Well, I went to see the rheumy nurse about the disputed change in treatment for my RA. I had expected to see the consultant and then realised that was my mistake. Nice woman, I'm glad to have seen her because at least its an accessible point of contact. She took my bloods.
However, she couldnt intervene in the disagreement I have with the consultant and I'm now to get an appointment with a different one - everyone speaks very warmly of her. I'm due infliximab in a weeks time, and that has had to be cancelled. I'm in quite a good state at the moment, but I wonder how long it will take to see the new consultant and what will come of that. It feels as though there's a lot still to play for but I'm very pleased that I have the lupus diagnosis clearly ruled out. I do get the impression that this new consultant is more considered and careful - I actually caught a glimpse of her - but I'm not a patient patient.