Hydroxycarbamide : So that's me been taken... - MPN Voice

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Hydroxycarbamide

indy22 profile image
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So that's me been taken treatment for MF 8 weeks and already my platelet level has went from 600 to 200 also hemoglobin normal , I have been getting seen and bloods taken every 4 wks. Only problem is none of my side effects have gone !! My haematologist thinks maybe I am suffering long covid as I had covid last Xmas and haven't been right since . I was also wandering if maybe covid had something to do with my ET progressing to MF? A question I ment to put to my Dr but forgot as my memory is also suffering at the moment . Thoughts anyone 🤔

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indy22
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GK40 profile image
GK40

Side effects dont always go. They can last and get better and then worse etc. I have constant side effects and was on ansgrekude for 14 years previously, some side effects went after a few months, others stayed throughout. Now in Hu and it's the same

Barbara140 profile image
Barbara140

Hi, that's an interesting thought. My ET progressed to MF after a spell of an unusual type of pneumonia (pre Covid days).

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