I'm day 3 on the medication hydroxycarbamide, and after a very rocky start feeling pretty grim nauseous, dizzy, etc. on day one and a bit iffy on day two, day three I seem to be doing okay, about 90 per cent of my old self. I'm not complaining - read on and you will see I got some secondary good news.
I've been diagnosed with ET for about a year, but my platelet counts have been creeping up for 4 years. I was also told in May I might have lymph node cancer (this was on a lab report analysis after bone marrow biopsy)--the good news is that my new hematologist is definite that this is an over reading analysis of the biopsy by someone and he sees nothing unusual in the biopsy results- wow that was a huge relief! Definitely a red letter day.
When I saw the hematologist however he also he said down the road in about 15 years I might have to have "Transfusion therapyt" but I'm not clear why? Any thoughts - I have an appt again for Sept and I will ask him then- but I was so surprised and delighted by the reversal of the lymph node diagnosis that I didn't ask why I might need transfusion therapy. Any thoughts on transfusion therapy down the road?