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Experiences with
Hydroxycarbamide
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Does Anyone Know Where in the Body Interferon Reduces the Platelet Count?
Because interferon,
hydroxycarbamide
etc. aren't cures, I think the bone marrow makes as many platelets as ever, but somewhere before blood is taken out and tested for the platelet count the platelets have been reduced in number.
Because interferon,
hydroxycarbamide
etc. aren't cures, I think the bone marrow makes as many platelets as ever, but somewhere before blood is taken out and tested for the platelet count the platelets have been reduced in number.
graymare
in
MPN Voice
11 years ago
Does anyone know where in the body interferon reduces the platelet count?
Because interferon,
hydroxycarbamide
, anagrelide et. aren't cures, I think the bone marrow makes just as many platelets as ever, but by the time the blood is extracted and tested the platelet count is reduced to show a normal amount.
Because interferon,
hydroxycarbamide
, anagrelide et. aren't cures, I think the bone marrow makes just as many platelets as ever, but by the time the blood is extracted and tested the platelet count is reduced to show a normal amount.
graymare
in
MPN Voice
11 years ago
I have PV, am Jak2 positive and being treated with Hydroxyurea and phlebotomy. Has anyone tried hemp oil to stop proliferation of cells?
1zica1
in
MPN Voice
11 years ago
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Is anyone getting blisters on their feet???
I've been on hydroxyurea for over a year now and have been getting blisters all over my feet. They are driving me crazy!!! Appointment with GP next week but just looking for some advice before I see her Any comments or help would be appreciated
I've been on hydroxyurea for over a year now and have been getting blisters all over my feet. They are driving me crazy!!! Appointment with GP next week but just looking for some advice before I see her Any comments or help would be appreciated
R8afg
in
MPN Voice
11 years ago
Hiya, need some answers/ thoughts please...
Hi, diagnosed with PV 2004, on
Hydroxycarbamide
for 7 years now, platelets 500+ but steady. Recently on 2/3 occasions I've experienced extreme tiredness & been 'off it' for a couple of days. Has anybody else had similar symptoms...with any answers, or thoughts? Pete
Hi, diagnosed with PV 2004, on
Hydroxycarbamide
for 7 years now, platelets 500+ but steady. Recently on 2/3 occasions I've experienced extreme tiredness & been 'off it' for a couple of days. Has anybody else had similar symptoms...with any answers, or thoughts? Pete
fleetpete
in
MPN Voice
11 years ago
I've just started on hydroxycarbamide and read having to stay out of the sun unless plastered in sunblock. Is skin extra sensitive? Discuss!
soomoo
in
MPN Voice
11 years ago
I have ET and I have been on Hydroxycarbamide for 18 months and my platelet count has been static for the last year down at around 420.
At my last check my count had dropped down to 310. I am due for a further check in August, is this sudden drop anything I should worry about or can this just happen?
At my last check my count had dropped down to 310. I am due for a further check in August, is this sudden drop anything I should worry about or can this just happen?
Hidden
in
MPN Voice
11 years ago
Did anyone's platelets continue to rise when they first started taking Hydroxycarbamide?
My better half only started taking
Hydroxycarbamide
three weeks ago, he is only on 500g per day, the first week his platelets had dropped by around 50 when he had only taken three tablets, last week they had only dropped by 13!
My better half only started taking
Hydroxycarbamide
three weeks ago, he is only on 500g per day, the first week his platelets had dropped by around 50 when he had only taken three tablets, last week they had only dropped by 13!
Reflex4
in
MPN Voice
11 years ago
I had a reaction to ? Hydroxycarbamide. I am a Polycythaemia Vera patient. Where do I go from here?
My diagnosis being
Hydroxycarbamide
induced Vasculitis. My
Hydroxycarbamide
has been stopped but at this stage I have not been told what direction my treatment is to take. It has shook my confidence somewhat Anyone had similar experience?
My diagnosis being
Hydroxycarbamide
induced Vasculitis. My
Hydroxycarbamide
has been stopped but at this stage I have not been told what direction my treatment is to take. It has shook my confidence somewhat Anyone had similar experience?
AlRow
in
MPN Voice
11 years ago
Did anyone of you have any muscle spasms when you first starting taking Hydroxycarbamide?
Reflex4
in
MPN Voice
11 years ago
Anagrelide and interferon?
I started on Pegasys fairly recently but it isn't controlling my platelets on its own and so I have been taking
hydroxycarbamide
as well. This was a short term measure because I don't get on very well with the HU and I am due to discuss alternatives when I see my haematologist on Thursday.
I started on Pegasys fairly recently but it isn't controlling my platelets on its own and so I have been taking
hydroxycarbamide
as well. This was a short term measure because I don't get on very well with the HU and I am due to discuss alternatives when I see my haematologist on Thursday.
Jo_L
in
MPN Voice
11 years ago
Ruxolitinib trial . I'm so unsure.
I have PRV and currently on
hydroxycarbamide
and aspirin . Help please.
I have PRV and currently on
hydroxycarbamide
and aspirin . Help please.
maestromaverick
in
MPN Voice
11 years ago
I keep loosing my voice when talking anyone else had this since taking Hydroxycarbamide?
I have now been taking
Hydroxycarbamide
for 2 weeks. Had flu like symptoms for a short while. However I have noticed that something has changed in my voice. I am talking quite normal at times and then the power/volume goes. anyone else had this happen to them
I have now been taking
Hydroxycarbamide
for 2 weeks. Had flu like symptoms for a short while. However I have noticed that something has changed in my voice. I am talking quite normal at times and then the power/volume goes. anyone else had this happen to them
AlRow
in
MPN Voice
11 years ago
Giving a little back
I am now on
Hydroxycarbamide
500 x 9 a week and Aspirin 75mg daily plus venesections when the need arises. I now know that visual disturbances, the bruising and my atopic heart beats were all down to my elevated platelets and haemoglobin and I have not had any symptoms since starting treatment.
I am now on
Hydroxycarbamide
500 x 9 a week and Aspirin 75mg daily plus venesections when the need arises. I now know that visual disturbances, the bruising and my atopic heart beats were all down to my elevated platelets and haemoglobin and I have not had any symptoms since starting treatment.
glassaddict
in
MPN Voice
11 years ago
How severe is your bone pain in E T & is this made worse or better with treatment ?
I started
hydroxycarbamide
in November but only lasted about 6 weeks as had bad reaction & also the flu! Then tried Pegysy's interferon, did not agree with me either, am currently deciding on next treatment, but my question is........
I started
hydroxycarbamide
in November but only lasted about 6 weeks as had bad reaction & also the flu! Then tried Pegysy's interferon, did not agree with me either, am currently deciding on next treatment, but my question is........
Rinty
in
MPN Voice
11 years ago
recurrent swellings and cellulitis..i am on hydroxycarbamide & aspirin and have experienced these. Anyone have info re this and ulcers
liarose
in
MPN Voice
11 years ago
Feeling Shattered
I am on 1500mg of
Hydroxycarbamide
and 75mg aspirin per day.
I am on 1500mg of
Hydroxycarbamide
and 75mg aspirin per day.
stevenjust
in
MPN Voice
11 years ago
Periods stopped...
I have been on
hydroxycarbamide
for 10 months and haven't had a period for 6 months. I had a blood test to see if I was going through an early menopause and it came back that I am not as well as a scan which said the same. Has anyone else had this problem?
I have been on
hydroxycarbamide
for 10 months and haven't had a period for 6 months. I had a blood test to see if I was going through an early menopause and it came back that I am not as well as a scan which said the same. Has anyone else had this problem?
jogging1
in
MPN Voice
11 years ago
Hi, I was diagnosed with ET 18 months ago and am on aspirin. My platelets are on the move and my Haem wants me to consider hydroxycarbamide
I'm not sure which I'm more afraid of, a chemo drug or a stroke. Anyone else faced this dilemma?
I'm not sure which I'm more afraid of, a chemo drug or a stroke. Anyone else faced this dilemma?
jamieisabella
in
MPN Voice
11 years ago
Weight Gain - Has anyone experienced this on Hydroxyurea (Hydroxycarbamide)?
I have ET and since starting Hu I have gained 8/10 lbs in weight (it fluctuates). I have been on HU just over 12 months and this has crept on since then. I have never had a weight problem before so this is unusual for me.
I have ET and since starting Hu I have gained 8/10 lbs in weight (it fluctuates). I have been on HU just over 12 months and this has crept on since then. I have never had a weight problem before so this is unusual for me.
Hidden
in
MPN Voice
11 years ago
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