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Hydrea
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Mithridate Trial
I was prescribed
hydrea
and ever increasing doses decreased the platelets; the other bloods weren't ideal but low enough to cause some fatigue. However, the itching continued to dominate my life.
I was prescribed
hydrea
and ever increasing doses decreased the platelets; the other bloods weren't ideal but low enough to cause some fatigue. However, the itching continued to dominate my life.
JP1952
in
MPN Voice
3 years ago
What are your thoughts about Interferon Vs. Hydroxurea?
I’m still on a low-dose aspirin but I’m just reading about it in case I need to take either in the near future, like everyone, I’m concern about the effect of
hydrea
on my pregnancy or sexual life if I may add.
I’m still on a low-dose aspirin but I’m just reading about it in case I need to take either in the near future, like everyone, I’m concern about the effect of
hydrea
on my pregnancy or sexual life if I may add.
livelovelaugh1992
in
MPN Voice
3 years ago
Physician says he won’t order therapeutic phlebotomy for my hematocrit at 48.1 and I’m female!
My dr says
Hydrea
is what I should stay on to lower my WBC’s, RBC’s, HCT and platelets! I have been on it for a year and that hasn’t happened. He says I do not have PV because my EPO is normal. It’s very low but considered normal. Should he be basing my dx just on the EPO?
My dr says
Hydrea
is what I should stay on to lower my WBC’s, RBC’s, HCT and platelets! I have been on it for a year and that hasn’t happened. He says I do not have PV because my EPO is normal. It’s very low but considered normal. Should he be basing my dx just on the EPO?
Wewo01
in
MPN Voice
3 years ago
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Monoclonal antibody infusion
I’d Covid 19 positive I discovery from this morning my primary dr recommend take a monoclonal antibody I have ESSENCIAL trombositosis my platelets are almost 400 , I’m taking
Hydrea
every other day Someone of you has had any experience with the antibody Thank you in advance
I’d Covid 19 positive I discovery from this morning my primary dr recommend take a monoclonal antibody I have ESSENCIAL trombositosis my platelets are almost 400 , I’m taking
Hydrea
every other day Someone of you has had any experience with the antibody Thank you in advance
Tcperez
in
MPN Voice
3 years ago
TPD - The continuing saga
In that time I must have swallowed thousands of
Hydrea
capsules. I know some medics dismiss MPN's but if I'm deemed not eligible who is ? I shall be emailing my consultant quoting Mr.Argar and asking when I can look forward to receiving my invitation for the Third Primary Dose!
In that time I must have swallowed thousands of
Hydrea
capsules. I know some medics dismiss MPN's but if I'm deemed not eligible who is ? I shall be emailing my consultant quoting Mr.Argar and asking when I can look forward to receiving my invitation for the Third Primary Dose!
eatentrifles
in
MPN Voice
3 years ago
Pre mf
Does anyone take
Hydrea
for pre fibrotic mf with high platelets?
Does anyone take
Hydrea
for pre fibrotic mf with high platelets?
otisthedog
in
MPN Voice
3 years ago
Problem with inflammation of muscles
I checked and there were no interactions with
Hydrea
. I have been having a great deal of muscular inflammation and cannot get rid of it. If not Ashwagandha, then what if anything do others take to lower the pain of inflammation? One can only rest and hydrate so much. Thank you in advance!
I checked and there were no interactions with
Hydrea
. I have been having a great deal of muscular inflammation and cannot get rid of it. If not Ashwagandha, then what if anything do others take to lower the pain of inflammation? One can only rest and hydrate so much. Thank you in advance!
IrishHiker
in
MPN Voice
3 years ago
Cataracts.
I have ET, diagnosed 3years ago , on
Hydrea
and Aspirin. I have ocular pain and cataracts now diagnosed . Wondering if this is common in ET? Having cataract surgery end of this month.
I have ET, diagnosed 3years ago , on
Hydrea
and Aspirin. I have ocular pain and cataracts now diagnosed . Wondering if this is common in ET? Having cataract surgery end of this month.
Sopretty
in
MPN Voice
3 years ago
ET and Hydrea issues along with covid shot.
Up until know I have been only taking a baby aspirin but my platelets won’t from 400 to 700 over the past few years so I was directed to start taking
Hydrea
. Started 3 months ago with one pill every other day and went down to 520 with no side effects.
Up until know I have been only taking a baby aspirin but my platelets won’t from 400 to 700 over the past few years so I was directed to start taking
Hydrea
. Started 3 months ago with one pill every other day and went down to 520 with no side effects.
MDI55
in
MPN Voice
3 years ago
Learning to live with ET and PV in California
Recently started on
Hydrea
after platelet counts reached 1,000,000. Have been having phelbotomies for several years for the PV. I'm a recent transplant from the Midwest to the Central Coast of California...arrived just before the pandemic.
Recently started on
Hydrea
after platelet counts reached 1,000,000. Have been having phelbotomies for several years for the PV. I'm a recent transplant from the Midwest to the Central Coast of California...arrived just before the pandemic.
K-itty
in
MPN Voice
3 years ago
I got 4 opinions before I started hydrea
It’s a scary thought to be taking a chemo drug . I am 70 still running half marathons very active and did not want this in my body. Saw specialists in NY -MA -CT And they all said this drug should be called something else because it’s not a chemo drug like other drugs for cancer. The name scares everyone
It’s a scary thought to be taking a chemo drug . I am 70 still running half marathons very active and did not want this in my body. Saw specialists in NY -MA -CT And they all said this drug should be called something else because it’s not a chemo drug like other drugs for cancer. The name scares everyone
Sunnylesser
in
MPN Voice
3 years ago
Taken off Hydrea effects
I was on
Hydrea
for over two years. In the last six months I was also placed on Interferon. First a small amount and now the full the injection. My Hematologist is happy with my results and has taken me off
Hydrea
. It has only been 7 days but feeling very fatigue and can't sleep..
I was on
Hydrea
for over two years. In the last six months I was also placed on Interferon. First a small amount and now the full the injection. My Hematologist is happy with my results and has taken me off
Hydrea
. It has only been 7 days but feeling very fatigue and can't sleep..
vegas22
in
MPN Voice
3 years ago
Leaving Pegasys behind
I have just started on
Hydrea
and have to admit I’m still feeling anxious. I’ve not had any medication for last 3-4 weeks and have been feeling much better so am hoping for limited side effects.
I have just started on
Hydrea
and have to admit I’m still feeling anxious. I’ve not had any medication for last 3-4 weeks and have been feeling much better so am hoping for limited side effects.
Ellipops
in
MPN Voice
3 years ago
Phlebotomy and reducing counts
I was started on
hydrea
a baby aspirin and phlebotomy every 2 weeks. I thought my blood counts would come down very quickly but it’s only gone down 1 point . I am fearful they will want to increase the
hydrea
............ If anyone has some words of wisdom it would be appreciated!
I was started on
hydrea
a baby aspirin and phlebotomy every 2 weeks. I thought my blood counts would come down very quickly but it’s only gone down 1 point . I am fearful they will want to increase the
hydrea
............ If anyone has some words of wisdom it would be appreciated!
Sunnylesser
in
MPN Voice
3 years ago
Covid-19 Antibody Test
I started
Hydrea
2 weeks after the second shot. I just had an antibody test. The result was 886 U/ml. A positive result was .8 U/ml or higher. I assume I had a good result. I hope I’m correct. If anyone knows about this, I welcome your input.
I started
Hydrea
2 weeks after the second shot. I just had an antibody test. The result was 886 U/ml. A positive result was .8 U/ml or higher. I assume I had a good result. I hope I’m correct. If anyone knows about this, I welcome your input.
Dan73
in
MPN Voice
3 years ago
Hydrea etc
I did read somewhere that when you reach 60 you are offered
Hydrea
or other drugs, because you are more prone to clots, due to age. I'm now 65 and nothing mentioned. Could it be because I'm JAK2 negative.
I did read somewhere that when you reach 60 you are offered
Hydrea
or other drugs, because you are more prone to clots, due to age. I'm now 65 and nothing mentioned. Could it be because I'm JAK2 negative.
mark382
in
MPN Voice
3 years ago
I haven't written in awhile
I started aspirin and not long after that
Hydrea
. I'm not having any issues with
Hydrea
, just don't like taking it. I started having issues with with my colon. Two weeks ago I had to have surgery for severe diverticulitis. I've been through alot with this miserable stuff.
I started aspirin and not long after that
Hydrea
. I'm not having any issues with
Hydrea
, just don't like taking it. I started having issues with with my colon. Two weeks ago I had to have surgery for severe diverticulitis. I've been through alot with this miserable stuff.
Wilma66
in
MPN Voice
3 years ago
Should Hydrea lower my WBC’s?
I have ET JAK2+ on
Hydrea
. My platelets have lowered but not WBC’s.
I have ET JAK2+ on
Hydrea
. My platelets have lowered but not WBC’s.
Wewo01
in
MPN Voice
3 years ago
Maz: For those of us on Hydrea
Maz, I wonder if you could get some clarification from Professor Claire Harrison on the risk of Leukemic progression in the long term use of
hydrea
. I ask this question due to a reply from ‘Hunter’ to ‘Bobthecob’ on the forum. ‘The increased risk of Leukemic progression is also [i]now known[/i].
Maz, I wonder if you could get some clarification from Professor Claire Harrison on the risk of Leukemic progression in the long term use of
hydrea
. I ask this question due to a reply from ‘Hunter’ to ‘Bobthecob’ on the forum. ‘The increased risk of Leukemic progression is also [i]now known[/i].
mhos61
in
MPN Voice
3 years ago
Side effects from Drugs
After 15 years with ET I am having effects from something ( Hydroxy, covid, covid booster or maybe just the ET itself ) After starting back on
Hydrea
3 days ago I was starting to feel much better.
After 15 years with ET I am having effects from something ( Hydroxy, covid, covid booster or maybe just the ET itself ) After starting back on
Hydrea
3 days ago I was starting to feel much better.
MDI55
in
MPN Voice
3 years ago
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