Search
Search
About
Log in
Join
Experiences with
Hydroxycarbamide
Posts
Communities
1,160 public posts
Filter results
Down days
I had my
hydroxycarbamide
upped from one a day to one for 5days 2for 2days platelets 480 since taking the extra
hydroxycarbamide
I am experiencing leg pain in one leg nausea, down days before the increase I felt great has this happened to anyone else
I had my
hydroxycarbamide
upped from one a day to one for 5days 2for 2days platelets 480 since taking the extra
hydroxycarbamide
I am experiencing leg pain in one leg nausea, down days before the increase I felt great has this happened to anyone else
ChillyAsh34
in
MPN Voice
3 years ago
Shingrix jab for shingles
Afternoon my friends, Just a quick question of you all, has anyone on here had the new Shingrix jab, I had my first does last Friday, all seemed fine until Sunday when I started to have chills, turns out that I now have some kind of bladder infection this was found through having to go too Haematology
Afternoon my friends, Just a quick question of you all, has anyone on here had the new Shingrix jab, I had my first does last Friday, all seemed fine until Sunday when I started to have chills, turns out that I now have some kind of bladder infection this was found through having to go too Haematology
Superwoman
in
MPN Voice
2 years ago
Hepatitis A Ab positive due to interferon? Should I concern it and how to treat it?
Taking interferon 0.5ml/week since last mid August, I had blood test recently and found Hepatitis A Ab positive. other issues associated with taking interferon include low WBC(2.6 vs. 3.4), low Neutrophils (1.0 vs. 1.4) and high AST (45 vs. 40), ALT(58 vs. 44). I called my specialist and he told me should
Taking interferon 0.5ml/week since last mid August, I had blood test recently and found Hepatitis A Ab positive. other issues associated with taking interferon include low WBC(2.6 vs. 3.4), low Neutrophils (1.0 vs. 1.4) and high AST (45 vs. 40), ALT(58 vs. 44). I called my specialist and he told me should
Sam2022
in
MPN Voice
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Raising Awareness for Polycythemia Vera is Key in Increasing Overall Survival
« The final point that we addressed was treatment and to see if certain treatment practices reduce the risk. We were particularly interested in interferon because we had published a study earlier on interferon belonging, myelofibrosis-free survival and overall survival. We also looked at hydroxyurea,
« The final point that we addressed was treatment and to see if certain treatment practices reduce the risk. We were particularly interested in interferon because we had published a study earlier on interferon belonging, myelofibrosis-free survival and overall survival. We also looked at hydroxyurea,
Manouche
in
MPN Voice
2 years ago
Skin cancer and hydroxyurea
I have just started taking Hydroxyurea and have a question about outdoor activities. In the past I enjoyed golfing and going to the beach. I always use sunscreen and wear a hat. I am fair and have worried about skin cancer. Did you give up the outdoor activities?
I have just started taking Hydroxyurea and have a question about outdoor activities. In the past I enjoyed golfing and going to the beach. I always use sunscreen and wear a hat. I am fair and have worried about skin cancer. Did you give up the outdoor activities?
Skater69
in
MPN Voice
2 years ago
Info on HU
Hydroxycarbamide
ABOUT by how much does 1000 mg per day reduce immunity , please?
Hydroxycarbamide
ABOUT by how much does 1000 mg per day reduce immunity , please?
Whitegate
in
MPN Voice
3 years ago
Missed tablet
I am still fairly new to having ET and JAK+2 and asking what may look like daft question s i forgot it was sat today being Christmas day and should have taken 2
hydroxycarbamide
but just realised nowi only took 1 so will take 2tomorrow it's only sat and sun I do two should I take 2Monday or leave it
I am still fairly new to having ET and JAK+2 and asking what may look like daft question s i forgot it was sat today being Christmas day and should have taken 2
hydroxycarbamide
but just realised nowi only took 1 so will take 2tomorrow it's only sat and sun I do two should I take 2Monday or leave it
ChillyAsh34
in
MPN Voice
3 years ago
Hydroxycarbamide
So that's me been taken treatment for MF 8 weeks and already my platelet level has went from 600 to 200 also hemoglobin normal , I have been getting seen and bloods taken every 4 wks. Only problem is none of my side effects have gone !! My haematologist thinks maybe I am suffering long covid as I had
So that's me been taken treatment for MF 8 weeks and already my platelet level has went from 600 to 200 also hemoglobin normal , I have been getting seen and bloods taken every 4 wks. Only problem is none of my side effects have gone !! My haematologist thinks maybe I am suffering long covid as I had
indy22
in
MPN Voice
3 years ago
Bone pain and chills
Hello, all. I’m post Et Mf for the last 3 years. I was taking Fedratinib and hydroxyurea for a while but my doctor took me off of the Fedratinib in October. Last night I had the strangest experience. I went to sleep at my normal time but I was woken up at about 1:30 AM by extreme pain in my legs and
Hello, all. I’m post Et Mf for the last 3 years. I was taking Fedratinib and hydroxyurea for a while but my doctor took me off of the Fedratinib in October. Last night I had the strangest experience. I went to sleep at my normal time but I was woken up at about 1:30 AM by extreme pain in my legs and
Cja1956
in
MPN Voice
2 years ago
Risks in taking and not taking aspirin with hydroxyruea, especially when older
I have been taking hydroxyurea since Nov 2020 when diagnosed with Essential thrombocytosis, my platlets are contained at 433 . I started to take coated aspirin 81mg with the hydroxyuria but had to stop due to severe stomach acid. Now oncologist says to take the aspirin and I realize its probably best
I have been taking hydroxyurea since Nov 2020 when diagnosed with Essential thrombocytosis, my platlets are contained at 433 . I started to take coated aspirin 81mg with the hydroxyuria but had to stop due to severe stomach acid. Now oncologist says to take the aspirin and I realize its probably best
kitttycat
in
Fight MPN
2 years ago
Thyroid
Has anyone on
hydroxycarbamide
for ET+JAK 2 and on thyroxine for under active thyroid and aspirin had any interaction between the meds I am sure I am getting symptoms of under activity from thyroid so have got a thyroid function test tomorrow
Has anyone on
hydroxycarbamide
for ET+JAK 2 and on thyroxine for under active thyroid and aspirin had any interaction between the meds I am sure I am getting symptoms of under activity from thyroid so have got a thyroid function test tomorrow
ChillyAsh34
in
MPN Voice
3 years ago
Weight loss pills while on medication
Hi all, I was just wondering if anyone has taken Keto weight loss tablets while on
Hydroxycarbamide
for ET. There is a new product out called Best Health Keto UK and it claims to help with losing stubborn belly fat, I need this help!
Hi all, I was just wondering if anyone has taken Keto weight loss tablets while on
Hydroxycarbamide
for ET. There is a new product out called Best Health Keto UK and it claims to help with losing stubborn belly fat, I need this help!
beckyluck
in
MPN Voice
3 years ago
Hija
We’ll I am on
hydroxycarbamide
, same thing , because I have Polycythemia Vera , also diagnosed in 2018, also very rare. I t belongs to the same group of blood cancer. I still get itchy skin, fatigue , feeling hot at night and have developed a fatty liver. I have done well on my meds overall.
We’ll I am on
hydroxycarbamide
, same thing , because I have Polycythemia Vera , also diagnosed in 2018, also very rare. I t belongs to the same group of blood cancer. I still get itchy skin, fatigue , feeling hot at night and have developed a fatty liver. I have done well on my meds overall.
Triergirl55
in
MPN Voice
3 years ago
Paper on Misc Mutations
-- Another study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465511/ <<Cytokines levels are higher in myelofibrosis compared to PV and ET, with higher IL-2, sIL-2Rα, IL-6 and tumour necrosis factor α (TNFa)>> NAC supplement improves IL-6, and TNFa in various studies. -- Triple Neg isn't: <<Previously
-- Another study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465511/ <<Cytokines levels are higher in myelofibrosis compared to PV and ET, with higher IL-2, sIL-2Rα, IL-6 and tumour necrosis factor α (TNFa)>> NAC supplement improves IL-6, and TNFa in various studies. -- Triple Neg isn't: <<Previously
EPguy
in
MPN Voice
3 years ago
Has anyone on hydroxy been told why it's so difficult to lose any weight restrictive eating?
I'm on 500mg
hydroxycarbamide
for ET, my platelets are now normal.
I'm on 500mg
hydroxycarbamide
for ET, my platelets are now normal.
Hidden
in
MPN Voice
3 years ago
Anyone with Chronic Idiopathic Myelofibrosis?
Hello I am new here. Polycythemia vera Jak 2 positive, have been taking hydroxyurea for 2yrs now. Have terrible leg pain in bed not all the time anyone else with this .
Hello I am new here. Polycythemia vera Jak 2 positive, have been taking hydroxyurea for 2yrs now. Have terrible leg pain in bed not all the time anyone else with this .
Mrbeasley
in
MPN Voice
3 years ago
2nd Shingrix jab
Hi, I’m a 70 year old lady with ET and taking
hydroxycarbamide
. I had my second Shingrix jab 2 days ago and started having side effects within 6 hours. Had no reaction to first dose or to any of my 3 Covid jars or flu jab.
Hi, I’m a 70 year old lady with ET and taking
hydroxycarbamide
. I had my second Shingrix jab 2 days ago and started having side effects within 6 hours. Had no reaction to first dose or to any of my 3 Covid jars or flu jab.
Ozziepig
in
MPN Voice
3 years ago
Hydrea vs weight
For curiosity I looked into weight gain via HU. This very old and small study for sickle cell looked into it. There should be larger studies I would think but interesting: https://pubmed.ncbi.nlm.nih.gov/9176021/ shows there is a connection, but not entirely a bad one. <<At 18 months, the hydroxyurea-treated
For curiosity I looked into weight gain via HU. This very old and small study for sickle cell looked into it. There should be larger studies I would think but interesting: https://pubmed.ncbi.nlm.nih.gov/9176021/ shows there is a connection, but not entirely a bad one. <<At 18 months, the hydroxyurea-treated
EPguy
in
MPN Voice
3 years ago
I am only on aspirin for my ET (at moment). How much should I be shielding from Covid? I am triple vaxxed.
(
Hydroxycarbamide
)?
(
Hydroxycarbamide
)?
Peachjoy
in
MPN Voice
3 years ago
Tiredness and ET
I’ve been on 1000mg of
hydroxycarbamide
since 2005 with steady platelets around 370 I always suffer with tiredness and headaches does anyone have any tips to combat this Thanks you
I’ve been on 1000mg of
hydroxycarbamide
since 2005 with steady platelets around 370 I always suffer with tiredness and headaches does anyone have any tips to combat this Thanks you
Phojespa
in
MPN Voice
3 years ago
1
...
18
19
20
...
58
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
1107 results
Leukaemia Support
11 results
Sickle Cell Society
10 results
View top 10 communities
Sort by
Most Relevant
Newest