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Experiences with
Hydrea
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Sweating
I am on
Hydrea
alternating 500/1000 every 2 days. My latest counts are always in the 450-525 range. If I take higher doses of
Hydrea
I get huge ulcers on my ankle bones that dig right to the bones. I am wits with this disease and suffer from severe arthritis from disc degeneration in my lower back.
I am on
Hydrea
alternating 500/1000 every 2 days. My latest counts are always in the 450-525 range. If I take higher doses of
Hydrea
I get huge ulcers on my ankle bones that dig right to the bones. I am wits with this disease and suffer from severe arthritis from disc degeneration in my lower back.
BellTech
in
MPN Voice
3 years ago
Has anyone been diagnosed with Polycythemia Vera over 60 years old and Not taking medication despite medical advise?
Wondering how critical it is to start medication
hydrea
Right away or could I do phlebotomy first and see how counts come down. I am 70 and I know high risk but Not ready to start a chemo drug . Thank you all for your input and expertise ! It’s appreciated.
Wondering how critical it is to start medication
hydrea
Right away or could I do phlebotomy first and see how counts come down. I am 70 and I know high risk but Not ready to start a chemo drug . Thank you all for your input and expertise ! It’s appreciated.
Sunnylesser
in
MPN Voice
3 years ago
Burning sensation on my feet
Since then Im taking
Hydrea
1000mg everyday. Recently I've been having symptoms such as burning sensation on my feet, especially during the night. Did you ever experience such feeling? Thank you!
Since then Im taking
Hydrea
1000mg everyday. Recently I've been having symptoms such as burning sensation on my feet, especially during the night. Did you ever experience such feeling? Thank you!
Kiziria
in
Fight MPN
3 years ago
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Praise report
I was then started on
Hydrea
500 mgs each day. I go every 2 weeks for labs. Each time my platelets would decrease by 20-30. My blood has been super thick making it hard for them to draw blood sometimes being jabbed 5-7 times. Here’s the good news.
I was then started on
Hydrea
500 mgs each day. I go every 2 weeks for labs. Each time my platelets would decrease by 20-30. My blood has been super thick making it hard for them to draw blood sometimes being jabbed 5-7 times. Here’s the good news.
Tingle20
in
MPN Voice
3 years ago
RBC Counts decreasing
Its been 8 years that Im taking
Hydrea
medication and my daily dose today is 1000/1500mg. My platelet counts currently are 766, but RBC is gradually decreasing (3,2). Please do share your opinions or if you have similar experience. Thank you very much in advance! Marina
Its been 8 years that Im taking
Hydrea
medication and my daily dose today is 1000/1500mg. My platelet counts currently are 766, but RBC is gradually decreasing (3,2). Please do share your opinions or if you have similar experience. Thank you very much in advance! Marina
Kiziria
in
Fight MPN
3 years ago
Long Term INF Results
It compares INF (Interferon) , HU (
Hydrea
) and Phlebotomy for Jak2 PV over a very long time, starting in 1966 to 2019. The triple comparison is neat by itself. It was most recently published this year.
It compares INF (Interferon) , HU (
Hydrea
) and Phlebotomy for Jak2 PV over a very long time, starting in 1966 to 2019. The triple comparison is neat by itself. It was most recently published this year.
EPguy
in
MPN Voice
3 years ago
Wanting to thank everyone for their input, kindness and responses.
That changed my mind so I am starting this Thursday on
hydrea
and phlebotomy.I know I need to change my thinking and take the pill with gratitude if it keeps me alive and healthy. Again thank you all for sharing with me. Sunny Lesser
That changed my mind so I am starting this Thursday on
hydrea
and phlebotomy.I know I need to change my thinking and take the pill with gratitude if it keeps me alive and healthy. Again thank you all for sharing with me. Sunny Lesser
Sunnylesser
in
MPN Voice
3 years ago
Out of breath
Hi I have ET and I am on
Hydrea
does anyone get out of breath on it please
Hi I have ET and I am on
Hydrea
does anyone get out of breath on it please
Windy51
in
MPN Voice
3 years ago
Past few days having angina? I think...
I don’t think this is reflux.I have been on 1000mg of
Hydrea
since January. I have never had cardiac issues or high cholesterol. I stopped
Hydrea
for 5 days but still had the chest pain. I am supposed to get in a plane at 5:30 in the morning and I am a little nervous. Gahhhhhhh!!!!!
I don’t think this is reflux.I have been on 1000mg of
Hydrea
since January. I have never had cardiac issues or high cholesterol. I stopped
Hydrea
for 5 days but still had the chest pain. I am supposed to get in a plane at 5:30 in the morning and I am a little nervous. Gahhhhhhh!!!!!
Wewo01
in
MPN Voice
3 years ago
Does constipation ever cease while on Hydrea?
I'm on
Hydrea
5500mg/week for ET, which has been the dose for a few months now. Platelets are now normal (low 300's), but I believe that I will be on a maintenance dose when I next see my haematologist at the end of May. I have suffered with constipation since day 1.
I'm on
Hydrea
5500mg/week for ET, which has been the dose for a few months now. Platelets are now normal (low 300's), but I believe that I will be on a maintenance dose when I next see my haematologist at the end of May. I have suffered with constipation since day 1.
Hidden
in
MPN Voice
3 years ago
Vitamin D insufficiency
I recently started taking 500mg of
Hydrea
daily. My HCT is now 48.7 and my platelets are 319. I just had my vitamin D tested and it was 26.7 which indicates vitamin D insufficiency . I have been taking about 1000 IU of vitamin D a day.
I recently started taking 500mg of
Hydrea
daily. My HCT is now 48.7 and my platelets are 319. I just had my vitamin D tested and it was 26.7 which indicates vitamin D insufficiency . I have been taking about 1000 IU of vitamin D a day.
Dan73
in
MPN Voice
3 years ago
Taking Hydrea - PV
Hi All, I wanted to fins out how old you were when you got diagnosed with PV as i am 27 and started a month now on
Hydrea
but my bloods were good but seem to slowly rise again, she said she want to increase my dosage as i am not happy about that . does this get easier _ who can help me and talk me
Hi All, I wanted to fins out how old you were when you got diagnosed with PV as i am 27 and started a month now on
Hydrea
but my bloods were good but seem to slowly rise again, she said she want to increase my dosage as i am not happy about that . does this get easier _ who can help me and talk me
Shelds
in
MPN Voice
3 years ago
Burning ankles
I am recently diagnosed ET JAK2 + and have been taking 500 mg
Hydrea
every other day for a week. Has anyone else had this happened and if so what helps the burning sensation?
I am recently diagnosed ET JAK2 + and have been taking 500 mg
Hydrea
every other day for a week. Has anyone else had this happened and if so what helps the burning sensation?
Tingle20
in
Fight MPN
3 years ago
Hydrea side effects
I am supposed to start taking
Hydrea
500 mg/ day for ET JAK2 +. I am concerned about this knowing it is a chemotherapy drug. I know everyone is different. What side effects have you guys had taking this. Anything bad. Does your hair fall out?
I am supposed to start taking
Hydrea
500 mg/ day for ET JAK2 +. I am concerned about this knowing it is a chemotherapy drug. I know everyone is different. What side effects have you guys had taking this. Anything bad. Does your hair fall out?
Tingle20
in
Fight MPN
3 years ago
Turmeric supplement
Does anybody know if this is a safe dose to take with the aspirin and 1000 mg
hydrea
? As always thanks for being there.
Does anybody know if this is a safe dose to take with the aspirin and 1000 mg
hydrea
? As always thanks for being there.
JP1952
in
MPN Voice
3 years ago
Debilitating Nausea
Currently on 1000mg
Hydrea
4 times a week and 500mg for the other 3. Does anyone else have really bad nausea (no vomiting)?
Currently on 1000mg
Hydrea
4 times a week and 500mg for the other 3. Does anyone else have really bad nausea (no vomiting)?
Hidden
in
MPN Voice
3 years ago
Jak2 positive
They want to start me on
Hydrea
. I can’t talk to the doctor till next week. I don’t know what any of this means. I read the medicine is a chemotherapy medicine. Does this mean I have cancer? Help me understand this
They want to start me on
Hydrea
. I can’t talk to the doctor till next week. I don’t know what any of this means. I read the medicine is a chemotherapy medicine. Does this mean I have cancer? Help me understand this
Tingle20
in
MPN Voice
3 years ago
Non-physical side effects on Hydrea
I started treatment just 6 weeks ago and I've been on 6000mg
Hydrea
(1000mg Mon-Thurs and 500 mg Fri -Sun) now for about 4 weeks.
I started treatment just 6 weeks ago and I've been on 6000mg
Hydrea
(1000mg Mon-Thurs and 500 mg Fri -Sun) now for about 4 weeks.
Hidden
in
MPN Voice
3 years ago
Pain aches interferon
Hi I recently started on interferon switching from
Hydrea
. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps.
Hi I recently started on interferon switching from
Hydrea
. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps.
Dovme
in
Fight MPN
3 years ago
ET Patients: Pain, Covid, Hydrea and NAC Supplements
If so, will my
Hydrea
help with this? I can barely handle someone touching me. Mostly my legs are constantly throbbing. Has anyone researched NAC supplements and their effects on ET?
If so, will my
Hydrea
help with this? I can barely handle someone touching me. Mostly my legs are constantly throbbing. Has anyone researched NAC supplements and their effects on ET?
Hemaeohisto13
in
MPN Voice
3 years ago
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