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Sjögren’s syndrome
I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
favour6
in
LUPUS UK
2 years ago
Decision time. Input welcome
Saw my MO yesterday. I need to make a decision by next week on how to proceed. My personal life is imploding and all I see there is having to sell my house and move to... someplace -- long story, but everything I've tried has come up short. BTW, I live by myself with no close friends and only a very
Saw my MO yesterday. I need to make a decision by next week on how to proceed. My personal life is imploding and all I see there is having to sell my house and move to... someplace -- long story, but everything I've tried has come up short. BTW, I live by myself with no close friends and only a very
Miccoman
in
Advanced Prostate Cancer
2 years ago
What else is available?
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
27-359
in
My Ovacome
2 years ago
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Drooling/Botox/dry mouth
Drooling: I had Botox injections in my salivary glands to reduce drooling. I now have extreme dry mouth (cotton mouth). Supposedly takes months to wear off. The cotton mouth is more bothersome than the drooling. Has anyone experience this?
Drooling: I had Botox injections in my salivary glands to reduce drooling. I now have extreme dry mouth (cotton mouth). Supposedly takes months to wear off. The cotton mouth is more bothersome than the drooling. Has anyone experience this?
Gcf51
in
Cure Parkinson's
2 years ago
Still in shock,
Hello, the above says it all. Last October my husband of 30+ years went out to play table tennis and never came back. Long story short, an undiagnosed heart condition. Then 4 days after his funeral I was told the long Covid I thought I was suffering from was in fact advanced and incurable lung cancer
Hello, the above says it all. Last October my husband of 30+ years went out to play table tennis and never came back. Long story short, an undiagnosed heart condition. Then 4 days after his funeral I was told the long Covid I thought I was suffering from was in fact advanced and incurable lung cancer
Red00
in
The Roy Castle Lung Cancer Foundation
2 years ago
Happy World Lupus Day
Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too. Hope your all as well as possible and
Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too. Hope your all as well as possible and
misty14
in
LUPUS UK
2 years ago
Fatigue after cataract surgery.
I had my first cataract operated on on 14th April. On 5mgs pred for PMR. (Diagnosed September 2020.) Since then I've been very tired, with "heavy" legs, but no other PMR symptoms. As my sight is now very "imbalanced" until I get my new specs, is it likely that the fatigue is caused by my brain
I had my first cataract operated on on 14th April. On 5mgs pred for PMR. (Diagnosed September 2020.) Since then I've been very tired, with "heavy" legs, but no other PMR symptoms. As my sight is now very "imbalanced" until I get my new specs, is it likely that the fatigue is caused by my brain
Grannymiaow
in
PMRGCAuk
2 years ago
First taper
New PMR diagnosis here, learning so much from this group. Thank you all. I’ve been taking Prednisone at 25mg for almost 4 weeks now and will be starting a taper soon. I started on 15, with welcomed but only partial symptom relief (? maybe 50%, lasting 1/2 the time to next dose). Dose was then increased
New PMR diagnosis here, learning so much from this group. Thank you all. I’ve been taking Prednisone at 25mg for almost 4 weeks now and will be starting a taper soon. I started on 15, with welcomed but only partial symptom relief (? maybe 50%, lasting 1/2 the time to next dose). Dose was then increased
Egunon
in
PMRGCAuk
2 years ago
Emergency eye problems - urgent local services
https://primaryeyecare.co.uk/services/urgent-eyecare-service/ While looking stuff up for a post about eye problems to day I found this urgent care service for eye problems. "What is the Urgent Eyecare Service? The Urgent Eyecare Service (UES) provides urgent assessment, treatment or referral for sudden
https://primaryeyecare.co.uk/services/urgent-eyecare-service/ While looking stuff up for a post about eye problems to day I found this urgent care service for eye problems. "What is the Urgent Eyecare Service? The Urgent Eyecare Service (UES) provides urgent assessment, treatment or referral for sudden
PMRpro
Ambassador
in
PMRGCAuk
2 years ago
Bupropion and RLS
Hi! Can I just ask if anyone has been on zyban (bupropion) and it’s helped with their RLS symptoms? And also can you take ropinirol while taking zyban?
Hi! Can I just ask if anyone has been on zyban (bupropion) and it’s helped with their RLS symptoms? And also can you take ropinirol while taking zyban?
jaime77
in
Restless Legs Syndrome
2 years ago
Nicotinamide Treatment
A month ago some of you (and me) started to take nicotinamide mononucleotide to halt glaucoma progression and maybe improve vision, as was reported in a trial in Australia. Has anyone as yet seen any difference or improvement? I am not sure if my situation is better but it does feel different with some
A month ago some of you (and me) started to take nicotinamide mononucleotide to halt glaucoma progression and maybe improve vision, as was reported in a trial in Australia. Has anyone as yet seen any difference or improvement? I am not sure if my situation is better but it does feel different with some
blackdog76
in
Glaucoma UK
2 years ago
The PSP-CBD Ice Cream Challenge Day 6
The PSP-CBD Ice Cream Challenge 2022 Day 6 - Sugar Shack - BANG BANG BABY Base - softened French Vanilla ice cream Log Shack - Chocolate Finger biscuits (licked clean) Maple Creme Maple Trees Graham Wafer roof with marshmallow snow Milk chocolate poles, fire pot and chocolate finger biscuits logs
The PSP-CBD Ice Cream Challenge 2022 Day 6 - Sugar Shack - BANG BANG BABY Base - softened French Vanilla ice cream Log Shack - Chocolate Finger biscuits (licked clean) Maple Creme Maple Trees Graham Wafer roof with marshmallow snow Milk chocolate poles, fire pot and chocolate finger biscuits logs
daddyt
in
PSP Association
2 years ago
Help
Wondering if anyone can give me any information. My 21 year old daughter with AIH has had a transplant 5 years ago through negligence which I won't go into it's a real long story. Seeing as she was misdiagnosed the need for transplant was an emergency which in turn caused mental health issues. We have
Wondering if anyone can give me any information. My 21 year old daughter with AIH has had a transplant 5 years ago through negligence which I won't go into it's a real long story. Seeing as she was misdiagnosed the need for transplant was an emergency which in turn caused mental health issues. We have
Worriedparent33
in
British Liver Trust
2 years ago
A bit of drama on Besremi
(there's a sort of survey question near the end) I've been on it for 3 months now. From starting dose of 50mcg for HU transition my dose last week was ~110. -That evening I had high sensitivity to light, looking at the overhead kitchen light was nearly like looking at the sun. Even the white sink
(there's a sort of survey question near the end) I've been on it for 3 months now. From starting dose of 50mcg for HU transition my dose last week was ~110. -That evening I had high sensitivity to light, looking at the overhead kitchen light was nearly like looking at the sun. Even the white sink
EPguy
in
MPN Voice
2 years ago
Glioblastoma Caregiver
My wife, 77, and I learned on March 30, 2022 that she has gliobllastoma. We have no idea what we are facing. Life expectancy? Surgery? Medications? Palliative care? We wish to learn and receive, as well as offer, support to others also facing this disease.
My wife, 77, and I learned on March 30, 2022 that she has gliobllastoma. We have no idea what we are facing. Life expectancy? Surgery? Medications? Palliative care? We wish to learn and receive, as well as offer, support to others also facing this disease.
Piper16
in
Glioblastoma Support
2 years ago
EMDR
Has anyone tried EMDR Therapy for PTSD? Would like to hear your experiences and how it was in the beginning, did you get better?
Has anyone tried EMDR Therapy for PTSD? Would like to hear your experiences and how it was in the beginning, did you get better?
Ali500
in
Anxiety and Depression Support
2 years ago
Selenium Metabolism and Biosynthesis of Selenoproteins in the Human Body
A surprisingly readable and potentially helpful review of selenium in humans. (So far, I have only given it a cursory read.) Yes - some bits are difficult but the narrative seems to make sense even if we have to pass over some detail. For those of us in the UK, it is a shame that they did
A surprisingly readable and potentially helpful review of selenium in humans. (So far, I have only given it a cursory read.) Yes - some bits are difficult but the narrative seems to make sense even if we have to pass over some detail. For those of us in the UK, it is a shame that they did
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Mathematical analysis of T4/T3 dosing
This upcoming paper is joined with ours in the same edition of Frontiers.
[u]However, do not judge it on a personal level. [/u]It simply shows, against different situations, a general
trend which either supports or does not the use of combined therapy. It indicates optimum dosing
This upcoming paper is joined with ours in the same edition of Frontiers.
[u]However, do not judge it on a personal level. [/u]It simply shows, against different situations, a general
trend which either supports or does not the use of combined therapy. It indicates optimum dosing
diogenes
in
Thyroid UK
2 years ago
Teva and dry mouth
I’ve written here before about the dry mouth I’ve had since just before Christmas. And about all the many tests and scans I’ve had in that time, all of which drew a blank. Then in March / April I picked up some more Levothyroxine packets from the pharmacist. On that occasion I was served by a particular
I’ve written here before about the dry mouth I’ve had since just before Christmas. And about all the many tests and scans I’ve had in that time, all of which drew a blank. Then in March / April I picked up some more Levothyroxine packets from the pharmacist. On that occasion I was served by a particular
HowNowWhatNow
in
Thyroid UK
2 years ago
Relapsing Polychondritis
Methotrexate and/or Prednisolone side effects? Anyone experiencing tremors with either of these drugs? Unusual hand tremor started in right hand after 3 or 4 weeks of 5mg Prednisolone. When the drug was stopped the tremor stopped. When the drug was re-started for increased symptoms, at a higher dose
Methotrexate and/or Prednisolone side effects? Anyone experiencing tremors with either of these drugs? Unusual hand tremor started in right hand after 3 or 4 weeks of 5mg Prednisolone. When the drug was stopped the tremor stopped. When the drug was re-started for increased symptoms, at a higher dose
NorfolkWife
in
PMRGCAuk
2 years ago
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