We’ll I am on hydroxycarbamide, same thing , because I have Polycythemia Vera , also diagnosed in 2018, also very rare. I t belongs to the same group of blood cancer.
I still get itchy skin, fatigue , feeling hot at night and have developed a fatty liver.
I have done well on my meds overall.
If you’re not happy I would ask your consultant .
No one knows how I got this. It’s all very bizarre.
I wish you well, so difficult to deal with a disease that has no end in sight.
I had breast cancer before this.
We’ll get the this. Never stop asking the questions and sorry I cannot be of any more specific help.
Have a wonderful Christmas.
Remember, little steps.
Triergirl55