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Experiences with
Implantable cardioverter defibrillator (ICD)
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struggling with Adenomyosis
Long post sorry in advance, I’m just struggling today and need some advice. Can anyone recommend an adenomyosis specialist? My consultant was a BSGE endo specialist so I had high hopes but since I was diagnosed in November after my laparoscopy he discharged me. He’s told me my adeno isn’t responsible
Long post sorry in advance, I’m just struggling today and need some advice. Can anyone recommend an adenomyosis specialist? My consultant was a BSGE endo specialist so I had high hopes but since I was diagnosed in November after my laparoscopy he discharged me. He’s told me my adeno isn’t responsible
Dartmouth93
in
Endometriosis UK
2 years ago
mirena coil threads
I have the mirena coil inserted at the end of July for the first time (approx 3 weeks ago) at first all was fine and I could feel 2 threads quite high up. I am currently on day 14 of a very light period (lighter but longer than usual) and I can only feel one thread which is quite low down. The other
I have the mirena coil inserted at the end of July for the first time (approx 3 weeks ago) at first all was fine and I could feel 2 threads quite high up. I am currently on day 14 of a very light period (lighter but longer than usual) and I can only feel one thread which is quite low down. The other
Hetty177
in
BASHH
2 years ago
Mirena and pain!
Ended up in A and E this morning with severe stabbing pain in my uterus/ ovaries and colon. I was diaognoised with endometriosis back in february this year via a laparoscopy. I had my left ovary removed and my uterus unstuck from my colon. The surgeon said he had to leave some tissue near my colon
Ended up in A and E this morning with severe stabbing pain in my uterus/ ovaries and colon. I was diaognoised with endometriosis back in february this year via a laparoscopy. I had my left ovary removed and my uterus unstuck from my colon. The surgeon said he had to leave some tissue near my colon
Bubble41
in
Endometriosis UK
2 years ago
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Ideas for not raising left arm while sleeping after crt-d implant
Hi all, I’ve had a upgrade from
icd
to crt-d yesterday, anyone got tips for sleeping at night as I remember this was a problem 8 years ago when I had first
icd
fitted ( i wake up with arm behind my head Obviously I’ve had arm in a sling for the first 24hrs and wondering if anyone has some tips Thanks
Hi all, I’ve had a upgrade from
icd
to crt-d yesterday, anyone got tips for sleeping at night as I remember this was a problem 8 years ago when I had first
icd
fitted ( i wake up with arm behind my head Obviously I’ve had arm in a sling for the first 24hrs and wondering if anyone has some tips Thanks
Grak
in
British Heart Foundation
2 years ago
Having mirena coil fitted
Hello! I’m 23, I’ve had endo for 10 years now. I had a mirena coil fitted when I was 18 but it was during my laparoscopy so I obviously wasn’t aware of it being inserted. Some complications and changes, it ended up ‘falling’ down. Then tried the implant and then the pill. Due to me having my symptoms
Hello! I’m 23, I’ve had endo for 10 years now. I had a mirena coil fitted when I was 18 but it was during my laparoscopy so I obviously wasn’t aware of it being inserted. Some complications and changes, it ended up ‘falling’ down. Then tried the implant and then the pill. Due to me having my symptoms
AshF1234
in
Endometriosis UK
2 years ago
How to say I’ve got an ICD in my chest in different languages.
I’ll flash my card from the hospital but I was curious what other countries do for ICDs? I’m going over to Malaga for a few days so in Spanish I need to say (airport scanners etc); Tengo un DCI en mi pecho Which other countries have you had to explain your situation? What did you say?
I’ll flash my card from the hospital but I was curious what other countries do for ICDs? I’m going over to Malaga for a few days so in Spanish I need to say (airport scanners etc); Tengo un DCI en mi pecho Which other countries have you had to explain your situation? What did you say?
BenThom-Wood
in
British Heart Foundation
2 years ago
looking for advice/support - newly diagnosed and struggling.
I was taken to theatre in April for lap surgery (they only drained my cysts and sorted an intestinal adhesion) and following this was diagnosed with endometriosis. I wasn’t aware of the condition until this happened. Following this I have felt so isolated and have had no support. I saw a gynae 9 weeks
I was taken to theatre in April for lap surgery (they only drained my cysts and sorted an intestinal adhesion) and following this was diagnosed with endometriosis. I wasn’t aware of the condition until this happened. Following this I have felt so isolated and have had no support. I saw a gynae 9 weeks
GemmaK27
in
Endometriosis UK
2 years ago
Cardiology Reply from Royal Devon and Exeter
I have waited 16 months for Angiogram and 5 months for Cardiac CT and
ICD
implant. Now been told no idea how long I will have to wait, could be months. No time scale whatsoever.
I have waited 16 months for Angiogram and 5 months for Cardiac CT and
ICD
implant. Now been told no idea how long I will have to wait, could be months. No time scale whatsoever.
Comp1
in
British Heart Foundation
2 years ago
Battery change in my s.icd
Can't believe it's 5 yrs since I had my
icd
fitted down to last 15 percent on my battery I'm having new battery fitted in next 4 weeks 😳 😐 🙃
Can't believe it's 5 yrs since I had my
icd
fitted down to last 15 percent on my battery I'm having new battery fitted in next 4 weeks 😳 😐 🙃
Wodney1966
in
British Heart Foundation
2 years ago
Boston scientific monitor flashing yellow waves when trying to do upload. HELP
Help guys please just tried to do an upload of my
ICD
via my Boston scientific monitor and its flashing yellow waves and doesn't seem to be connecting with my device anyone have any clue whats going on anxiety is now through the roof
Help guys please just tried to do an upload of my
ICD
via my Boston scientific monitor and its flashing yellow waves and doesn't seem to be connecting with my device anyone have any clue whats going on anxiety is now through the roof
Dan33ynwa
in
British Heart Foundation
2 years ago
mirena coil
hi, i har my laparoscopy in april was diagnosed with endo then got the mirena coil. I havr had the copper coil since i was 15 with two changes. I know the mirena is hormonal. I keep getting brown/ black discharge so im wondering when this will end?
hi, i har my laparoscopy in april was diagnosed with endo then got the mirena coil. I havr had the copper coil since i was 15 with two changes. I know the mirena is hormonal. I keep getting brown/ black discharge so im wondering when this will end?
MelRoe
in
Endometriosis UK
2 years ago
Ongoing problems 8 months since surgery
I noticed a horrible, recurring shoulder/chest pain a couple of years ago which I initially put down to a possible injury. I realised something was wrong when it started getting worse, affecting my breathing and making me not want to talk when the pain was at it's worst. I called the GP who put me on
I noticed a horrible, recurring shoulder/chest pain a couple of years ago which I initially put down to a possible injury. I realised something was wrong when it started getting worse, affecting my breathing and making me not want to talk when the pain was at it's worst. I called the GP who put me on
Ljames01
in
Endometriosis UK
2 years ago
IUD after 1st lap advice
Hi all, Apologies if it is too much info, but just want advice about my IUD. I had my first lap nearly two months ago and had an IUD put in whilst I was under. All went fine and had bleeding afterwards, as expected, and everything seemed like it all was healed and settled down afterwards, however
Hi all, Apologies if it is too much info, but just want advice about my IUD. I had my first lap nearly two months ago and had an IUD put in whilst I was under. All went fine and had bleeding afterwards, as expected, and everything seemed like it all was healed and settled down afterwards, however
Chester29
in
Endometriosis UK
2 years ago
I just bought this PEMF therapy mat (pulsed electromagnetic frequency) after learning it treats PD
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PDWarrior1900
in
Cure Parkinson's
2 years ago
Merina coil and menopause
I had a merina coil fitted 2 years ago because of fibroids. After a few months my periods settled and and have only had 3 lights periods in the past year. How will I know if it’s menopause or the coil causing my few periods I’m 51.
I had a merina coil fitted 2 years ago because of fibroids. After a few months my periods settled and and have only had 3 lights periods in the past year. How will I know if it’s menopause or the coil causing my few periods I’m 51.
Toddyboy12
in
Menopause and Perimenopause Support
2 years ago
New diagnosis how to cope? General advice
Hi everyone, I have only just been diagnosed with endometresiosis last week after having to pay private for a laporoscopy due to the long nhs list and debilitating pain. Plus the usual painful heavy periods normalised when I used to see my GP. I had severe pelvic pain about 6 weeks ago which had made
Hi everyone, I have only just been diagnosed with endometresiosis last week after having to pay private for a laporoscopy due to the long nhs list and debilitating pain. Plus the usual painful heavy periods normalised when I used to see my GP. I had severe pelvic pain about 6 weeks ago which had made
Sabrinacolada
in
Endometriosis UK
2 years ago
ICD
I would love to hear
ICD
experiences good or bad. It's been recommended but I haven not committed yet.
I would love to hear
ICD
experiences good or bad. It's been recommended but I haven not committed yet.
doloresdraper
in
Arrhythmia Alliance
2 years ago
coil in heart
Hi all , Has anyone had a coil fitted in their heart ? i have a fissure and awaiting the results of CT and MRI as to treatment plan . I’ve googled and search and very little info about this procedure. But what would be really useful is how long people have taken to recover after. Trying to plan my
Hi all , Has anyone had a coil fitted in their heart ? i have a fissure and awaiting the results of CT and MRI as to treatment plan . I’ve googled and search and very little info about this procedure. But what would be really useful is how long people have taken to recover after. Trying to plan my
Skeets
in
British Heart Foundation
2 years ago
birth control
I’ve been having horrible mood swings on the birth control pill. My doctor thinks I could possibly be sensitive to estrogen. I’ve never had a baby so an IUD is not an option for me. Im looking at the Depo shot or the nexplanon implant. However she did say depo can make my depression worse. Does anyone
I’ve been having horrible mood swings on the birth control pill. My doctor thinks I could possibly be sensitive to estrogen. I’ve never had a baby so an IUD is not an option for me. Im looking at the Depo shot or the nexplanon implant. However she did say depo can make my depression worse. Does anyone
Cheshire21
in
Anxiety and Depression Support
2 years ago
mirena coil help
Hi, I have been diagnosed with stage 4 endo through a lap last year. I was fine until a couple of months ago and now the pain is back for 2 solid weeks out of every month. My surgeon is reluctant to perform a hysterectomy because he said i have too much scaring and the risks are extremely high.
Hi, I have been diagnosed with stage 4 endo through a lap last year. I was fine until a couple of months ago and now the pain is back for 2 solid weeks out of every month. My surgeon is reluctant to perform a hysterectomy because he said i have too much scaring and the risks are extremely high.
Sapphire2021
in
Endometriosis UK
2 years ago
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