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What TSH level is too low on NDT + low sodium
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Juliet_22
in
Thyroid UK
11 months ago
Collagen powder and increased stiffness?
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
1rocketman
in
Cure Parkinson's
5 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
5 months ago
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Personal Sleep PR
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
WideBody
in
Restless Legs Syndrome
10 months ago
DBS??
I’m seriously considering DBS. Would love some feedback from people who have had it done.
I’m seriously considering DBS. Would love some feedback from people who have had it done.
CostaVal
in
Cure Parkinson's
6 months ago
addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
6 months ago
DBS. Did it improve your life as much as you hoped?
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
gingerj
in
Cure Parkinson's
6 months ago
I’m scheduled to have DBS surgery February 29 - if you have had DBS, is there anything you wish you‘d known beforehand?
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
Megafone
in
Cure Parkinson's
6 months ago
Kinder , Gentler and harmless Alternative of DBS
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Farooqji
in
Cure Parkinson's
6 months ago
Night sweats
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Birdlady2021
in
MPN Voice
11 months ago
Apologies -Loperamide Liquid Oral solution Discontinued
My post should have said Loperamide Liquid Oral Solution has been discontinued. I have tried taking half of an instant melt Imodium which wasn’t very successful so I will try to get tablets (as opposed to capsules ) and break up! Not sure why the liquid has been discontinued!
My post should have said Loperamide Liquid Oral Solution has been discontinued. I have tried taking half of an instant melt Imodium which wasn’t very successful so I will try to get tablets (as opposed to capsules ) and break up! Not sure why the liquid has been discontinued!
Happyretired
in
Pelvic Radiation Disease Association
1 year ago
Next NoSilverBullet webinar on 12th of February: Dr Raul Martinez on “The role of Focused Ultrasound in the management of Parkinson's”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
Michel0220
in
Cure Parkinson's
6 months ago
iron deficiency
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Birdlady2021
in
MPN Voice
11 months ago
Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
DADICIDAD
in
Advanced Prostate Cancer
11 months ago
Just need to talk.
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
AndreaBabyC
in
Kidney Disease
11 months ago
Has anyone been using TUDCA or Restore Gold? Have you seen slowing or halting of progression of symptoms?
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
kathy775
in
Cure Parkinson's
1 year ago
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
nednedned
in
Cure Parkinson's
7 months ago
Newly diagnosed; so scared, confused, and depressed
Hello. I'm so glad to have found this supportive and helpful community! I apologize for the long post. I first noticed when I received routine bloodwork results a year ago that my eGFR was flagged as low at 80. Since I didn't know what an eGFR was, I started researching and was alarmed to read that
Hello. I'm so glad to have found this supportive and helpful community! I apologize for the long post. I first noticed when I received routine bloodwork results a year ago that my eGFR was flagged as low at 80. Since I didn't know what an eGFR was, I started researching and was alarmed to read that
GracieMom
in
Kidney Disease
10 months ago
IBS D
Hi, I’ve suffered with mixed ibs for 7 years but having a really bad flare up last few months of ibs D. So I’ve been taking Imodium for 2 days a week while I’m at work, which has helped to slow it down. But about 5 days after I’ve had the Imodium I have explosive diarrhoea! Is that because the Imodium
Hi, I’ve suffered with mixed ibs for 7 years but having a really bad flare up last few months of ibs D. So I’ve been taking Imodium for 2 days a week while I’m at work, which has helped to slow it down. But about 5 days after I’ve had the Imodium I have explosive diarrhoea! Is that because the Imodium
Yoga82
in
IBS Network
1 year ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
1 year ago
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