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Experiences with
Hydroxycarbamide
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Anagrelide and herpes
I was on hydroxyurea and had a bad case of herpes on my face. Now into about 5th week of anagrelide and now bad herpes on face. Taking aciclovir tabs but seems to be taking a while to clear. Has anyone else experienced herpes as a result of taking anagrelide and if so, any advice? Tinkerbell13
I was on hydroxyurea and had a bad case of herpes on my face. Now into about 5th week of anagrelide and now bad herpes on face. Taking aciclovir tabs but seems to be taking a while to clear. Has anyone else experienced herpes as a result of taking anagrelide and if so, any advice? Tinkerbell13
Tinkerbell13
in
MPN Voice
10 years ago
Today I posted my answers ,to the question are about the drug ruxolitinib .I hope this goes some way to help make this drug more available .
I started my treatment taking
hYdroxycarbamide
,sadly this medication did not suit me ,we should think seriously .about the implications these facts arise,those of you in Scotland in particular .you should at least be given choice in you treatment,and medication,let me know your thoughts ,,,, Violet
I started my treatment taking
hYdroxycarbamide
,sadly this medication did not suit me ,we should think seriously .about the implications these facts arise,those of you in Scotland in particular .you should at least be given choice in you treatment,and medication,let me know your thoughts ,,,, Violet
Twinkly
in
MPN Voice
10 years ago
Hydroxycarbamide or Ruxolitinib am I right in thinking HU helps platelet levels but Ruxolitinib actually prevents fibrosis of bone marrow ?
HU or Rixolitinib ? am I right in thinking HU helps platelet levels but Ruxolitinib actually prevents or at least slows fibrosis of bone marrow ? Therefore if Ruxolitinib is prescribed wouldn't that help the core issue thereby helping platelets to normalise ? ... NHS only prescribe HU as first treatment
HU or Rixolitinib ? am I right in thinking HU helps platelet levels but Ruxolitinib actually prevents or at least slows fibrosis of bone marrow ? Therefore if Ruxolitinib is prescribed wouldn't that help the core issue thereby helping platelets to normalise ? ... NHS only prescribe HU as first treatment
Armanimick
in
MPN Voice
10 years ago
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Diagnosed with erythrocytosis, jak2+, is this pv?
This is my first post here and I am very happy to have found this community. I'm a 34 year old male who needs to quit smoking... I was recently told that I have the jak2 v617f mutation and I will be starting hydroxyurea in the nextfew days. My RBC is 6.85, HGB 20, and HCT is 62.2 even though I have had
This is my first post here and I am very happy to have found this community. I'm a 34 year old male who needs to quit smoking... I was recently told that I have the jak2 v617f mutation and I will be starting hydroxyurea in the nextfew days. My RBC is 6.85, HGB 20, and HCT is 62.2 even though I have had
TimVA
in
MPN Voice
10 years ago
MF Treatments
Dr said if this persists then it would sway him towards a trial of treatment and suggests we talk about
hydroxycarbamide
when we visit in two weeks....can anyone help with blood count translation. ? Some sites infer this is still relatively low...
Dr said if this persists then it would sway him towards a trial of treatment and suggests we talk about
hydroxycarbamide
when we visit in two weeks....can anyone help with blood count translation. ? Some sites infer this is still relatively low...
Armanimick
in
MPN Voice
10 years ago
Hi, I have et and on hydroxycarbamide . Had urine infection for 2 wks. Is there any antibiotics you can't take with these tabs? Thanks all
soomoo
in
MPN Voice
10 years ago
Worried about HU dosage
I have ET and am on
Hydroxycarbamide
- 1000 mg per day for 5 days and 1500 mg per day for 2 days. I've been to the hospital today and my count was down again, to 280 from 370 six weeks ago.
I have ET and am on
Hydroxycarbamide
- 1000 mg per day for 5 days and 1500 mg per day for 2 days. I've been to the hospital today and my count was down again, to 280 from 370 six weeks ago.
lizzziep
in
MPN Voice
10 years ago
Hi, does the inside of anyone else's mouth peel?
I'm 19, i have ET and take
Hydroxycarbamide
.. It might be down to anything like a change of diet i guess but for the last 2 weeks the inside of my mouth has been peeling and my fingernails keep snapping off! It's probably nothing :)
I'm 19, i have ET and take
Hydroxycarbamide
.. It might be down to anything like a change of diet i guess but for the last 2 weeks the inside of my mouth has been peeling and my fingernails keep snapping off! It's probably nothing :)
Ffionllewelyn
in
MPN Voice
10 years ago
hydroxycarbamide side effects
I have been switched from interferon to
hydroxycarbamide
...after 1 week on 500mg a day i felt much brighter within myself...until i went to my haemotologist!my platelets had shot up!now i'm on 1g a day and having some strange side effects....migraines, upset stomach - feel like i am losing weight!
I have been switched from interferon to
hydroxycarbamide
...after 1 week on 500mg a day i felt much brighter within myself...until i went to my haemotologist!my platelets had shot up!now i'm on 1g a day and having some strange side effects....migraines, upset stomach - feel like i am losing weight!
noodles26
in
MPN Voice
10 years ago
Is there any problem with coming into contact with chickenpox if you have PRV and are on Hydroxycarbamide
liarose
in
MPN Voice
10 years ago
I suffer from really dry eyes. My optician says that my tear film volume is very low and breaks up quickly.
I have had E.T. for 9 years and have been on
hydroxycarbamide
for over 8 years. Just wondered if anyone else who has a MPD and/or is on hydroxy suffers from the same condition.
I have had E.T. for 9 years and have been on
hydroxycarbamide
for over 8 years. Just wondered if anyone else who has a MPD and/or is on hydroxy suffers from the same condition.
mol56
in
MPN Voice
11 years ago
Has anyone else had problems swallowing the Hydroxycarbamide tablets? Been on them for 8 years and only just experienced this.
After checking with the Haem dept on News Years Eve, I have been cutting the tablets in half and emptying the contents into a large glass of water. Although I was told it was ok to do this, I am rather apprehensive about it especially as I have a hiatus hernia. Am on 9 tablets a week and have ET (Jak2neg
After checking with the Haem dept on News Years Eve, I have been cutting the tablets in half and emptying the contents into a large glass of water. Although I was told it was ok to do this, I am rather apprehensive about it especially as I have a hiatus hernia. Am on 9 tablets a week and have ET (Jak2neg
mol56
in
MPN Voice
11 years ago
Just started Hydroxycarbamide this week but feeling very resistant & to be quite truthful, scared!
Recently posted a question re alternative entry sites for venesections but after discussing this with my consultant, he's now prescribed Hydroxy as the alternative. My veins were hardening due to the regular blood letting-just having a simple blood test on Monday last week proved trying for the bleeder
Recently posted a question re alternative entry sites for venesections but after discussing this with my consultant, he's now prescribed Hydroxy as the alternative. My veins were hardening due to the regular blood letting-just having a simple blood test on Monday last week proved trying for the bleeder
Hidden
in
MPN Voice
11 years ago
I have PV and my recent blood tests have shown that I have a high level of potassium could it be the hydroxycarbamide that is causing this.
Has anyone had this problem and any ideas how to combat it?
Has anyone had this problem and any ideas how to combat it?
daffodil2
in
MPN Voice
11 years ago
I Have a High Red Cell Blood Count,Have Been Having a Venesection For This And Feel Good After It! Now The Consultant Is Asking Me If I
Would Like /Prefer To Take
Hydroxycarbamide
! I'm Undecided,As There Seems To Be Side Affects With It! What Do You Think?
Would Like /Prefer To Take
Hydroxycarbamide
! I'm Undecided,As There Seems To Be Side Affects With It! What Do You Think?
Malaga88
in
MPN Voice
11 years ago
I've been on hydroxycarbamide for 3 mths now with dose 1.5 g a day. My mouth is full of ulcers and sore. Help! What helps please?
soomoo
in
MPN Voice
11 years ago
Iron deficiency...
Does anybody have any answers to the same question for those (with PV) on
Hydroxycarbamide
? I'm suffering the same symptoms...
Does anybody have any answers to the same question for those (with PV) on
Hydroxycarbamide
? I'm suffering the same symptoms...
fleetpete
in
MPN Voice
11 years ago
Is anyone with PV on interferon?
I have been on
hydroxycarbamide
for the past 18 months which has been no problem, apart from mouth ulcers, but I have felt great. Because I am relatively young, my consultant has advised me to change to interferon alpha within the next couple of weeks. Can anyone advise me regarding interferon?
I have been on
hydroxycarbamide
for the past 18 months which has been no problem, apart from mouth ulcers, but I have felt great. Because I am relatively young, my consultant has advised me to change to interferon alpha within the next couple of weeks. Can anyone advise me regarding interferon?
jogging1
in
MPN Voice
11 years ago
I've got ET and been on hydroxycarbamide for 6 wks 1.5 g, I've got severe athletes foot and vaginal thrush. Is this common and any tips?
soomoo
in
MPN Voice
11 years ago
Can anyone tell me if it is safe to take a decongestant such as Sudafed.
I used to use Sudafed pretty regularly which I am reluctant to use now because of HBP and my medication (
hydroxycarbamide
and aspirin). Is there a safe alternative? I drive everyone to distraction with my continual dry coughing, gulping and losing my voice.
I used to use Sudafed pretty regularly which I am reluctant to use now because of HBP and my medication (
hydroxycarbamide
and aspirin). Is there a safe alternative? I drive everyone to distraction with my continual dry coughing, gulping and losing my voice.
Hidden
in
MPN Voice
11 years ago
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