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Infliximab
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Stem cell treatment in Germany
Well I must say I don't know what to do, as the 3rd
Infliximab
hasn't mad an ounce of difference to her 6 month flair. We hate watching Jaida in constant pain & I feel weak for not jumping at this treatment.
Well I must say I don't know what to do, as the 3rd
Infliximab
hasn't mad an ounce of difference to her 6 month flair. We hate watching Jaida in constant pain & I feel weak for not jumping at this treatment.
Michja
in
Behçet's UK
11 years ago
Insurance denied Infliximab - $28k bill
I live in the US - I have Aetna for health insurance. We specifically chose the highest plan my husbands employer offers, paying $800 a month (company matches half, so $1600 a month), for lower co-pays, lower deductibles, lower co-insurance. I have an autoimmune disease, called Behcet’s. I have used
I live in the US - I have Aetna for health insurance. We specifically chose the highest plan my husbands employer offers, paying $800 a month (company matches half, so $1600 a month), for lower co-pays, lower deductibles, lower co-insurance. I have an autoimmune disease, called Behcet’s. I have used
Kayhold
in
Behçet's UK
11 years ago
Hi can anyone help i am on methotrexate by injection once a week and i also have infliximab infusions every 8 weeks but nothing is working
I am in contast pain does any one no of any other meds i could try..
I am in contast pain does any one no of any other meds i could try..
katie123
in
NRAS
11 years ago
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My daughter was in hospital, getting out just before Easter. Photo in paper & as usual paper put wrong information to print. ??
Good news is Jaida just had her 3rd
Infliximab
infusion yesterday & today she looks good. After only being at school 7 half days last term, I think Jaida will start half days next week. Little steps, if she does too much her little body will pay for it. I'm so excited for her.
Good news is Jaida just had her 3rd
Infliximab
infusion yesterday & today she looks good. After only being at school 7 half days last term, I think Jaida will start half days next week. Little steps, if she does too much her little body will pay for it. I'm so excited for her.
Michja
in
Behçet's UK
11 years ago
can a skin punch biopsy distinguish between sle and drug induced lupus
after 6 months of a terrible rash the dermatologist finally did a biopsy. the results he said was lupus, probably drug induced due to having
infliximab
infusion for crohn's (crohn's for 18 years). i have had these infusions for 8 years, but in researching lupus i have had sympoms on and off for 15 yrs
after 6 months of a terrible rash the dermatologist finally did a biopsy. the results he said was lupus, probably drug induced due to having
infliximab
infusion for crohn's (crohn's for 18 years). i have had these infusions for 8 years, but in researching lupus i have had sympoms on and off for 15 yrs
willow24
in
LUPUS UK
11 years ago
Behcets and I
After 18 months (the length of time it took to get funding and hospitalised the whole time) i was put on
infliximab
with methotrexate annd i can say i was like a new person it was fantastic. Sadly my husband decided he had had enough and left me.
After 18 months (the length of time it took to get funding and hospitalised the whole time) i was put on
infliximab
with methotrexate annd i can say i was like a new person it was fantastic. Sadly my husband decided he had had enough and left me.
infliximab74
in
Behçet's UK
11 years ago
A break for 4 days
Just over two weeks ago my 10 year old daughter had her first IV
Infliximab
dose. It had been spoken about for 3 months but due to an ongoing flare increased symptoms & an MRI of intestines
Infliximab
was to be started. I had to go for a private walk, so my daughter couldn't see my worrie & tears.
Just over two weeks ago my 10 year old daughter had her first IV
Infliximab
dose. It had been spoken about for 3 months but due to an ongoing flare increased symptoms & an MRI of intestines
Infliximab
was to be started. I had to go for a private walk, so my daughter couldn't see my worrie & tears.
Michja
in
Behçet's UK
11 years ago
How might I feel after Infliximab infusions ?
Im due to start
Infliximab
infusions soon as oral meds have not helped so far. I have had Behcets for 5yrs and symptoms have recently worsened. Does anyone know how I may feel after the infusions ?
Im due to start
Infliximab
infusions soon as oral meds have not helped so far. I have had Behcets for 5yrs and symptoms have recently worsened. Does anyone know how I may feel after the infusions ?
jellybean67
in
Behçet's UK
12 years ago
feeling sick after infliximab
Had my fifth
infliximab
infusion this morning. They put it through in one hour instead of the normal two. However, this evening I am feeling REALLY nauseous, cold and incredibly tired. The tiredness I am used to but have never had this sicky feeling before. Anyone else experienced this?
Had my fifth
infliximab
infusion this morning. They put it through in one hour instead of the normal two. However, this evening I am feeling REALLY nauseous, cold and incredibly tired. The tiredness I am used to but have never had this sicky feeling before. Anyone else experienced this?
Lillibet
in
NRAS
12 years ago
I start my first infliximab in a couple of days. What are the most common side effects?
I go the gym 4 or 5 times a week and I'm worried about the effects of the
infliximab
and the methotrexate. Is there anyone who is currently taking these? What are the most comman side effects?
I go the gym 4 or 5 times a week and I'm worried about the effects of the
infliximab
and the methotrexate. Is there anyone who is currently taking these? What are the most comman side effects?
Pshort69188
in
Behçet's UK
12 years ago
Latest part of my saga
To opt to get
infliximab
asap, or to delay it until I can have the scan and the blood test results. She gave me a steroid injection to help me through for a little while.
To opt to get
infliximab
asap, or to delay it until I can have the scan and the blood test results. She gave me a steroid injection to help me through for a little while.
cathie
in
NRAS
12 years ago
Humira
I've just finished
Infliximab
infusions and now am starting on Humira (Adalimumab). Has anyone else tried this?
I've just finished
Infliximab
infusions and now am starting on Humira (Adalimumab). Has anyone else tried this?
homeschoolmama
in
Behçet's UK
12 years ago
Stable health since 2006...avoiding flare ups...
In that year I went on to
Infliximab
anti-tnf treatment, and also stopped drinking alcohol. I changed my diet and have avoided meat (still eat fish), dairy products (still have cheese from time to time, and ice cream), fatty foods, take away food and microwave meals.
In that year I went on to
Infliximab
anti-tnf treatment, and also stopped drinking alcohol. I changed my diet and have avoided meat (still eat fish), dairy products (still have cheese from time to time, and ice cream), fatty foods, take away food and microwave meals.
GUEVARA
in
Behçet's UK
12 years ago
Long and frustrating road
I'm due
infliximab
in a weeks time, and that has had to be cancelled. I'm in quite a good state at the moment, but I wonder how long it will take to see the new consultant and what will come of that.
I'm due
infliximab
in a weeks time, and that has had to be cancelled. I'm in quite a good state at the moment, but I wonder how long it will take to see the new consultant and what will come of that.
cathie
in
NRAS
12 years ago
Epic battle over change in treatment
I am quite stable on methotrexate in tablet form (yuk) and
infliximab
infusions. Following my queries about a face rash in the sun, she told me she thought I had drug induced lupus and that I was probably in remission so was going to withdraw all my RA meds.
I am quite stable on methotrexate in tablet form (yuk) and
infliximab
infusions. Following my queries about a face rash in the sun, she told me she thought I had drug induced lupus and that I was probably in remission so was going to withdraw all my RA meds.
cathie
in
NRAS
12 years ago
Time to tell my story
Moved to interferon then
infliximab
. During this time I had many addmissions for lengthy periods up to 3mths.
Moved to interferon then
infliximab
. During this time I had many addmissions for lengthy periods up to 3mths.
Steamboat
in
Behçet's UK
12 years ago
Crohn's Disease
Conventional Medicine Taken: Corticosteroid between 40mg to 20mg,
Infliximab
5mg/KG Q6 week, Asacol (Mesalamine) 800 mg TDS, Flagyl (Metronidazole) 400 mg, Folic Acid 5 mg OD, Humira(Adalimumab), Cimzia(Certolizumab) Druing his conventional medication, while taking Corticosteroid course every time
Conventional Medicine Taken: Corticosteroid between 40mg to 20mg,
Infliximab
5mg/KG Q6 week, Asacol (Mesalamine) 800 mg TDS, Flagyl (Metronidazole) 400 mg, Folic Acid 5 mg OD, Humira(Adalimumab), Cimzia(Certolizumab) Druing his conventional medication, while taking Corticosteroid course every time
Crash9393
in
Foggy's "Invisible Illness" Support
12 years ago
Having infliximab inf with chest infection?
I am due to have my 4th
infliximab
infusion on Monday. However, I am off work today with a nasty cough, sore throat and what feels like a chest infection coming on?
I am due to have my 4th
infliximab
infusion on Monday. However, I am off work today with a nasty cough, sore throat and what feels like a chest infection coming on?
Lillibet
in
NRAS
12 years ago
Getting a second opinion on drug induced lupus
So if I had been diagnosed with lupus I would have been excluded from a lot of the biologic treatments - and the one I'm on -
infliximab
- has transformed my life. Apparently the Dundee photobiology unit is about the only one in the UK. They are really thorough and incredibly helpful.
So if I had been diagnosed with lupus I would have been excluded from a lot of the biologic treatments - and the one I'm on -
infliximab
- has transformed my life. Apparently the Dundee photobiology unit is about the only one in the UK. They are really thorough and incredibly helpful.
cathie
in
NRAS
12 years ago
Am I likely to get funding for infliximab?
My consultants (rheumatology and respiratory) have suggested that the last resort would be
infliximab
but due to changes in procedure my PCT are not authorised to issue me the drug as it costs £10,000 a year, but instead they have to apply to the Behcets centre of excellence in London for funding etc
My consultants (rheumatology and respiratory) have suggested that the last resort would be
infliximab
but due to changes in procedure my PCT are not authorised to issue me the drug as it costs £10,000 a year, but instead they have to apply to the Behcets centre of excellence in London for funding etc
Tobygosden
in
Behçet's UK
12 years ago
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