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Ibrutinib
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No longer a treatment virgin
Anyway I'm in the
Ibrutinib
/Venetoclax trial at M D Anderson now. I'm grateful for my long W&W it gave me a chance to finish working and for better drugs to come down the pipeline. john
Anyway I'm in the
Ibrutinib
/Venetoclax trial at M D Anderson now. I'm grateful for my long W&W it gave me a chance to finish working and for better drugs to come down the pipeline. john
johnl
in
CLL Support
6 years ago
Stop ibrutinib
Tuve que suspender
Ibrutinib
durante 15 dias. Y gran desilucion: aumente mis globulos blancos de 9.300 que tenia hace 1 mes a 19.900 y me aumentaron algunos ganglios. Ahora volvi a
Ibrutinib
y tengo miedo de que no funcione. O es que tatda en volver a funcionar?
Tuve que suspender
Ibrutinib
durante 15 dias. Y gran desilucion: aumente mis globulos blancos de 9.300 que tenia hace 1 mes a 19.900 y me aumentaron algunos ganglios. Ahora volvi a
Ibrutinib
y tengo miedo de que no funcione. O es que tatda en volver a funcionar?
Bixilon
in
CLL Support
6 years ago
Alternatives to Ibrutinib ???
Some look very promising as superior alternatives to
ibrutinib
. This is good news.
Some look very promising as superior alternatives to
ibrutinib
. This is good news.
Indolent
in
CLL Support
6 years ago
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FLAIR Trial 2018 update
To find this out they want to compare: fludarabine, cyclophosphamide and rituximab (FCR)
ibrutinib
and rituximab (This arm is of the trial is now closed)
ibrutinib
and venetoclax
ibrutinib
The aims of this trial are to find out: which treatment is the best for people with CLL that hasn't been treated
To find this out they want to compare: fludarabine, cyclophosphamide and rituximab (FCR)
ibrutinib
and rituximab (This arm is of the trial is now closed)
ibrutinib
and venetoclax
ibrutinib
The aims of this trial are to find out: which treatment is the best for people with CLL that hasn't been treated
Myrddin
in
CLL Support
6 years ago
Zanubrutinib / BGB-3111
My choices are
Ibrutinib
or try to get into Clinical Trial with BGB-3111/ Zanubrutinib, new BTKi drug from China. Does anybody have any experience with this drug? Thanks for sharing. Vlad11
My choices are
Ibrutinib
or try to get into Clinical Trial with BGB-3111/ Zanubrutinib, new BTKi drug from China. Does anybody have any experience with this drug? Thanks for sharing. Vlad11
VLAD11
in
CLL Support
6 years ago
Effect of Ibrutinib on Hormones
I am noticing hormonal imbalance in body after use of Ibnutrib for ard 1 year or so, in terms of some times higher testrones and after 4-5 days higher Estrogens. Has any one else felt same, as my Haemotologist says complete side effect of this medicine , fairly new, is not fully understood yet.
I am noticing hormonal imbalance in body after use of Ibnutrib for ard 1 year or so, in terms of some times higher testrones and after 4-5 days higher Estrogens. Has any one else felt same, as my Haemotologist says complete side effect of this medicine , fairly new, is not fully understood yet.
Anilbhard
in
CLL Support
6 years ago
CLL Treatment Sequencing by Dr. Susan O'Brien
- In the setting of using frontline
ibrutinib
, if the patient is intolerant to
ibrutinib
, then we can easily switch over to idelalisib plus rituximab because these were FDA approved to be used in combination. We could also switch to venetoclax.
- In the setting of using frontline
ibrutinib
, if the patient is intolerant to
ibrutinib
, then we can easily switch over to idelalisib plus rituximab because these were FDA approved to be used in combination. We could also switch to venetoclax.
lankisterguy
Volunteer
in
CLL Support
6 years ago
Ibrutinib in September
Hi ,after just under 2 years remission after FCR , I am now starting
ibrutinib
in September.Just wondered how long people on here have been taking this?Thanks Martin
Hi ,after just under 2 years remission after FCR , I am now starting
ibrutinib
in September.Just wondered how long people on here have been taking this?Thanks Martin
Stacky66
in
CLL Support
6 years ago
Ibrutinib vs FCR: does order of therapy matter?
The rest are given FCR, then, anyone who relapses after being given FCR may be given
ibrutinib
. Do we know for sure that such a strategy is worse then moving everyone to
ibrutinib
first line? It may well be that
ibrutinib
can rescue effectively patients who relapse on other treatments.
The rest are given FCR, then, anyone who relapses after being given FCR may be given
ibrutinib
. Do we know for sure that such a strategy is worse then moving everyone to
ibrutinib
first line? It may well be that
ibrutinib
can rescue effectively patients who relapse on other treatments.
AdrianUK
in
CLL Support
6 years ago
Venetoclax and mouth sores
I look forward to hearing from you Eliot Finkelstein Dx with CLL May 2013 Failed FCR 2016 Stopped
Ibrutinib
Dec 2016 till 2/28/17 due to: Amyopatic Dermatomyositis started Jan 2017 dx Aug 2017 Venetoclax & Obinutuzumab -Started Aug 2017
I look forward to hearing from you Eliot Finkelstein Dx with CLL May 2013 Failed FCR 2016 Stopped
Ibrutinib
Dec 2016 till 2/28/17 due to: Amyopatic Dermatomyositis started Jan 2017 dx Aug 2017 Venetoclax & Obinutuzumab -Started Aug 2017
Eliotf
in
CLL Support
6 years ago
Now being prescribed Ibrutinib
Hi all Good news, saw my consultant today and he's going to start me on
Ibrutinib
at the beginning is September. I'm having a bone marrow biopsy prior. Can't tell you how relieved I am as I have been so I'll and still not to good. So all being well the futures looking better than it was.
Hi all Good news, saw my consultant today and he's going to start me on
Ibrutinib
at the beginning is September. I'm having a bone marrow biopsy prior. Can't tell you how relieved I am as I have been so I'll and still not to good. So all being well the futures looking better than it was.
Mick491
in
CLL Support
6 years ago
Ibrutinib and Venetoclax
Hey Guys, How long do the novel drugs like
Ibrutinib
and Venetoclax work for, for CLL?
Hey Guys, How long do the novel drugs like
Ibrutinib
and Venetoclax work for, for CLL?
J_88
in
CLL Support
6 years ago
Doc said time to start Ibrutinib
On my way back from Mayo visit hemoglobin dropped to 10 and platelets dropped to 116. Doc said time to start, I'm sick of the fight! I've spent over $20,000 on natural docs and supplements and sick of all the diets they've put me on. Nothing has worked for me. I want a normal life again with some
On my way back from Mayo visit hemoglobin dropped to 10 and platelets dropped to 116. Doc said time to start, I'm sick of the fight! I've spent over $20,000 on natural docs and supplements and sick of all the diets they've put me on. Nothing has worked for me. I want a normal life again with some
aremmick
in
CLL Support
6 years ago
Do I go on a trial or not
they can offer me the first or they have said there is a trial which consists of 1.fcr 2.
ibrutinib
3.
ibrutinib
+venentoclax Apparently a computer decides.how do you decide which way to go,I'm a bit confused.any advice would be most appreciated Many thanks in advance dan ..
they can offer me the first or they have said there is a trial which consists of 1.fcr 2.
ibrutinib
3.
ibrutinib
+venentoclax Apparently a computer decides.how do you decide which way to go,I'm a bit confused.any advice would be most appreciated Many thanks in advance dan ..
d3dan
in
CLL Support
6 years ago
Infection, hospitalisation and future treatment with Ibrutinib or trial drug.
Im making an appointment for clinic to discus treatment for CLL and the consultant stated i am now eligble for
Ibrutinib
. I am also considering the trial of
Ibrutinib
and venetoclax. However, i need to fully recover. But things are looking good after a very rough ride.
Im making an appointment for clinic to discus treatment for CLL and the consultant stated i am now eligble for
Ibrutinib
. I am also considering the trial of
Ibrutinib
and venetoclax. However, i need to fully recover. But things are looking good after a very rough ride.
Mick491
in
CLL Support
6 years ago
Ibrutinib - Side effects
I've now had the results of the echo scan and heart monitor and it appears I have an extra heart beat, which is very common apparently so the flutter is exacerbated by the
ibrutinib
.
I've now had the results of the echo scan and heart monitor and it appears I have an extra heart beat, which is very common apparently so the flutter is exacerbated by the
ibrutinib
.
Shira7
in
CLL Support
6 years ago
Treatment....or not ???
My question is : Is it worth stating treatment ( her doctor wants to start her on
ibrutinib
) and risk side effects that will disturb her way of life more than the esthetic side ?
My question is : Is it worth stating treatment ( her doctor wants to start her on
ibrutinib
) and risk side effects that will disturb her way of life more than the esthetic side ?
Sergi
in
CLL Support
6 years ago
Feeling really lost and scared.
He had 6 cycles of BR and then
Ibrutinib
before the transformation and has had 6 of R-mini chop during which his disease progressed and finally the Rituximab plus gemcitabine and Oxaliplatin since the biopsy confirming a CD30 transformation.
He had 6 cycles of BR and then
Ibrutinib
before the transformation and has had 6 of R-mini chop during which his disease progressed and finally the Rituximab plus gemcitabine and Oxaliplatin since the biopsy confirming a CD30 transformation.
krisskross
in
CLL Support
6 years ago
Does Ibrutinib cause issues with type two diabetes
As the title depicts,I just started
Ibrutinib
on Thursday and being a type two diabetic I'm always checking my bloods to keep them around the 7 mark, however since Thursday they have fluctuated between 12 and 18ish which is high for me,I plan on contacting my support nurse tomorrow but would be grateful
As the title depicts,I just started
Ibrutinib
on Thursday and being a type two diabetic I'm always checking my bloods to keep them around the 7 mark, however since Thursday they have fluctuated between 12 and 18ish which is high for me,I plan on contacting my support nurse tomorrow but would be grateful
saintjohn
in
CLL Support
6 years ago
Melanoma
We ha e to protect against sun exposure. https://www.sciencedaily.com/releases/2018/08/180809112425.htm Dennis, 71,
Ibrutinib
We ha e to protect against sun exposure. https://www.sciencedaily.com/releases/2018/08/180809112425.htm Dennis, 71,
Ibrutinib
Fant1924
in
CLL Support
6 years ago
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