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Mastectomies
My partner (38) was diagnosed with stage 4 Ovarian cancer in June after many earlier chances of diagnosis. There was also a mass in one of her breasts. She had gene testing and is BRCA 1 positive. She has had 4 doses of chemo, debulking surgery (which went well) and two further doses of chemo. She
My partner (38) was diagnosed with stage 4 Ovarian cancer in June after many earlier chances of diagnosis. There was also a mass in one of her breasts. She had gene testing and is BRCA 1 positive. She has had 4 doses of chemo, debulking surgery (which went well) and two further doses of chemo. She
Kernowafibber
in
My Ovacome
7 months ago
Guardant reveal post surgery
Anyone take the blood test Guardant Reveal post stage 1 surgical removal to see if residual disease in body ? Oncologist offered - think more to ease my mind. Stage 1 a 5 1/2 years ago removed , new stage 1 a removed in October. No lymph node involvement either time. She said if positive can push for
Anyone take the blood test Guardant Reveal post stage 1 surgical removal to see if residual disease in body ? Oncologist offered - think more to ease my mind. Stage 1 a 5 1/2 years ago removed , new stage 1 a removed in October. No lymph node involvement either time. She said if positive can push for
kri312
in
The Roy Castle Lung Cancer Foundation
7 months ago
My docetaxel experience so far
For those who may be interested, I started docetaxel chemo on 20th October and have just had my 3rd infusion on 8th December. I did moderate fasting the day before for the first infusion but haven't bothered since. I wore iced gloves and socks and munched on ice cubes during the chemo sessions. I've
For those who may be interested, I started docetaxel chemo on 20th October and have just had my 3rd infusion on 8th December. I did moderate fasting the day before for the first infusion but haven't bothered since. I wore iced gloves and socks and munched on ice cubes during the chemo sessions. I've
Benkaymel
in
Advanced Prostate Cancer
7 months ago
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recurrence after lobectomy
Hello, I am 53 and live in the UK and I stop smoking in my late 20’. I had a lobectomy of my right lower lobe in April 2022 to remove a minimally invasive adenocarcinoma staged pT1 N0, M0, PL0, R0 (found by complete accident on an abdomen CT scan.) I begged for adjuvant therapy after the operation
Hello, I am 53 and live in the UK and I stop smoking in my late 20’. I had a lobectomy of my right lower lobe in April 2022 to remove a minimally invasive adenocarcinoma staged pT1 N0, M0, PL0, R0 (found by complete accident on an abdomen CT scan.) I begged for adjuvant therapy after the operation
Bibicata
in
The Roy Castle Lung Cancer Foundation
7 months ago
Pain management change of meds.
Hi there , after a recent visit with a pain management doctor I have been ask the try some new medication called Celecoxib instead of Naproxen has anyone else use this medicine for chronic pain they said in a newish drug so not sure what to expect side affects etc...a also take pregablain 75mg day dose
Hi there , after a recent visit with a pain management doctor I have been ask the try some new medication called Celecoxib instead of Naproxen has anyone else use this medicine for chronic pain they said in a newish drug so not sure what to expect side affects etc...a also take pregablain 75mg day dose
Rob172
in
Fibromyalgia Action UK
4 months ago
B12 Folate and Ferritin
I have got a Vitamin D supplement. Can anybody recommend a brand of B12, Folate and Ferritin?
I have got a Vitamin D supplement. Can anybody recommend a brand of B12, Folate and Ferritin?
foamfollower
in
Thyroid UK
4 months ago
consultant Gastroenterologist
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
Doris11
in
Pernicious Anaemia Society
3 months ago
confused whether to go ahead with laparoscopy
31 year old female Hi everyone I am due to have a diagnostic laparoscopy in 2.5 weeks. I am so nervous about the procedure and unsure whether to go ahead. My pain over the last few months has been manageable and my periods are ok. I don’t know whether I’m getting used to the pain. I have changed my
31 year old female Hi everyone I am due to have a diagnostic laparoscopy in 2.5 weeks. I am so nervous about the procedure and unsure whether to go ahead. My pain over the last few months has been manageable and my periods are ok. I don’t know whether I’m getting used to the pain. I have changed my
Penguinpal
in
Endometriosis UK
4 months ago
shift work
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Nitenurse63
in
NRAS
4 months ago
Endo in bowel tips
I was just wondering if anybody could help in regards to having endometriosis in their bowel, as I've found it quite hard to find out about it when researching. My surgeon found it on the outside of my bowel, and I am seeing a colon specialist to see if it has entered my bowel. I was just wondering if
I was just wondering if anybody could help in regards to having endometriosis in their bowel, as I've found it quite hard to find out about it when researching. My surgeon found it on the outside of my bowel, and I am seeing a colon specialist to see if it has entered my bowel. I was just wondering if
shaqshuka101
in
Endometriosis UK
4 months ago
constipation help
hope you knowledgeable people can help me. I was shouted at by my gp and bought to tears. She insisted I follow her Plan. 3 docusate and 1 fybogel sachet daily. To ignore what other drs have said. I began with this on 1st March, I’m now on day 6, have still not opened my bowels. I have terrible
hope you knowledgeable people can help me. I was shouted at by my gp and bought to tears. She insisted I follow her Plan. 3 docusate and 1 fybogel sachet daily. To ignore what other drs have said. I began with this on 1st March, I’m now on day 6, have still not opened my bowels. I have terrible
Laxido21
in
IBS Network
4 months ago
NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
PAScomms
in
Pernicious Anaemia Society
4 months ago
Steroid inhalers and oral thrush.
Have recently started Relvar Ellipta inhaler and would like to know how to treat oral thrush? With many thanks. 🤗
Have recently started Relvar Ellipta inhaler and would like to know how to treat oral thrush? With many thanks. 🤗
Lupino
in
Lung Conditions Community Forum
4 months ago
Had results but still confused 🤷🏻♀️
After having biopsy samples taken during an incomplete colonoscopy back on 20th Jan and then having the CT pneumocolon on 8th Feb I have finally had the results read out to me by the med sec….not sure if it’s left me with more questions rather than answers 🤷🏻♀️ The biopsy results show inflammation
After having biopsy samples taken during an incomplete colonoscopy back on 20th Jan and then having the CT pneumocolon on 8th Feb I have finally had the results read out to me by the med sec….not sure if it’s left me with more questions rather than answers 🤷🏻♀️ The biopsy results show inflammation
PinkBubblez1
in
Colon Cancer Connected
4 months ago
Any body else like me?
Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything
Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything
Emmacrispins
in
My Ovacome
7 months ago
Need Help With Results From Blood Test
Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue. Also had a red rash under both of my eyes.My GP ordered blood work and my platelets were high, iron low, protein and
Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue. Also had a red rash under both of my eyes.My GP ordered blood work and my platelets were high, iron low, protein and
Jadaboo4
in
LUPUS UK
3 months ago
sleep aid
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
RCHD
in
Restless Legs Syndrome
3 months ago
PSA rising after my 4th chemo
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
Maxone73
in
Advanced Prostate Cancer
7 months ago
Adenomyosis, Endometriosis and Autoimmune diseases
Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and autoimmune disease. Following all my symptoms (that got even worse since I have no therapy but only medication to ease the pain) now I got a possible
Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and autoimmune disease. Following all my symptoms (that got even worse since I have no therapy but only medication to ease the pain) now I got a possible
Taikaei
in
Endometriosis UK
3 months ago
Treatment help
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
Red476
in
Endometriosis UK
4 months ago
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