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still having symptoms
Hi I posted a while ago about my son who is 23 had a fit positive test off 200 and loose bowel movements up to 6 times a day.He had a colonoscopy, it was clear, biopsies was clear too so they discharged him. He is still having symptoms and lots of blood , he also keeps getting really big ulcers in
Hi I posted a while ago about my son who is 23 had a fit positive test off 200 and loose bowel movements up to 6 times a day.He had a colonoscopy, it was clear, biopsies was clear too so they discharged him. He is still having symptoms and lots of blood , he also keeps getting really big ulcers in
Longboots7979
Caregiver
in
Colon Cancer Connected
6 months ago
TruQap progress-lower TM
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
Yikes123
in
SHARE Metastatic Breast Cancer
8 months ago
Monitoring when starting Folic Acid and Ferrous fumerate
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
yewotc23
in
Thyroid UK
6 months ago
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Changing the name of cancer...would speed up research
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
Maxone73
in
Advanced Prostate Cancer
8 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
8 months ago
Cancer sufferer T3 below range, T4 50%, TSH 1.6 advice
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Sleepman
in
Thyroid UK
8 months ago
Why is iron over-range yet TIBC shows a need ro take more please?
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
Jo5454
in
Pernicious Anaemia Society
6 months ago
anyone opted for Watch and Wait with indeterminate nodules thy3f? Looking for people with similar previous experience to make up my mind
hi everyone just wondering if anyone ever had the courage to opt for wait and see tactic with indeterminate nodules? How often did manage it? How did you feel in the end? What made you make that decision? my situation is that I have two indeterminate nodules on either side. Doctors recommended total
hi everyone just wondering if anyone ever had the courage to opt for wait and see tactic with indeterminate nodules? How often did manage it? How did you feel in the end? What made you make that decision? my situation is that I have two indeterminate nodules on either side. Doctors recommended total
Indianyellow
in
Thyroid UK
8 months ago
Learn CPR and Defibrillator training
More people need CPR training. Not enough people do. I am an ex Nurse and Firefighter and seen first hand the benefits of learning CPR ect. I now have my First Aid Instructor qualification and teach Basic Life Support-CPR-Defibrillator training. My own training has helped me in 2 different situations
More people need CPR training. Not enough people do. I am an ex Nurse and Firefighter and seen first hand the benefits of learning CPR ect. I now have my First Aid Instructor qualification and teach Basic Life Support-CPR-Defibrillator training. My own training has helped me in 2 different situations
Nevharris
in
British Heart Foundation
5 months ago
15-Year-Old daughter level 3700+
Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form
Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form
Eric_Cartman
in
Crohn's and Colitis Support
6 months ago
Patricia
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
ruskin10
in
My Breast Cancer Community
8 months ago
update on sore Nipple!
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
Sungolfer
in
PMRGCAuk
8 months ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
8 months ago
GP visit!
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
Chickens44
in
Pernicious Anaemia Society
6 months ago
Are endocrinologists of any help after ADT?
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
Derf4223
in
Advanced Prostate Cancer
6 months ago
First night on Buprenorphine
So today I took 0.2 mg of Buprenorphine, thinking it was better to start low. The effect was incredible. My legs didn't move at all. In fact, the effect was so effective that I even got scared. My body was so relaxed. I got a little anxious that I may not wake up if I felt sleep. I layed there amazed
So today I took 0.2 mg of Buprenorphine, thinking it was better to start low. The effect was incredible. My legs didn't move at all. In fact, the effect was so effective that I even got scared. My body was so relaxed. I got a little anxious that I may not wake up if I felt sleep. I layed there amazed
Anthas
in
Restless Legs Syndrome
3 months ago
Cardiac open heart surgery
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
bikebabe
in
SHARE Metastatic Breast Cancer
8 months ago
Swollen hand
swollen painful hand ( just the one thank goodness) any connection with steroid reduction? Any thoughts? Doctor eliminated carpel tunnel, being sent for blood test for rheumatoid arthritis but I have noticed it is worse when I have just reduced by 1mg my dose of prednisolone which I take for PMR. It
swollen painful hand ( just the one thank goodness) any connection with steroid reduction? Any thoughts? Doctor eliminated carpel tunnel, being sent for blood test for rheumatoid arthritis but I have noticed it is worse when I have just reduced by 1mg my dose of prednisolone which I take for PMR. It
peggy1920
in
PMRGCAuk
6 months ago
Advice please
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Hidden
in
Advanced Prostate Cancer
8 months ago
cross road
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
Kcap430
in
SHARE Metastatic Breast Cancer
8 months ago
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