come near me without the hazmat suites on. They couldn’t understand why I was so sick because I wouldn’t be honest with them .
Justme1983
in
British Liver Trust
3 years ago
Doctor wants to take away life support, but is there a chance for my relative to recover from her brain hemorrhage?
My close relative got taken into the neurological
intensive
care
unit after I and my family members immediately noticed her hemorrhagic stroke symptoms. The stroke was in the Thalamus. For 12 days she slowly improved.
My close relative got taken into the neurological
intensive
care
unit after I and my family members immediately noticed her hemorrhagic stroke symptoms. The stroke was in the Thalamus. For 12 days she slowly improved.
uuuccc
in
ICUsteps
3 years ago
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Update after a year on vacation
I dont have much to contribute in terms of research and so , but from time to time I update on my situation in hope others can learn from my experience Background: DX April 2018 PSA 23 Gleason 9 Pet CT PSMA SCAN April 20 2018: Bones clear, visceral organs clear ,uptake in prostate escaping the capsule
I dont have much to contribute in terms of research and so , but from time to time I update on my situation in hope others can learn from my experience Background: DX April 2018 PSA 23 Gleason 9 Pet CT PSMA SCAN April 20 2018: Bones clear, visceral organs clear ,uptake in prostate escaping the capsule
dorke
in
Advanced Prostate Cancer
3 years ago
Treatment opinions for my father in India
Hi, I am posting this on behalf of my father. We are currently located in south india. I wanted to see if current treatment option suggested is the right one Timeline: * My father ( 69 yrs ) saw a urologist about 10 weeks ago urinary blockage, pelvic and rectum pain. * Urologist did a psa test
Hi, I am posting this on behalf of my father. We are currently located in south india. I wanted to see if current treatment option suggested is the right one Timeline: * My father ( 69 yrs ) saw a urologist about 10 weeks ago urinary blockage, pelvic and rectum pain. * Urologist did a psa test
meowlicious99
in
Advanced Prostate Cancer
3 years ago
Combating long-term effects of COVID
“Pinpointing exactly how this damage occurs brings us an important step closer to developing treatments that can be administered while patients are still in
intensive
care
.
“Pinpointing exactly how this damage occurs brings us an important step closer to developing treatments that can be administered while patients are still in
intensive
care
.
2greys
in
Lung Conditions Community Forum
3 years ago
Cirrhosis and Movement
My mum was diagnosed last year following significant symptoms (heart attack, ascites & HE) and a period in
intensive
care
. She has been hospitalized several times since, due to her reluctance to give up alcohol.
My mum was diagnosed last year following significant symptoms (heart attack, ascites & HE) and a period in
intensive
care
. She has been hospitalized several times since, due to her reluctance to give up alcohol.
AlexJ91
in
British Liver Trust
3 years ago
Many COVID-19 patients produce immune responses against their body's tissues or organs
These results were compared to a control group of 32 patients who were in
intensive
care
for another reason other than COVID-19. https://medicalxpress.com/news/2021-06-covid-patients-immune-responses-body.html Clinical & Experimental Immunology.
These results were compared to a control group of 32 patients who were in
intensive
care
for another reason other than COVID-19. https://medicalxpress.com/news/2021-06-covid-patients-immune-responses-body.html Clinical & Experimental Immunology.
2greys
in
Lung Conditions Community Forum
3 years ago
Last Legs Keytruda(Pemberolizumab)
How many of my fellow Prostate cancer sufferers have had this drug prescribed. I have been on it for 6months and I dont think it is doing me any good a tall. I am on the point of cancelling treatment tomorrow when I visit my oncologist and just heading straight into palliative care which may include
How many of my fellow Prostate cancer sufferers have had this drug prescribed. I have been on it for 6months and I dont think it is doing me any good a tall. I am on the point of cancelling treatment tomorrow when I visit my oncologist and just heading straight into palliative care which may include
DunandDusted
in
Advanced Prostate Cancer
3 years ago
When to start
Gleason 3+4. I had robotic prostatectomy in 2010 , PSA in 2018 was 1.5. All scans including clinical trial PSMA 18F were clear. IMRT and 4 months Eligard and Casodex. PSA was reported to be less than 0.1. Past three years PSA has risen from 0.03 to 0.05. (.03, .04, .04, .05, .02 and .05) PSA
Gleason 3+4. I had robotic prostatectomy in 2010 , PSA in 2018 was 1.5. All scans including clinical trial PSMA 18F were clear. IMRT and 4 months Eligard and Casodex. PSA was reported to be less than 0.1. Past three years PSA has risen from 0.03 to 0.05. (.03, .04, .04, .05, .02 and .05) PSA
Coupe31
in
Advanced Prostate Cancer
3 years ago
Androgen receptor (AR) heterogeneity ... and therapy resistance
New paper below [1]. Back in 2004, PubMed had the findings of a few studies that looked at PCa androgen receptor [AR] at diagnosis & in hormone refractory prostate cancer (HRPC), as CRPC was then called. At diagnosis - meaning before treatment - the AR was essentially 'wild type'. From a
1995[/
New paper below [1]. Back in 2004, PubMed had the findings of a few studies that looked at PCa androgen receptor [AR] at diagnosis & in hormone refractory prostate cancer (HRPC), as CRPC was then called. At diagnosis - meaning before treatment - the AR was essentially 'wild type'. From a
1995[/
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Is drug treatment the only way to go?
Are my MO's doing the right thing? At 67, both Fox Chase and Moffit oncologists are of the same opinion that I should/can hold off starting any further treatment until doubling time is less than 6-9 months. Original PSA 7.4, Gleason 3+3, surgery 5/2007. Had slight PSA rise and had IMRT 3/2008. PSA still
Are my MO's doing the right thing? At 67, both Fox Chase and Moffit oncologists are of the same opinion that I should/can hold off starting any further treatment until doubling time is less than 6-9 months. Original PSA 7.4, Gleason 3+3, surgery 5/2007. Had slight PSA rise and had IMRT 3/2008. PSA still
mickeypb
in
Advanced Prostate Cancer
3 years ago
Latest PSA 0.019
I was diagnosed last April, 2020 with locally advanced PC. Gleason 8. Stage: T3, N1, M0. Presenting PSA: 93. Had a PSMA/PET: no sign of mets other than three small pelvic LN's. Treatment with ADT: Lupron, Zytiga, Prednisone in June 2020 followed by IMRT to prostate and pelvic nodes. PSA is now 0.019
I was diagnosed last April, 2020 with locally advanced PC. Gleason 8. Stage: T3, N1, M0. Presenting PSA: 93. Had a PSMA/PET: no sign of mets other than three small pelvic LN's. Treatment with ADT: Lupron, Zytiga, Prednisone in June 2020 followed by IMRT to prostate and pelvic nodes. PSA is now 0.019
dexy1234
in
Advanced Prostate Cancer
3 years ago
Am I Crazy???
Let me preface this post by saying that I’m one of those guys who values quality of life over longevity, within reason. I know this stance is very controversial on this forum, and so I will tread lightly. Almost all of you guys are fighting tooth and nail for your last breath, and I respect that.
Let me preface this post by saying that I’m one of those guys who values quality of life over longevity, within reason. I know this stance is very controversial on this forum, and so I will tread lightly. Almost all of you guys are fighting tooth and nail for your last breath, and I respect that.
Murph256
in
Advanced Prostate Cancer
3 years ago
First ten days in hospice
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
WildRose6
in
Advanced Prostate Cancer
3 years ago
Dad in icu with covid 8 weeks. Doctor talking about end of life care
Hi all my dad has been in
intensive
care
for 8 weeks during this time he had bipap for a week then his lung collapsed and he was placed on a ventilator 24 hours later we were called to the hospital as his organs were failing but after being placed on dialysis he got a bit better.
Hi all my dad has been in
intensive
care
for 8 weeks during this time he had bipap for a week then his lung collapsed and he was placed on a ventilator 24 hours later we were called to the hospital as his organs were failing but after being placed on dialysis he got a bit better.
Mrs_blounty
in
ICUsteps
3 years ago
K I S S, yes trying to keep it simple. A Lupron vacation after 2 yrs on & Abiraterone(250mg) & Prednisone 5mg? Yes or no?
Well, discussions with my med oncologist June 3rd did entail the possibility of stopping my Lupron 90 day injections this Sept. Notice I said possibility. 1. I've had two successful CT scans of my abdomen/Pelvis this year(primarily to detect my severe diverticulitis) both scans showed no 'cancer lesion
Well, discussions with my med oncologist June 3rd did entail the possibility of stopping my Lupron 90 day injections this Sept. Notice I said possibility. 1. I've had two successful CT scans of my abdomen/Pelvis this year(primarily to detect my severe diverticulitis) both scans showed no 'cancer lesion
depotdoug
in
Advanced Prostate Cancer
3 years ago
Hubby update, saw Hepatology Registrar
Hubby was very shocked at what she said. Hubby had a CT scan recently, it shows the lymph nodes in his lungs are stable, they are about 12mm in size. His liver is still Decompensated. She told hubby that his condition is very serious. She said that if he does not stop drinking, then he probably has
Hubby was very shocked at what she said. Hubby had a CT scan recently, it shows the lymph nodes in his lungs are stable, they are about 12mm in size. His liver is still Decompensated. She told hubby that his condition is very serious. She said that if he does not stop drinking, then he probably has
mumof3girls
in
British Liver Trust
3 years ago
Useful write by an unknown lady saved in my system long back and forgotten by me!
As an addict of reading materials on health, this article I had saved but forgot it. After joining this group, I deep dived into my computer and found this. Written by a Tamil south Indian lady, few words may be new to a few. I am SHARING, WITH A REQUEST FOR THE READER'S OPINIONS only and not recommending
As an addict of reading materials on health, this article I had saved but forgot it. After joining this group, I deep dived into my computer and found this. Written by a Tamil south Indian lady, few words may be new to a few. I am SHARING, WITH A REQUEST FOR THE READER'S OPINIONS only and not recommending
6054
in
Diabetes India
3 years ago
Please sign this petition
Today, on National ICU Rehabilitation Day, ICUsteps have launched a rehabilitation campaign #RehabIsCritical Campaign partners:
Intensive
care
society , FICM, Chartered Soc of Physiotherapy, British psychological society, Royal College of Speech and language therapists, Royal College of Occupational
Today, on National ICU Rehabilitation Day, ICUsteps have launched a rehabilitation campaign #RehabIsCritical Campaign partners:
Intensive
care
society , FICM, Chartered Soc of Physiotherapy, British psychological society, Royal College of Speech and language therapists, Royal College of Occupational
Rhyl1
Administrator
in
ICUsteps
3 years ago
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