Experiences with

Immunosuppressants

At the moment I am only taking selenium, I may start another course of Intravenous steroids followed up with immunosuppressants (another hospital suggested this). I am stuck in two minds on what to do. Thank you in advance. Rizo

Got to the end of the first full week on my new steroid dose, 8mg (down from 8.5mg), and definitely looking encouraging. Have some increased bladder incontinence, but minor by my standards. Much better at this point a week in than I expected to be, in terms of how things usually go wrong neurologically

Hi All, I am starting azathioprine on Thursday and have been suspended from work while I am on them as they are immunosuppressants and I work in a lab.

If you have not done so already, please have a discussion with your transplant team re the affects of immunosuppressants on the gut microbiome. It is not a question of "if" but "when" changes will occur.

So I'm wondering and concerned about taking 2 strong immunosuppressants. I would love to hear what others think about this and how it has helped or hindered you.

Vitamin D deficiency linked to increased risk for renal disease in patients with SLE November 9, 2017 Michelle A. Petri SAN DIEGO — Low levels of vitamin D were associated with elevated rates of end-stage renal disease among patients with systemic lupus erythematosus, according to findings

Hi This is my first posting on this site. I was diagnosed with hashimoto's in 2012 and have been taking levothyroxine since then. Am currently taking 125mcg daily and still have lots of symptoms of hypothyroidism, fatigue, hair loss, difficulty losing weight, brain fog, poor memory to name a few.

I have hyper mobility, mild asthma and connective tissue disease (probable lupus) I was put on a immunosuppressant back in July. They are strong so I said I didn't want my dose increased when I saw the nurse a couple of weeks ago. My fatigue reduced. I started to feel well again apart from when I come

I've been having a flare up since June so am on high dose steroids and immunosuppressants. It's still not under control yet. How I look at it is that drugs are trying to suppress my immune system and putting a flu virus into me now could make me poorly and poor body won't know what to do.

This is specific to NEuromyelitis Optica but the overlap with MS and the odd fact that immunosuppressive DMTs are protective makes me want to "watch this space" Plus if you are on an immunosuppressive DMT, I wonder how effective your immune response to a vaccine is? Is there reduced efficacy? https:/

The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults: Executive Summary Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta

Managing Infections for Lupus Patients - Highlights from Dr. Curran's Presentation On August 9, 2012, the LSI hosted an educational teleconference “Managing and Preventing Infections for Lupus Patients” presented by Dr. James Curran. The event included a presentation by Dr. Curran followed by

I was diagnosed with RA in February 8, 2017. This is the most painful experience that I’ve ever been through. October 2016; after two weeks of training for employees to run new machine, I did a lot of heavy lifting at work which I normally don’t do at work. I felt pain on my right shoulder but I told

I have chronic sarcoidosis in the lungs and am permanently breathless if I move around. I take prednisone and mycophenalate. The mycophenalate switches off my immune system. L had a flu and pneumonia vaccines last week , but they also have me down for needing the shingles one. I thought I wasn't allowed

Hi, Wondering if anyone is on mycophenalate (cellcept) and has had problems with insomnia from it and if so what helps please? I'm just upping my dosage (still only on half of what I will be on in a month) but really can't sleep. I'm also on prednisolone so that might be affecting it too. I hate taking

Lupus Survival Much Improved, But Plateaued September 25, 2017 | Lupus By Gregory M. Weiss, M.D. [i]Survival rates for patients with systemic lupus erythematosus have plateaued since the middle of the 1990s after a period of major improvement starting in the 1950s. [/i] It has been thought

What I'm not clear about is whether having these antibodies provides complete protection against infection with chicken pox when also on immunosuppressants?

Anyway I am now on fortnightly visits to the post tx clinic and steroids have been lowered but still waiting for the immunosuppressants to be lowered so I can be relieved of this horrible symptom.

Given the prevalence of gut issues reported here, often (but not always) in those taking levothyroxine, I hope the existence of this paper helps. At least it is something to quote! Very interesting to know how adding liothyronine (T3) - or liothyronine-only - would be assessed. [i]World J Gastroenterol

I was diagnosed with Neuro Behçets, treated for the symptoms with gabapentin, metho prednislone, immunosuppressants and Diamox Been pretty much left to it by the hospital with no monitoring and as far as they know I am still on full strength meds I stopped the immunosuppressant after a series of illnesses