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Experiences with
Infliximab
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Getting a second opinion on drug induced lupus
So if I had been diagnosed with lupus I would have been excluded from a lot of the biologic treatments - and the one I'm on -
infliximab
- has transformed my life. Apparently the Dundee photobiology unit is about the only one in the UK. They are really thorough and incredibly helpful.
So if I had been diagnosed with lupus I would have been excluded from a lot of the biologic treatments - and the one I'm on -
infliximab
- has transformed my life. Apparently the Dundee photobiology unit is about the only one in the UK. They are really thorough and incredibly helpful.
cathie
in
NRAS
12 years ago
Am I likely to get funding for infliximab?
My consultants (rheumatology and respiratory) have suggested that the last resort would be
infliximab
but due to changes in procedure my PCT are not authorised to issue me the drug as it costs £10,000 a year, but instead they have to apply to the Behcets centre of excellence in London for funding etc
My consultants (rheumatology and respiratory) have suggested that the last resort would be
infliximab
but due to changes in procedure my PCT are not authorised to issue me the drug as it costs £10,000 a year, but instead they have to apply to the Behcets centre of excellence in London for funding etc
Tobygosden
in
Behçet's UK
12 years ago
Does anyone else suffer with low platelets, if so do you know why? Mine have been low for 6 weeks..not sure why? maybe the Infliximab ?
snugglebum
in
Behçet's UK
12 years ago
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were do i begin..... ouch could be a start tears another
im down to 10mg a day of pred. they wont increase it as they need to relieve the pressure on my liver before i can start anything like azathioprine or
infliximab
. i go back on the 27th but i just know they are going to fob me off again. im sick of feeling like this cripple and putting so much pressure
im down to 10mg a day of pred. they wont increase it as they need to relieve the pressure on my liver before i can start anything like azathioprine or
infliximab
. i go back on the 27th but i just know they are going to fob me off again. im sick of feeling like this cripple and putting so much pressure
lizzykarma
in
Behçet's UK
12 years ago
Has anyone had experience of drug induced lupus?
She says 'it is possible that the
infliximab
has led to a lupus-like syndrome' which is one of the reasons for taking me off it. I am not convinced - as you probably know. She said 'she has recently had her anti-DNA antibodies tested and these are positive showing a titre of 19.8. Her ANA is 1.160.
She says 'it is possible that the
infliximab
has led to a lupus-like syndrome' which is one of the reasons for taking me off it. I am not convinced - as you probably know. She said 'she has recently had her anti-DNA antibodies tested and these are positive showing a titre of 19.8. Her ANA is 1.160.
cathie
in
NRAS
12 years ago
NRAS answer to my question about remission.
We looked for studies showing people coming off of
infliximab
and whether they successfully stayed in remission. We also found one study showing whether or not the
infliximab
was as successful a second time round if they had to go back onto it.
We looked for studies showing people coming off of
infliximab
and whether they successfully stayed in remission. We also found one study showing whether or not the
infliximab
was as successful a second time round if they had to go back onto it.
cathie
in
NRAS
12 years ago
Does anyone have experience of remission?
So she wants to withdraw my meds (methoxtrate +
infliximab
). Additional reasons are that I have fatty liver disease and a reaction to sunlight (which has since stopped even in the bright autumn sunshine).
So she wants to withdraw my meds (methoxtrate +
infliximab
). Additional reasons are that I have fatty liver disease and a reaction to sunlight (which has since stopped even in the bright autumn sunshine).
cathie
in
NRAS
12 years ago
Rituximab or Infliximab?
I have looked at the alternative
Infliximab
and would love to hear from anyone who's on either medication. Also does anyone know if influx iamb causes weight gain? Thanks
I have looked at the alternative
Infliximab
and would love to hear from anyone who's on either medication. Also does anyone know if influx iamb causes weight gain? Thanks
Smartiepants
in
NRAS
12 years ago
Living with Behcet's: Medication
Following a reply to my whinging and moaning about horrendous sweating it has been suggested that one of the 'big girl's' drugs -
infliximab
- might help.
Following a reply to my whinging and moaning about horrendous sweating it has been suggested that one of the 'big girl's' drugs -
infliximab
- might help.
devonshiredumpling
in
Behçet's UK
12 years ago
Hi. I have Takayasu's Arteritis and over the last 18 months my disease activity has progressed despite a recent course of cyclophosphamide.
There is now talk of me starting
infliximab
. I'm interested to hear what people's experiences are with this drug - good or bad! Thanks. Jane
There is now talk of me starting
infliximab
. I'm interested to hear what people's experiences are with this drug - good or bad! Thanks. Jane
JElsom
in
Vasculitis UK
12 years ago
A relative of mine has just started anti-tnf treatment (infliximab) - is anyone else undertaking this treatment? Any issues or problems?
LL40
in
Behçet's UK
12 years ago
Wondering if anyone has info about AIH and infliximab (a treatment for autoimmune arthritis)?
mokumalef
in
British Liver Trust
12 years ago
Methotrexate, infliximab, Citalopram and high blood pressure?
Have recently been diagnosed with high BP on top of everything else and was wondering if anyone on Methotrexate or
Infliximab
had similar problems? Thought it might be related. Also on citalopram anti-depressant.
Have recently been diagnosed with high BP on top of everything else and was wondering if anyone on Methotrexate or
Infliximab
had similar problems? Thought it might be related. Also on citalopram anti-depressant.
GUEVARA
in
Behçet's UK
12 years ago
A BRIEF HISTORY OF RA AND ITS TREATMENT
A relatively new group of drugs are the anti-TNF drugs – adlimumab, etanercept and
infliximab
and the B-cell drug rituximab which are known as biologics. Biologics are currently only being used in people who have not responded to other disease modifying drugs.
A relatively new group of drugs are the anti-TNF drugs – adlimumab, etanercept and
infliximab
and the B-cell drug rituximab which are known as biologics. Biologics are currently only being used in people who have not responded to other disease modifying drugs.
mike7748
in
Arthritis Foundation of South Africa
12 years ago
A good treatment experience
Sun is shining here in Edinburgh after a horrendous wet day yesterday. i had my
infliximab
infusion this morning. I try to get an early morning appointment and arrived very early because the RA wards are now in a spanking new building which I'd never been to before.
Sun is shining here in Edinburgh after a horrendous wet day yesterday. i had my
infliximab
infusion this morning. I try to get an early morning appointment and arrived very early because the RA wards are now in a spanking new building which I'd never been to before.
cathie
in
NRAS
12 years ago
Australian sufferer
Have tried
Infliximab
, Colchicine, Cyclosporine.and Thalidomide. I'm not tolerating the Thalidomide very well (3 - 4 capsules a week) and probably will go on to something else in the next couple of months.
Have tried
Infliximab
, Colchicine, Cyclosporine.and Thalidomide. I'm not tolerating the Thalidomide very well (3 - 4 capsules a week) and probably will go on to something else in the next couple of months.
lesleyg
in
Behçet's UK
12 years ago
A good experience and another much less so!
And this late phone call was to tell me that maybe I have lupus (the doctor has never seen me) and that I should come off
infliximab
. He had the impression that the light sensitivity was acute and recent. But I've had three episodes since 2004 and was just wanting to talk about how to manage it.
And this late phone call was to tell me that maybe I have lupus (the doctor has never seen me) and that I should come off
infliximab
. He had the impression that the light sensitivity was acute and recent. But I've had three episodes since 2004 and was just wanting to talk about how to manage it.
cathie
in
NRAS
12 years ago
Do you have any experience of Infliximab?
Hidden
in
Behçet's UK
13 years ago
need help on how to prevent migraine's after taking methotrexate injection
hello, is there anyone else taking methotrexate injections and is suffering from severe migraine's 3-4 days after, im also taking
infliximab
, i have never felt better, apart from these migraine's...thanks
hello, is there anyone else taking methotrexate injections and is suffering from severe migraine's 3-4 days after, im also taking
infliximab
, i have never felt better, apart from these migraine's...thanks
debj68
in
NRAS
12 years ago
My Living Rheum :)
Its 2003, I am put forward for a trial of
Infliximab
(Remicade). The results of the infusions were literally amazing; I had my life back and with it I was able to do many of the things I believed I might never do again.
Its 2003, I am put forward for a trial of
Infliximab
(Remicade). The results of the infusions were literally amazing; I had my life back and with it I was able to do many of the things I believed I might never do again.
Hidden
in
NRAS
14 years ago
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