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Experiences with
Hydroxycarbamide
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Blood Transfusion Therapy?
I'm day 3 on the medication
hydroxycarbamide
, and after a very rocky start feeling pretty grim nauseous, dizzy, etc. on day one and a bit iffy on day two, day three I seem to be doing okay, about 90 per cent of my old self.
I'm day 3 on the medication
hydroxycarbamide
, and after a very rocky start feeling pretty grim nauseous, dizzy, etc. on day one and a bit iffy on day two, day three I seem to be doing okay, about 90 per cent of my old self.
jeanr
in
MPN Voice
9 years ago
Bitter taste in the mouth every morning
I'm on
Hydroxycarbamide
1pcs/2 days . I changed living from field to my home in mountain town, one year ago. Simultaneously I began to fill a bitter taste in my mouth every morning, doesn't matter what I eat . Have anybody experienced this simptom? How to cure it? Thank you in advance.
I'm on
Hydroxycarbamide
1pcs/2 days . I changed living from field to my home in mountain town, one year ago. Simultaneously I began to fill a bitter taste in my mouth every morning, doesn't matter what I eat . Have anybody experienced this simptom? How to cure it? Thank you in advance.
cata
in
MPN Voice
9 years ago
Nail changes with chemo drugs
I am trying to raise awareness of the side effects of cancer treatments that are often ignored by medical staff but are so miserable for those suffering from them. The information given on sites, tends to underplay this side effect, but I believe the problem to be greater and more debilitating. Two groups
I am trying to raise awareness of the side effects of cancer treatments that are often ignored by medical staff but are so miserable for those suffering from them. The information given on sites, tends to underplay this side effect, but I believe the problem to be greater and more debilitating. Two groups
db1307
in
Fight Prostate Cancer
9 years ago
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Hydroxycarbamide for ever
Hi all. Been taking hydroxy for nearly two weeks as newly diagnosed and have been looking around for drug info. I've been unable to find much on hydroxy for life - most info talks of side effects stopping when treatment is finished. What about those of us who never finish? Am worried I will end up worse
Hi all. Been taking hydroxy for nearly two weeks as newly diagnosed and have been looking around for drug info. I've been unable to find much on hydroxy for life - most info talks of side effects stopping when treatment is finished. What about those of us who never finish? Am worried I will end up worse
YogaLover
in
MPN Voice
9 years ago
Confused even more
Haematologist said very rare for
hydroxycarbamide
to cause muscle pain. She said it may be that I'm still undermedicated on my.thyroid meds as body needs good level of T3. All so complicated
Haematologist said very rare for
hydroxycarbamide
to cause muscle pain. She said it may be that I'm still undermedicated on my.thyroid meds as body needs good level of T3. All so complicated
130396
in
MPN Voice
9 years ago
Confused
Haematologist said very rare for
hydroxycarbamide
to cause muscle pain. She said it may be that I'm still undermedicated on my.thyroid meds as body needs good level of T3. All so complicated
Haematologist said very rare for
hydroxycarbamide
to cause muscle pain. She said it may be that I'm still undermedicated on my.thyroid meds as body needs good level of T3. All so complicated
130396
in
Thyroid UK
9 years ago
A good haematologist
My platelet count is currently around 400 and is generally kept under control by
hydroxycarbamide
, though I have yet to see what effect the new medication for my heart condition may have had on this.
My platelet count is currently around 400 and is generally kept under control by
hydroxycarbamide
, though I have yet to see what effect the new medication for my heart condition may have had on this.
Nickthedevil
in
MPN Voice
9 years ago
You look really well !
I developed PV 6 months ago i am JAK 2 positive and take
Hydroxycarbamide
and Warfarin daily with various side effects, people say you look really well, its that thing when you have a broken leg , it can be seen you have a broken leg, with PV its invisible to everyone, you know you have it because of
I developed PV 6 months ago i am JAK 2 positive and take
Hydroxycarbamide
and Warfarin daily with various side effects, people say you look really well, its that thing when you have a broken leg , it can be seen you have a broken leg, with PV its invisible to everyone, you know you have it because of
chalet1
in
MPN Voice
9 years ago
Hydroxycarbamide muscle pain
I was put on
hydroxycarbamide
in February. By mid March I was getting extreme muscle pain. I have been signed off sick for past 3 weeks as the pain in my back muscles and top of back/shoulders is so bad now that if I'm up and about the pain becomes excruciating.
I was put on
hydroxycarbamide
in February. By mid March I was getting extreme muscle pain. I have been signed off sick for past 3 weeks as the pain in my back muscles and top of back/shoulders is so bad now that if I'm up and about the pain becomes excruciating.
130396
in
MPN Voice
9 years ago
Hydroxycarbamide. Aching muscles
Can it be the
hydroxycarbamide
causing this??? My platelets have dropped to 400 and my RBC has also dropped. I am also experiencing tingling in my arms fingers and legs. My main concern are the muscles in my back. I have to work. If it is the
hydroxycarbamide
is there an alternative treatment.
Can it be the
hydroxycarbamide
causing this??? My platelets have dropped to 400 and my RBC has also dropped. I am also experiencing tingling in my arms fingers and legs. My main concern are the muscles in my back. I have to work. If it is the
hydroxycarbamide
is there an alternative treatment.
130396
in
MPN Voice
9 years ago
Aching back muscles
Could this be side effect of
hydroxycarbamide
Could this be side effect of
hydroxycarbamide
130396
in
MPN Voice
9 years ago
Hydroxycarbamide. How high were your pplatelets when put on this?
Hi I am interested to know if those prescribed
hydroxycarbamide
had really high platelets when prescribed. Can anyone who is on it give me an idea of how high your platelets were. Also interested in anyone is JAK2 POSITIVE.
Hi I am interested to know if those prescribed
hydroxycarbamide
had really high platelets when prescribed. Can anyone who is on it give me an idea of how high your platelets were. Also interested in anyone is JAK2 POSITIVE.
130396
in
MPN Voice
9 years ago
Here we go again
So I saw Prof Harrison the other day and it was decided I am being put forward for the Majic trial, pending I'm selected am the liver specialist says yes....I hope I get the chance to go on the trial,
Hydroxycarbamide
isn't working for me anymore.....interferon didn't work either....
So I saw Prof Harrison the other day and it was decided I am being put forward for the Majic trial, pending I'm selected am the liver specialist says yes....I hope I get the chance to go on the trial,
Hydroxycarbamide
isn't working for me anymore.....interferon didn't work either....
Chelle_
in
MPN Voice
10 years ago
ET newly diagnosed
My platelet count is 7-800I I've been told I have ET and I'm on low dose aspirin. My specialist has not been very informative, and I have a bone marrow biopsy scheduled. Has anyone chosen not to take the platelet lowering drug hydroxyurea (spelling?)) I am 70 in good health generally apart from
My platelet count is 7-800I I've been told I have ET and I'm on low dose aspirin. My specialist has not been very informative, and I have a bone marrow biopsy scheduled. Has anyone chosen not to take the platelet lowering drug hydroxyurea (spelling?)) I am 70 in good health generally apart from
jeanr
in
MPN Voice
10 years ago
Itiching Relief.
I use the combination of Ayarax and Zantac am and pm that has helped some. I also have a problem with itching at night and am currently taking Neurotin with 80 to 90% success. However, your wife's experience is very different from mine. I am also on Hydroxyurea 500 mg every other day. Correction that
I use the combination of Ayarax and Zantac am and pm that has helped some. I also have a problem with itching at night and am currently taking Neurotin with 80 to 90% success. However, your wife's experience is very different from mine. I am also on Hydroxyurea 500 mg every other day. Correction that
TxTwin
in
MPN Voice
10 years ago
Temperatures whilst on Hydroxycarbamide
I am on
Hydroxycarbamide
for high platelets and are JK2 positive,I have been told by my specialist that if I get a temperature I have to go to the hospital right away,has anybody else been told this and has anybody been ? And what where they told.
I am on
Hydroxycarbamide
for high platelets and are JK2 positive,I have been told by my specialist that if I get a temperature I have to go to the hospital right away,has anybody else been told this and has anybody been ? And what where they told.
valdowning
in
MPN Voice
10 years ago
Low phosphate levels
I am on
hydroxycarbamide
, 2 x 500mg tablets 3 days a week and 3 x 500mg tablets on the other four days.
I am on
hydroxycarbamide
, 2 x 500mg tablets 3 days a week and 3 x 500mg tablets on the other four days.
RJJ2
in
MPN Voice
10 years ago
Night cramps, there driving me Mad .
Any one got any advice on leg cramps , it's always through the night , my legs are so sore , I do drink a lot , as I'm taking
Hydroxycarbamide
so I'm good at the drinking 6 /8 glasses water per day , any advice would be much appreciated ,x
Any one got any advice on leg cramps , it's always through the night , my legs are so sore , I do drink a lot , as I'm taking
Hydroxycarbamide
so I'm good at the drinking 6 /8 glasses water per day , any advice would be much appreciated ,x
Phelpsy
in
MPN Voice
10 years ago
Hydroxycarbamide increase
I ve upped my dose now to 2g 4 days and 1.5g for 3. My platelets are rising now 546 but increased 100 in a week. Does your body get used to drug? Feeling down as I was relatively "normal" in the summer
I ve upped my dose now to 2g 4 days and 1.5g for 3. My platelets are rising now 546 but increased 100 in a week. Does your body get used to drug? Feeling down as I was relatively "normal" in the summer
soomoo
in
MPN Voice
10 years ago
Has anyone else experienced really low white cells because of Hydroxycarbamide?
My platelets are normally controlled but because I keep having to reduce dose of Hyroxy to get whites back up, my platelets keep climbing. Its just a constant Yo Yo. Has anyone else experienced this and what was the eventual outcome? Unfortunately I get dreadful symptoms from high platelets and awful
My platelets are normally controlled but because I keep having to reduce dose of Hyroxy to get whites back up, my platelets keep climbing. Its just a constant Yo Yo. Has anyone else experienced this and what was the eventual outcome? Unfortunately I get dreadful symptoms from high platelets and awful
Hidden
in
MPN Voice
10 years ago
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