Search
Search
About
Log in
Join
Experiences with
Hydroxycarbamide
Posts
Communities
1,137 public posts
Filter results
Hiya, need some answers/ thoughts please...
Hi, diagnosed with PV 2004, on
Hydroxycarbamide
for 7 years now, platelets 500+ but steady. Recently on 2/3 occasions I've experienced extreme tiredness & been 'off it' for a couple of days. Has anybody else had similar symptoms...with any answers, or thoughts? Pete
Hi, diagnosed with PV 2004, on
Hydroxycarbamide
for 7 years now, platelets 500+ but steady. Recently on 2/3 occasions I've experienced extreme tiredness & been 'off it' for a couple of days. Has anybody else had similar symptoms...with any answers, or thoughts? Pete
fleetpete
in
MPN Voice
11 years ago
I've just started on hydroxycarbamide and read having to stay out of the sun unless plastered in sunblock. Is skin extra sensitive? Discuss!
soomoo
in
MPN Voice
11 years ago
I have ET and I have been on Hydroxycarbamide for 18 months and my platelet count has been static for the last year down at around 420.
At my last check my count had dropped down to 310. I am due for a further check in August, is this sudden drop anything I should worry about or can this just happen?
At my last check my count had dropped down to 310. I am due for a further check in August, is this sudden drop anything I should worry about or can this just happen?
Hidden
in
MPN Voice
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Did anyone's platelets continue to rise when they first started taking Hydroxycarbamide?
My better half only started taking
Hydroxycarbamide
three weeks ago, he is only on 500g per day, the first week his platelets had dropped by around 50 when he had only taken three tablets, last week they had only dropped by 13!
My better half only started taking
Hydroxycarbamide
three weeks ago, he is only on 500g per day, the first week his platelets had dropped by around 50 when he had only taken three tablets, last week they had only dropped by 13!
Reflex4
in
MPN Voice
11 years ago
I had a reaction to ? Hydroxycarbamide. I am a Polycythaemia Vera patient. Where do I go from here?
My diagnosis being
Hydroxycarbamide
induced Vasculitis. My
Hydroxycarbamide
has been stopped but at this stage I have not been told what direction my treatment is to take. It has shook my confidence somewhat Anyone had similar experience?
My diagnosis being
Hydroxycarbamide
induced Vasculitis. My
Hydroxycarbamide
has been stopped but at this stage I have not been told what direction my treatment is to take. It has shook my confidence somewhat Anyone had similar experience?
AlRow
in
MPN Voice
11 years ago
Did anyone of you have any muscle spasms when you first starting taking Hydroxycarbamide?
Reflex4
in
MPN Voice
11 years ago
Anagrelide and interferon?
I started on Pegasys fairly recently but it isn't controlling my platelets on its own and so I have been taking
hydroxycarbamide
as well. This was a short term measure because I don't get on very well with the HU and I am due to discuss alternatives when I see my haematologist on Thursday.
I started on Pegasys fairly recently but it isn't controlling my platelets on its own and so I have been taking
hydroxycarbamide
as well. This was a short term measure because I don't get on very well with the HU and I am due to discuss alternatives when I see my haematologist on Thursday.
Jo_L
in
MPN Voice
11 years ago
Ruxolitinib trial . I'm so unsure.
I have PRV and currently on
hydroxycarbamide
and aspirin . Help please.
I have PRV and currently on
hydroxycarbamide
and aspirin . Help please.
maestromaverick
in
MPN Voice
11 years ago
I keep loosing my voice when talking anyone else had this since taking Hydroxycarbamide?
I have now been taking
Hydroxycarbamide
for 2 weeks. Had flu like symptoms for a short while. However I have noticed that something has changed in my voice. I am talking quite normal at times and then the power/volume goes. anyone else had this happen to them
I have now been taking
Hydroxycarbamide
for 2 weeks. Had flu like symptoms for a short while. However I have noticed that something has changed in my voice. I am talking quite normal at times and then the power/volume goes. anyone else had this happen to them
AlRow
in
MPN Voice
11 years ago
Giving a little back
I am now on
Hydroxycarbamide
500 x 9 a week and Aspirin 75mg daily plus venesections when the need arises. I now know that visual disturbances, the bruising and my atopic heart beats were all down to my elevated platelets and haemoglobin and I have not had any symptoms since starting treatment.
I am now on
Hydroxycarbamide
500 x 9 a week and Aspirin 75mg daily plus venesections when the need arises. I now know that visual disturbances, the bruising and my atopic heart beats were all down to my elevated platelets and haemoglobin and I have not had any symptoms since starting treatment.
glassaddict
in
MPN Voice
11 years ago
How severe is your bone pain in E T & is this made worse or better with treatment ?
I started
hydroxycarbamide
in November but only lasted about 6 weeks as had bad reaction & also the flu! Then tried Pegysy's interferon, did not agree with me either, am currently deciding on next treatment, but my question is........
I started
hydroxycarbamide
in November but only lasted about 6 weeks as had bad reaction & also the flu! Then tried Pegysy's interferon, did not agree with me either, am currently deciding on next treatment, but my question is........
Rinty
in
MPN Voice
11 years ago
recurrent swellings and cellulitis..i am on hydroxycarbamide & aspirin and have experienced these. Anyone have info re this and ulcers
liarose
in
MPN Voice
11 years ago
Feeling Shattered
I am on 1500mg of
Hydroxycarbamide
and 75mg aspirin per day.
I am on 1500mg of
Hydroxycarbamide
and 75mg aspirin per day.
stevenjust
in
MPN Voice
11 years ago
Periods stopped...
I have been on
hydroxycarbamide
for 10 months and haven't had a period for 6 months. I had a blood test to see if I was going through an early menopause and it came back that I am not as well as a scan which said the same. Has anyone else had this problem?
I have been on
hydroxycarbamide
for 10 months and haven't had a period for 6 months. I had a blood test to see if I was going through an early menopause and it came back that I am not as well as a scan which said the same. Has anyone else had this problem?
jogging1
in
MPN Voice
11 years ago
Hi, I was diagnosed with ET 18 months ago and am on aspirin. My platelets are on the move and my Haem wants me to consider hydroxycarbamide
I'm not sure which I'm more afraid of, a chemo drug or a stroke. Anyone else faced this dilemma?
I'm not sure which I'm more afraid of, a chemo drug or a stroke. Anyone else faced this dilemma?
jamieisabella
in
MPN Voice
11 years ago
Weight Gain - Has anyone experienced this on Hydroxyurea (Hydroxycarbamide)?
I have ET and since starting Hu I have gained 8/10 lbs in weight (it fluctuates). I have been on HU just over 12 months and this has crept on since then. I have never had a weight problem before so this is unusual for me.
I have ET and since starting Hu I have gained 8/10 lbs in weight (it fluctuates). I have been on HU just over 12 months and this has crept on since then. I have never had a weight problem before so this is unusual for me.
Hidden
in
MPN Voice
11 years ago
Is agent orange and the dioxin from AO (TCDD) a potential cause of my MPD,essential Thombocytosis.
I am a 64 year old Viet-Nam veteran and was stationed in Danang for 1 year(1970/1971).I was exposed to agent orange during that time(as ALL who set foot on Viet-Nam ground were ,during ANY dates AND for ANY length of time ,during the use of this toxic chemical..1962 thru 1971.....or so it is "presumed
I am a 64 year old Viet-Nam veteran and was stationed in Danang for 1 year(1970/1971).I was exposed to agent orange during that time(as ALL who set foot on Viet-Nam ground were ,during ANY dates AND for ANY length of time ,during the use of this toxic chemical..1962 thru 1971.....or so it is "presumed
Hidden
in
MPN Voice
11 years ago
what is the difference between secondary and Primary Polycythaemia.
I was recently diagnosed with primary Polycythemia with a Jak2 positive test (July 2012) I HAVE already had 12 lot's of blood taken (12x480ml) off and I am know on
hydroxycarbamide
. I am looking for help information in plain simple English Thanks
I was recently diagnosed with primary Polycythemia with a Jak2 positive test (July 2012) I HAVE already had 12 lot's of blood taken (12x480ml) off and I am know on
hydroxycarbamide
. I am looking for help information in plain simple English Thanks
StanM
in
MPN Voice
11 years ago
Hello to everyone. First timer here. Only two weeks into this and on Aspirin and Hydroxycarbamide.
It is all a little confusing so I hope someone can shed a little light. I have critical illness cover but I am unsure whether this condition is covered. Has anone else made a claim? Is this actually a cancer? My haematologist says it isn't?
It is all a little confusing so I hope someone can shed a little light. I have critical illness cover but I am unsure whether this condition is covered. Has anone else made a claim? Is this actually a cancer? My haematologist says it isn't?
glassaddict
in
MPN Voice
11 years ago
Starting interferon soon - can anyone share their experiences please?
However, because I am suffering horrendous mouth ulcers while taking
hydroxycarbamide
, I am going to be taking interferon as from 14th February. I have been given some information by the hospital and am going back on 14th February to be shown how to use and store it.
However, because I am suffering horrendous mouth ulcers while taking
hydroxycarbamide
, I am going to be taking interferon as from 14th February. I have been given some information by the hospital and am going back on 14th February to be shown how to use and store it.
Jo_L
in
MPN Voice
11 years ago
1
...
55
56
57
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
1084 results
Leukaemia CARE
11 results
Sickle Cell Society
10 results
View top 10 communities
Sort by
Most Relevant
Newest