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Hydrea
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PV and eosiniphilia
Been on
hydrea
for 6 months. Got my white and red bloods counts done but still high eosiniphils?
Been on
hydrea
for 6 months. Got my white and red bloods counts done but still high eosiniphils?
spikesnana
in
MPN Voice
10 years ago
Post to Lizziep-How are you doing?
Hello, Was reading your old post of approx. 6 mos. ago, explaining your reduction in taking the Hu (
hydrea
) results taking 2-500mg 5 days & 3-500mg 2days making a total of 8.000mg & reducing your count from ll60 to 385. What is your present count & and has your mg of Hu been changed since then?
Hello, Was reading your old post of approx. 6 mos. ago, explaining your reduction in taking the Hu (
hydrea
) results taking 2-500mg 5 days & 3-500mg 2days making a total of 8.000mg & reducing your count from ll60 to 385. What is your present count & and has your mg of Hu been changed since then?
Hidden
in
MPN Voice
10 years ago
Breathing Problems
Since very hot and humid weather,I am having breathing problems,I have P V,meds
Hydrea
,Isoptine,Asprin have inhalers for asthma which do not help,previously always controlled and never a problem.Does any one else experience this?
Since very hot and humid weather,I am having breathing problems,I have P V,meds
Hydrea
,Isoptine,Asprin have inhalers for asthma which do not help,previously always controlled and never a problem.Does any one else experience this?
Inca
in
MPN Voice
10 years ago
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Vertigo
I have been taking 500 mg of
hydrea
. I now have vertigo. Has anyone had this happen to them? Could it be from the meds?
I have been taking 500 mg of
hydrea
. I now have vertigo. Has anyone had this happen to them? Could it be from the meds?
spikesnana
in
MPN Voice
10 years ago
ET
I have been treated with
Hydrea
since diagnosis and do have AFib, high BP, Hypertensive heart, CHF at times, a high risk for both heart attack and stroke, therefor my Cardiologist has me on Xarelto as well.
I have been treated with
Hydrea
since diagnosis and do have AFib, high BP, Hypertensive heart, CHF at times, a high risk for both heart attack and stroke, therefor my Cardiologist has me on Xarelto as well.
jenraey
in
MPN Voice
10 years ago
Treatment for PV in France
For the past twelve months I have been treated in France as we are now resident here, but I have some concerns: treatment is
Hydrea
2x daily which has reduced my leucocyte and platelet counts well, but failed to control the haematocrit.
For the past twelve months I have been treated in France as we are now resident here, but I have some concerns: treatment is
Hydrea
2x daily which has reduced my leucocyte and platelet counts well, but failed to control the haematocrit.
lucieboo
in
MPN Voice
10 years ago
Anagrelide
How many of you take Anagrelide, I do 8 a day, I'm 43 have ET since 2012, I hear so many stories about this drug it's very worrying,
hydrea
made me severely poorly, I felt like I was dying taking it, it rot my gums badly, I couldn't move without going dizzy, my whole body was hurting, moving an arm was
How many of you take Anagrelide, I do 8 a day, I'm 43 have ET since 2012, I hear so many stories about this drug it's very worrying,
hydrea
made me severely poorly, I felt like I was dying taking it, it rot my gums badly, I couldn't move without going dizzy, my whole body was hurting, moving an arm was
Purplelisa
in
MPN Voice
10 years ago
The Dr increased my hydrea to 1000 mg per day. I feel nauses all the time. Any advise as to what would help. Too bad no weight loss.
spikesnana
in
MPN Voice
10 years ago
I'm on my 3rd week of hydrea. I'm so tired. Is there anything that may help. I'm still working Full time and I try to exercise as much as po
spikesnana
in
MPN Voice
10 years ago
platelets are normal have high red and white cells also eosonphil level are over 50 I heard to only take hydrea if platelets are over 1000
spikesnana
in
MPN Voice
10 years ago
New to group. Thanks for the connection. I have ET. I was diagnosed in 2008. I was on just aspirin then I tried TCM herbs and acupuncture .
TCM Herbs and acupuncture was slowly showing results but my doc convinced I go on
Hydrea
14 months ago. I was worried before
Hydrea
! now I have a number of side effects that are strongly effecting my life negatively BUT my platelets look great....toss up which side of this coin is better...
TCM Herbs and acupuncture was slowly showing results but my doc convinced I go on
Hydrea
14 months ago. I was worried before
Hydrea
! now I have a number of side effects that are strongly effecting my life negatively BUT my platelets look great....toss up which side of this coin is better...
Nirbhebe
in
MPN Voice
10 years ago
Husband 3 months in polycaethemia vera on Hydera and aspirin only. Now getting pins and needles in arms, anyone else had anything similar
Is this just the pvr or side effect of
hydrea
Is this just the pvr or side effect of
hydrea
Headinthesand
in
MPN Voice
11 years ago
Diabatic for about 37 years peripheral nuropathy pain in foots & taking insulin
Mega-3 three times after food and
Hydrea
500 after dinner and also taking fenugreek seeds/3times/ 25gms just before food Walking 45 min.in the morning Food: Breakfast - boiled egg white-1, Chappathi/Dosai-1 and veg.salad. Lunch-50 gms rice with 2 vegetables 100 grms, curd.
Mega-3 three times after food and
Hydrea
500 after dinner and also taking fenugreek seeds/3times/ 25gms just before food Walking 45 min.in the morning Food: Breakfast - boiled egg white-1, Chappathi/Dosai-1 and veg.salad. Lunch-50 gms rice with 2 vegetables 100 grms, curd.
omsri
in
Diabetes India
11 years ago
Shingles and Depressed
I was taken off
hydrea
and put on anti -virus for a week. I am so sick and tired of being in pain that my head is spinning. Noone I know can relate to what I'm going through, I want to be a hermit. I am cranky all the time. I feel so bad for my kids, they don't deserve a sick mom.
I was taken off
hydrea
and put on anti -virus for a week. I am so sick and tired of being in pain that my head is spinning. Noone I know can relate to what I'm going through, I want to be a hermit. I am cranky all the time. I feel so bad for my kids, they don't deserve a sick mom.
BlessedWithSix
in
MPN Voice
12 years ago
Do you suffer from quick onset headaches? I often get a constant pain in my head that feels like a nail is being pushed in. I have ET.
The headaches started before
Hydrea
but became worse after on the med for a year.
The headaches started before
Hydrea
but became worse after on the med for a year.
BlessedWithSix
in
MPN Voice
12 years ago
Can anyone given me any advice re; Interferon
I am due to start interferon meds very soon due to unstable counts on
hydrea
, the Hem has warned me I am in for a period of ajustment which maybe very difficult in parts due to side effects - I would be very grateful if anyone can share their experiences on this med, I guess I need to know how bad it
I am due to start interferon meds very soon due to unstable counts on
hydrea
, the Hem has warned me I am in for a period of ajustment which maybe very difficult in parts due to side effects - I would be very grateful if anyone can share their experiences on this med, I guess I need to know how bad it
Marie95
in
MPN Voice
12 years ago
Very often urinate during night and day
I'm on
Hydrea
Have anybody same symptoms, knows the causes and how to proceed for a normal urinate sure according with liquids drank.
I'm on
Hydrea
Have anybody same symptoms, knows the causes and how to proceed for a normal urinate sure according with liquids drank.
cata
in
MPN Voice
12 years ago
Has anyone been on meds for over 10 years ?
told me right from the beginning that my ET probably wouldn't kill me - but being on
Hydrea
'long term' would - his opinion was that if the condition itself hadn't turned into Chronic Myeloid Leukemia (CML) within 30 years, then the
Hydrea
would have caused it.
told me right from the beginning that my ET probably wouldn't kill me - but being on
Hydrea
'long term' would - his opinion was that if the condition itself hadn't turned into Chronic Myeloid Leukemia (CML) within 30 years, then the
Hydrea
would have caused it.
ourlife
in
MPN Voice
12 years ago
Does anyone eith ET have feet pain?
Been on
Hydrea
2.5 years. Could this be a side effect.
Been on
Hydrea
2.5 years. Could this be a side effect.
BlessedWithSix
in
MPN Voice
12 years ago
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