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low lobulated lesion of rectum
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
Perrie46
in
Bowel Disease Support
7 months ago
House legislation aims to close a regulatory loophole to improve patient safety of nuclear medicine diagnostic tests in oncology&cardiology
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
cujoe
in
Fight Prostate Cancer
9 months ago
immunotherapy
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
Leniko
in
My Ovacome
9 months ago
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New Year- New Challenges.
Hi all before I begin my 'Saga', I would like to wish you all a 'Better New Year'.😀 I am still waiting for the urgent needle biopsy for the large lump in my stomach, which was discovered in a recent 'Cat Scan'. Until that is completed my Haematologist cannot tell me the exact treatment I need to go
Hi all before I begin my 'Saga', I would like to wish you all a 'Better New Year'.😀 I am still waiting for the urgent needle biopsy for the large lump in my stomach, which was discovered in a recent 'Cat Scan'. Until that is completed my Haematologist cannot tell me the exact treatment I need to go
Vindicatrix
in
CLL Support
9 months ago
stool withholding - dulcosoft liquid an option?
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Sugarrush575
in
ERIC
7 months ago
Prednisalone
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
Alice70
in
NRAS
7 months ago
Can't increase my iron levels
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Suzanneharb
in
Thyroid UK
7 months ago
B12 Deficiency
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
MaryF
Administrator
in
Hughes Syndrome APS Forum
7 months ago
folate and b12
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
Confused1806
in
Pernicious Anaemia Society
7 months ago
Extremely bad acid heartburn
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
Holsgram
in
My Ovacome
7 months ago
Could it be B12 deficiency?
I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing. In October last year I experienced what I can only describe as a crash. I am normally fit and active and had a lovely summer with many trips camping
I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing. In October last year I experienced what I can only describe as a crash. I am normally fit and active and had a lovely summer with many trips camping
SpringerMom
in
Pernicious Anaemia Society
7 months ago
Kisqali added to Letrazole
So I was diagnosed with stage 2b lobular BC on 3/2023. Had a double mastectomy on 5/2023 and radiation. Onco and mammaprint said “no chemo benefit”. 26 lymph nodes taken out and 2 positive. Now oncologist wants to add Kisqali to my treatment regimen even though I am “cancer free”. I am sure it is due
So I was diagnosed with stage 2b lobular BC on 3/2023. Had a double mastectomy on 5/2023 and radiation. Onco and mammaprint said “no chemo benefit”. 26 lymph nodes taken out and 2 positive. Now oncologist wants to add Kisqali to my treatment regimen even though I am “cancer free”. I am sure it is due
mimosa412
in
SHARE Breast Cancer Support
9 months ago
Rectal pain
Hi, I had hemmies years ago which I had banded and also injected which seemed to solve the problem but then got an anal fissure and after struggling with it for years finally got surgery. Fast forward to now and I have constant pain in the rectum and am waiting for colonoscopy, my question is, does
Hi, I had hemmies years ago which I had banded and also injected which seemed to solve the problem but then got an anal fissure and after struggling with it for years finally got surgery. Fast forward to now and I have constant pain in the rectum and am waiting for colonoscopy, my question is, does
Boresum
in
Bowel Disease Support
7 months ago
Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
5 months ago
Grumbling oesophagus?
Several days ago I had general anaesthetic for the first time (cardioversion). It was all fine, but I soon noticed a grumbling oesophagus -- first when I put in earplugs on the morning after (noisy neighbour). Then last night, 72hrs later, the noises (in my oesophagus) were audible to me as I sat on
Several days ago I had general anaesthetic for the first time (cardioversion). It was all fine, but I soon noticed a grumbling oesophagus -- first when I put in earplugs on the morning after (noisy neighbour). Then last night, 72hrs later, the noises (in my oesophagus) were audible to me as I sat on
Redactrice
in
Atrial Fibrillation Support
7 months ago
Richter's and Novel Treatments/Combinations
We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a lot of information about clonality and which mutations the patients have. Extensive pretesting for these variables as well as the clinical ones
We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a lot of information about clonality and which mutations the patients have. Extensive pretesting for these variables as well as the clinical ones
Jm954
Administrator
in
CLL Support
1 month ago
Small bowel intestinal overgrowth
I have been diagnosed by my gastroenterologist with sibo after a breath test. The treatment prescribed is xifaxan. I’m waiting for approval by insurance. I’m also in treatment for CLL with Zanubrutinib which I began in May last year. I have had stomach issues, sometimes really severe, since beginning
I have been diagnosed by my gastroenterologist with sibo after a breath test. The treatment prescribed is xifaxan. I’m waiting for approval by insurance. I’m also in treatment for CLL with Zanubrutinib which I began in May last year. I have had stomach issues, sometimes really severe, since beginning
Bethsaida
in
CLL Support
7 months ago
I will be well....
Hello- I am a 10 year IBS-D sufferer. It worsened over the past two years as i went through the loss of my husband of 40 years to a rare cancer. The IBS gut-brain axis is real as my anxious mind can attest to. My IBS started after an 8 month round of chemotherapy for an early blood cancer. I've
Hello- I am a 10 year IBS-D sufferer. It worsened over the past two years as i went through the loss of my husband of 40 years to a rare cancer. The IBS gut-brain axis is real as my anxious mind can attest to. My IBS started after an 8 month round of chemotherapy for an early blood cancer. I've
Awannabe
in
IBS Network
9 months ago
A New complication!
My husband was diagnosed with PC in 2013, PSA 18, Gleason 4+3. Possible small met on pelvis. This was treated with radiotherapy. On Decapeptyl 6 monthly injections, and over the years, Xgeva, Xtandi and for the past couple of years, Erleada. Unfortunately, due to stomach surgery 2 years ago, where
My husband was diagnosed with PC in 2013, PSA 18, Gleason 4+3. Possible small met on pelvis. This was treated with radiotherapy. On Decapeptyl 6 monthly injections, and over the years, Xgeva, Xtandi and for the past couple of years, Erleada. Unfortunately, due to stomach surgery 2 years ago, where
Hidden
in
Advanced Prostate Cancer
9 months ago
Thyroid private blood tests - new company
Hi - A couple weeks ago someone posted a new company offering thyroid tests that have blood drawing clinics in London and is very reasonably priced. I have just had an unfortunate experience with Medichecks as the clinic I chose in London had no appointments for over a month. I am being issued a refund
Hi - A couple weeks ago someone posted a new company offering thyroid tests that have blood drawing clinics in London and is very reasonably priced. I have just had an unfortunate experience with Medichecks as the clinic I chose in London had no appointments for over a month. I am being issued a refund
Libuse
in
Thyroid UK
7 months ago
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