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what next?
I was diagnosed with PMR five years ago and my gp kept me on Prednisolone for two years which resulted in a catalogue of side effects including glaucoma and cataracts. My diagnosis was confirmed as RA shortly after. I have been taking methotrexate successfully since. However my condition has worsened
I was diagnosed with PMR five years ago and my gp kept me on Prednisolone for two years which resulted in a catalogue of side effects including glaucoma and cataracts. My diagnosis was confirmed as RA shortly after. I have been taking methotrexate successfully since. However my condition has worsened
Pange63
in
NRAS
6 months ago
Recent Glaucoma diagnose
Recently diagnosed with bilateral chronic simple glaucoma, which I have presumed is open angle? Not had much information and also not one person has told me that I need to inform the dvla!After reading posts on here I'm so worried that I may lose my driving licence. I've completed the form and waiting
Recently diagnosed with bilateral chronic simple glaucoma, which I have presumed is open angle? Not had much information and also not one person has told me that I need to inform the dvla!After reading posts on here I'm so worried that I may lose my driving licence. I've completed the form and waiting
Lucky200
in
Glaucoma UK
6 months ago
bowel obstruction
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
Anjidav
in
Bowel Disease Support
10 months ago
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Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
10 months ago
Flare up or just Fatigue?
I have tapered to 7.5 mg this month using Dorset Lady's table, but in the last few days I have pains around the hips which is only relieved by sitting down. I wake up around 4.30 a.m. and so have several spells of faitigue/deep sleeps in the early evening. When I am out I lean against counters
I have tapered to 7.5 mg this month using Dorset Lady's table, but in the last few days I have pains around the hips which is only relieved by sitting down. I wake up around 4.30 a.m. and so have several spells of faitigue/deep sleeps in the early evening. When I am out I lean against counters
Motida
in
PMRGCAuk
6 months ago
Dry eye medication
For several years since eye surgery I have been prescribed eye lubricants. The prescriptions always say Thealoz Duo Gel yet I have always been given the Thealoz Duo UD even when I questioned this several times. Recently I was given the Gel form and nothing else. Of course this is excellent at night
For several years since eye surgery I have been prescribed eye lubricants. The prescriptions always say Thealoz Duo Gel yet I have always been given the Thealoz Duo UD even when I questioned this several times. Recently I was given the Gel form and nothing else. Of course this is excellent at night
muddledme
in
Glaucoma UK
6 months ago
Starting Pegasys soon
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
IsabelleHo
in
MPN Voice
6 months ago
ThyroidDisease and Cataracts
Has anyone had any experience with developing cataracts and is there a potential link to thyroid disease? My ophthalmologist has told me my thyroid eye disease makes me a poor surgical candidate.and getting a second opinion is pretty much out of the question. I am 61 and an active sewer and the prospect
Has anyone had any experience with developing cataracts and is there a potential link to thyroid disease? My ophthalmologist has told me my thyroid eye disease makes me a poor surgical candidate.and getting a second opinion is pretty much out of the question. I am 61 and an active sewer and the prospect
Vernonwendy
in
Thyroid UK
6 months ago
ubiquinone vs ubiquinol
I have just realised my Coq10 I’ve been taking for three months is ubiquinone form. I just thought I was taking ubiquinol 😫 Been doing 300mg twice a day. I’m worried I’ve missed a trick now. I’ve ordered some ubiquinol now but I’m starting downreg in about three weeks. Thoughts please lovely people
I have just realised my Coq10 I’ve been taking for three months is ubiquinone form. I just thought I was taking ubiquinol 😫 Been doing 300mg twice a day. I’m worried I’ve missed a trick now. I’ve ordered some ubiquinol now but I’m starting downreg in about three weeks. Thoughts please lovely people
Cuppppatea
in
Fertility Network UK
6 months ago
Something I forgot to mention
I wrote about Toprol (Metoprol) a few minutes ago. I forgot to mention that I also take Flecainide, 100 mg. twice a day.
I wrote about Toprol (Metoprol) a few minutes ago. I forgot to mention that I also take Flecainide, 100 mg. twice a day.
Pommerania78
in
AF Association
6 months ago
Palliative care survey for less survivable cancer patients & loved ones (UK)
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
10 months ago
cryo-ablation update
hi everyone, Thought I would give an update. I had the cryo-ablation on the 13th of May. i felt fairly uncomfortable over the first few weeks, but thanks to all the support and info on here, I have got through it without panic. the main thing is pacing myself and not overdoing it. Get enough
hi everyone, Thought I would give an update. I had the cryo-ablation on the 13th of May. i felt fairly uncomfortable over the first few weeks, but thanks to all the support and info on here, I have got through it without panic. the main thing is pacing myself and not overdoing it. Get enough
Tilly1957
in
Atrial Fibrillation Support
12 days ago
Trabeculectomy at 18
Hi I had a Trabeculectomy back in July and sadly my vision has never been the same. The first few weeks my surgeon was surprised because everything went well, my vision was the same and my eye pressure dropped to a good level (13) from what it was (57). But afterwards my eye pressure dropped too low
Hi I had a Trabeculectomy back in July and sadly my vision has never been the same. The first few weeks my surgeon was surprised because everything went well, my vision was the same and my eye pressure dropped to a good level (13) from what it was (57). But afterwards my eye pressure dropped too low
Madara786
in
Glaucoma UK
6 months ago
Whose advice should I follow?
I had a trabeculectomy 18 months ago. Last July I went to a Moorfields virtual clinic for monitoring. I received a letter from the doctor a few days later to say that my visual field on the operated eye was gradually worsening & that I would be seen at the Consultant led clinic four months later. I
I had a trabeculectomy 18 months ago. Last July I went to a Moorfields virtual clinic for monitoring. I received a letter from the doctor a few days later to say that my visual field on the operated eye was gradually worsening & that I would be seen at the Consultant led clinic four months later. I
YoungontheOutside
in
Glaucoma UK
6 months ago
SIBO!!! But fearing taking antibiotics, especially Neomicyn… I’ve heard of terrible side effects ( tinnitus and hearing loss).
Hello, here is my doctor's report: ''The report of your hydrogen and methane breath test is positive, both for small intestinal bacterial overgrowth as well as excessive methane-producing bacteria in the large bowel. It may be sensible to consider treatment with non-absorbable antibiotics. If you would
Hello, here is my doctor's report: ''The report of your hydrogen and methane breath test is positive, both for small intestinal bacterial overgrowth as well as excessive methane-producing bacteria in the large bowel. It may be sensible to consider treatment with non-absorbable antibiotics. If you would
Clara62
in
IBS Network
6 months ago
pluvicto?
any feed back about the befits of Pluvicto? Is it a miracle drug? Andy Taylor from Duran Duran cured after being palliative care? Many people sending me articles about it. Right now approved for castrate resistant pCA?
any feed back about the befits of Pluvicto? Is it a miracle drug? Andy Taylor from Duran Duran cured after being palliative care? Many people sending me articles about it. Right now approved for castrate resistant pCA?
Nowhereman9
in
Advanced Prostate Cancer
10 months ago
EYE HEALTH: RELATIONSHIP OF PMR, PRED & MTX TO GLAUCOMA, CATARACTS, & DRY EYE
Hello everyone. Vacillated on a title for this post. I'll bet I covered it all. I've been on my hard PMR journey for 4+ years. Currently on 4mg Pred daily & 20mg MTX weekly. PMR pain is under control. My eyes have wept for the past 2 yrs; at times, non stop. Eyedrops are the common advice from my Optometrist
Hello everyone. Vacillated on a title for this post. I'll bet I covered it all. I've been on my hard PMR journey for 4+ years. Currently on 4mg Pred daily & 20mg MTX weekly. PMR pain is under control. My eyes have wept for the past 2 yrs; at times, non stop. Eyedrops are the common advice from my Optometrist
DrRon
in
PMRGCAuk
6 months ago
Corneal transplant
Hi all. A very happy Christmas to you all. I apologise if this is not an acceptable question on here as it is not related to RA but it is a great platform to air the question. I am desparately worried about my brother who needs a corneal transplant. Has anyone on here had one or knows of anyone who has
Hi all. A very happy Christmas to you all. I apologise if this is not an acceptable question on here as it is not related to RA but it is a great platform to air the question. I am desparately worried about my brother who needs a corneal transplant. Has anyone on here had one or knows of anyone who has
Sheila_G
in
NRAS
6 months ago
GCA or Dry eye pain
Yesterday was the first day both my eyes hurt. I have been having dry eyes and drops are not doing too much. The pain in both eyes feel like pressure or strain pain. I am worried not knowing if it’s just dry eyes or my GCA acting up. Currently taking 10 mg if prednisone since the last GCA temple pain
Yesterday was the first day both my eyes hurt. I have been having dry eyes and drops are not doing too much. The pain in both eyes feel like pressure or strain pain. I am worried not knowing if it’s just dry eyes or my GCA acting up. Currently taking 10 mg if prednisone since the last GCA temple pain
Plains
in
PMRGCAuk
7 months ago
German tara
HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to
HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to
Germantara
in
Lung Conditions Community Forum
7 months ago
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