Experiences with

Influenza Vaccine

Hello, everyone. I scheduled my first dose of the COVID vaccine for next Friday. I am very anxious about this because I had an adverse reaction to the flu shot. I had to be allergy tested for the COVID vaccine and I am not allergic to it. That is the good news. I know I need to go into this with a positive

Just had my yearly telephone consultation with my haematologist. My bloods are stable over the past year. Yippee! He's made an appointment for August 2022. He did make some startling claims however: 1. You can get a live shingles vaccine if you are not having treatment. 2. Your reaction to covid vaccination

Hi I’ve just read this article and wondered if anyone had developed PMR shortly after receiving the flu vaccine? Interesting article now that we are having COVID Vaccine. Even though the etiology of PMR remains unknown, a number of infectious agents have been suggested to cause PMR. These include

People in the uk, don't shoot me. Instead, lobby the nhs to cover the Shingrix vaccine which is over 90% effective, and much more effective in older people than Zostavax. Also because it is not a live vaccine it is more appropriate for people on immune suppressing medication. If in the US you can

Just had a call from my GP surgery offering me this vaccine saying that I qualified for this due to my medications. I’ve asked for more information so will await a call from the nurse but wondered if anyone knew anything about it? Not sure I want any more vaccines at the moment!

Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I

Was wondering about this question and planning to ask my CLL and GP docs what they knew. Plus given all the HU posts on antibodies testing/protection against covid (or not) per post covid vaccine taking, has me thinking various vaccine questions. Since doc offices are closed today, I did the “no-no

Many thanks to all who answered my queries about having the shingles vaccine. I had the jab last week with absolutely. NO side effects not even a sore arm !! I know we all different and react differently but hope that my experience helps . Many thanks for all your help and support

CLL and Bladder cancer , past used Ibrutinib, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ?? I suspect it

Hi I’m on 2.5mg prednisolone for PMR and have just received a text from my G.P telling me I am eligible for a Shingles Vaccine. Can anyone tell me if this is safe to have with Prednisolone. Thanks

I have just been offered the Shingles Vaccine and have concerns about having it as it's alive vaccine as I understand people with APS should avoid live vaccines. Has anyone had this vaccine and was there any side effects .

Help all, I have been reading the posts over the past few years, I’m so relieved to have found this support group. My father was diagnosed at 69 with CLL 9 years ago. He is now 78. He has never had treatment so far as his heamatologist said his numbers were not high enough. We live in Australia. He

I recently had my second Astrazeneca vaccination. After the first one, there was no reaction at all, even after the yearly flu jab, I get arm swelling. The second injection was a whole different ball game. The evening of the second: Teeth chattering shivers, flu like aches, weakness that was so bad

“Seroconversion after the seasonal influenza vaccine in patients receiving ibrutinib has been reported to be as low as 7% in 1 study evaluating the standard-dose vaccine and 26% in another in which a proportion of patients received a higher dose. Jan 14, 2021” Apologies for the lengthy post.

Hello, after 2 years of treatment I stopped my Biologic Benepali last April 2021 (after 2 yrs it caused a severe, itchy, neck, chest and face rash that wouldn't go away with Betnovate and Piriton). Later in April, I had a steroid injection and my 2nd Astra Z (no after effects) On 16th June I paid £500

Good Afternoon Ladies - I just wanted to check in if anyone has had the meningitis vaccine and then had an increase in their CA125.

Hi everyone. Hope you are all doing well/better. I have come here with a question. The medications that I am on seem to have weakened my immune system and voila HPV warts have appeared on me and nothing seems to help get rid of them. I consider getting the hpv vaccine (Gardasil) which I have read might

Hi all This is a long shot but I've just been reading about the flu vaccine on here and wondering if my latest symptoms might be down to my first Covid vaccination ( AZ) in the middle of February. I started shoulder, neck stiffness, soreness last summer but ultrasound scan has shown tears in tendons

Good morning everyone. I have now worked my way upto 75mg of levothyroxine after a slow process. My current issue is I feel like the Tin Man who needs oiling. I am really stiff and in pain all over. My left ankle is quite swollen and my left foot bones hurt so much so I have been limping on occasion

I had a flu jab a few months ago and for the first time ever I was told to stop taking methetrexate for 3 weeks after.Had the covid jab about a month ago but wasn't told to stop taking methetrexate, anyone been told to stop taking methetrexate with the covid jab?Thanks in advance people👍👍👍👍👍