Hija

[Triergirl55]

We’ll I am on hydroxycarbamide, same thing , because I have Polycythemia Vera , also diagnosed in 2018, also very rare. I t belongs to the same group of blood cancer.

I still get itchy skin, fatigue , feeling hot at night and have developed a fatty liver.

I have done well on my meds overall.

If you’re not happy I would ask your consultant .

No one knows how I got this. It’s all very bizarre.

I wish you well, so difficult to deal with a disease that has no end in sight.

I had breast cancer before this.

We’ll get the this. Never stop asking the questions and sorry I cannot be of any more specific help.

Have a wonderful Christmas.

Remember, little steps.

Triergirl55

[Mazcd Partner MPNVoice]

hello Triergirl55, welcome to our forum. We have a lot of information on our website about PV that I am sure will help you, mpnvoice.org.uk.

Best wishes, Maz