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Image-guided radiation therapy (IGRT)
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Expectations
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
Eadgbe
in
Advanced Prostate Cancer
4 months ago
Timing and reasons for Thyroid blood tests
Recommended by numerous research papers that thyroid testing should be in the morning and [u]before[/u] taking daily levothyroxine TSH has a circadian rhythm and is highest in early morning and lowest in afternoon Links to a few research papers and articles https://www.ncbi.nlm.nih.gov/pmc
Recommended by numerous research papers that thyroid testing should be in the morning and [u]before[/u] taking daily levothyroxine TSH has a circadian rhythm and is highest in early morning and lowest in afternoon Links to a few research papers and articles https://www.ncbi.nlm.nih.gov/pmc
SlowDragon
Administrator
in
Thyroid UK
4 months ago
picantaChicken
Hi I’m new, been following the treads of other people’s issues for some time and realise I too need help to as the Gps don’t give much help or advise. Makes me feel like I’m wasting their time . Still that aside I have just read a thread about HRT and Levothyroxine. I’ve been on Kevo thyroxine for
Hi I’m new, been following the treads of other people’s issues for some time and realise I too need help to as the Gps don’t give much help or advise. Makes me feel like I’m wasting their time . Still that aside I have just read a thread about HRT and Levothyroxine. I’ve been on Kevo thyroxine for
PicantaChicken
in
Thyroid UK
4 months ago
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What does it mean?
I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just got diagnosed - Gleason score 8 - and after a new scan they've concluded there's two mets - one in the pelvic lymph node and one in the seminal
I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just got diagnosed - Gleason score 8 - and after a new scan they've concluded there's two mets - one in the pelvic lymph node and one in the seminal
TerribleAtInternet
in
Advanced Prostate Cancer
4 months ago
Pain post SBRT
I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started SBRT yesterday. My side effects thus far were all expected and I was prepared for them. Last night had severe back pain (8 out of 10) which lasted
I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started SBRT yesterday. My side effects thus far were all expected and I was prepared for them. Last night had severe back pain (8 out of 10) which lasted
Eggdoc
in
Advanced Prostate Cancer
4 months ago
Aphasia
My husband is one month out of his tumor being 100% removed. His aphasia seems to be worse then it was 2 weeks out from surgery. He just started speech therapy this week. Is the decline normal?
My husband is one month out of his tumor being 100% removed. His aphasia seems to be worse then it was 2 weeks out from surgery. He just started speech therapy this week. Is the decline normal?
Nylo
in
Glioblastoma Support
9 months ago
Levo and hrt
hello has anyone experienced problems by taking hrt gel patches with Levo , I’ve been feeling ill for ages now light headed , weak legs tired and very down , just trying to rule things out to feel normal again as I can’t go or do anything without feeling like I’m going to pass out Doctors don’t know
hello has anyone experienced problems by taking hrt gel patches with Levo , I’ve been feeling ill for ages now light headed , weak legs tired and very down , just trying to rule things out to feel normal again as I can’t go or do anything without feeling like I’m going to pass out Doctors don’t know
Prosecco1997
in
Thyroid UK
4 months ago
ADT IS DONE. NEXT?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
rfgh20
in
Advanced Prostate Cancer
4 months ago
Help boosting thyroid without medication?
Hello all I have posted before as my thyroid function is poor but always comes back in range (my TSH never rises even with low levels) so no chance of medication on the NHS (other than statins for high cholesterol which I refuse). I did some recent tests TSH 1.95 (0.27-4.2) T4 14.6 (12-22) T3
Hello all I have posted before as my thyroid function is poor but always comes back in range (my TSH never rises even with low levels) so no chance of medication on the NHS (other than statins for high cholesterol which I refuse). I did some recent tests TSH 1.95 (0.27-4.2) T4 14.6 (12-22) T3
karlek
in
Thyroid UK
4 months ago
Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Replace or reorganize neurons
Can someone explain :Does the parkinson's glove therapy assume we don't have a loss of Dopa. Neurons but they just need to be reorganized. Via vibration Where gene therapy assume we have a loss of Neurons that need to be replaced ? Which is it, replace or reorganize?
Can someone explain :Does the parkinson's glove therapy assume we don't have a loss of Dopa. Neurons but they just need to be reorganized. Via vibration Where gene therapy assume we have a loss of Neurons that need to be replaced ? Which is it, replace or reorganize?
bigl62
in
Cure Parkinson's
9 months ago
Constipation is a known issue with the Orgovyx
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
NewPotatoCaboose
in
Advanced Prostate Cancer
4 months ago
How do you know if you're developing cysts?
I've just been diagnosed with PCOS with a low SHBG, <12 follicles in both ovaries, normal FAI and ovaries are normal size and volume.I just had a few questions... What does the amount of follicles mean? Are this mini cysts? How do you know if a cyst is growing? Is painful and is there any way of reducing
I've just been diagnosed with PCOS with a low SHBG, <12 follicles in both ovaries, normal FAI and ovaries are normal size and volume.I just had a few questions... What does the amount of follicles mean? Are this mini cysts? How do you know if a cyst is growing? Is painful and is there any way of reducing
hani0902
in
PCOS UK (Verity)
4 months ago
Does this mark the beginning of castration resistance?
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Agh-2022
in
Advanced Prostate Cancer
4 months ago
Diet for ADT
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
Worked_the_World
in
Prostate Cancer Network
4 months ago
Diet for duration of ADT?
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
Worked_the_World
in
Advanced Prostate Cancer
4 months ago
Are endocrinologists of any help after ADT?
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
Derf4223
in
Advanced Prostate Cancer
4 months ago
Mirena Coil Fatigue
Hi all, just looking for some advice or if you have had similar experience. I got diagnosed with acute stage 5 endometriosis in January, and the gynocologist fitted me with the mirena coil. I was told if this did t work I’d have to start HRT for 6-12 months, as you can imagine this was a lot to take
Hi all, just looking for some advice or if you have had similar experience. I got diagnosed with acute stage 5 endometriosis in January, and the gynocologist fitted me with the mirena coil. I was told if this did t work I’d have to start HRT for 6-12 months, as you can imagine this was a lot to take
ChocClem53
in
Endometriosis UK
4 months ago
Targeted Gene Therapy for Symptom Relief in Parkinson’s Disease
Very early, still a looooong way out, and results were only in animal models, but something to keep an eye on. https://www.brainpost.co/weekly-brainpost/2023/11/7/targeted-gene-therapy-for-symptom-relief-in-parkinsons-disease
Very early, still a looooong way out, and results were only in animal models, but something to keep an eye on. https://www.brainpost.co/weekly-brainpost/2023/11/7/targeted-gene-therapy-for-symptom-relief-in-parkinsons-disease
Neurosmith
in
Cure Parkinson's
9 months ago
night sweats - without sweating, any solutions?
hi everyone, I had to come off HRT in December. It hasn’t been as bad as I thought. Except…I get the most awful hot episodes through the night. They wake me up as I feel I’m being cooked, no sweating though. I’m in the cycle of throwing covers off then waking again freezing, and like many of us my normal
hi everyone, I had to come off HRT in December. It hasn’t been as bad as I thought. Except…I get the most awful hot episodes through the night. They wake me up as I feel I’m being cooked, no sweating though. I’m in the cycle of throwing covers off then waking again freezing, and like many of us my normal
Slowrunner1208
in
Thyroid UK
4 months ago
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