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Hydrea
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Hi everyone I have ET and I am on
Hydrea
and Asprin has anyone been told they can not fly anywhere
Hi everyone I have ET and I am on
Hydrea
and Asprin has anyone been told they can not fly anywhere
Windy51
in
MPN Voice
4 years ago
Calcium
Hi when on
Hydrea
are we supposed to take Calcium tablets please and I must do magnesium again for cramps I just heard somewhere is anyone on them please 🙂
Hi when on
Hydrea
are we supposed to take Calcium tablets please and I must do magnesium again for cramps I just heard somewhere is anyone on them please 🙂
Windy51
in
MPN Voice
4 years ago
Getting wisdom teeth pulled
I was wondering if it’s ok to have your wisdom teeth pulled when you have ET and are taking
Hydrea
? Thank you
I was wondering if it’s ok to have your wisdom teeth pulled when you have ET and are taking
Hydrea
? Thank you
0224
in
MPN Voice
4 years ago
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Monocytes and PVC
Monocytes have increased through this year from zero to now 1817/mm3: I have PVC, on
Hydrea
2x daily, no idea why this has happened, nor has doc. Anyone have any info on this? My RBCs are well controlled but leucocytes fairly high. I have no infection. Am I moving on to Leukaemia?
Monocytes have increased through this year from zero to now 1817/mm3: I have PVC, on
Hydrea
2x daily, no idea why this has happened, nor has doc. Anyone have any info on this? My RBCs are well controlled but leucocytes fairly high. I have no infection. Am I moving on to Leukaemia?
lucieboo
in
MPN Voice
4 years ago
PCV and Monocytes
I have had PCV for nearly 11 years, well controlled with
Hydrea
, re. haematocrit, red blood corpuscles, but the white cell level has gradually increased and this year Monocytes have gone from zero to a quite alarming level, now 1817/mm3. No idea why and the doc doesn't know either. Is it a problem?
I have had PCV for nearly 11 years, well controlled with
Hydrea
, re. haematocrit, red blood corpuscles, but the white cell level has gradually increased and this year Monocytes have gone from zero to a quite alarming level, now 1817/mm3. No idea why and the doc doesn't know either. Is it a problem?
lucieboo
in
MPN Voice
4 years ago
ITCHING and PV
I have had Polycythemia Vera for 11 years controlled with
Hydrea
2xdaily, only my leucocyte count keeps going up and Monocytes are off the scale, just up and up this year, no-one can tell me why. I have also developed IBS.
I have had Polycythemia Vera for 11 years controlled with
Hydrea
2xdaily, only my leucocyte count keeps going up and Monocytes are off the scale, just up and up this year, no-one can tell me why. I have also developed IBS.
lucieboo
in
MPN Voice
3 years ago
From anisocytosis to light, moderate and now severe macrocytosis after 6 months on Hydrea (1000mg daily) for ET Jak2. Help, please!
I've sent him several emails (thank God for Google Translate) and had to really chase him up recently for another prescription for
Hydrea
. I only noticed tonight, after receiving my latest blood test results online, the words 'forte [strong] macrocytose'.
I've sent him several emails (thank God for Google Translate) and had to really chase him up recently for another prescription for
Hydrea
. I only noticed tonight, after receiving my latest blood test results online, the words 'forte [strong] macrocytose'.
Fernsong
in
MPN Voice
4 years ago
Night sweats
Hi I’m on
Hydrea
with ET does anyone get night sweats
Hi I’m on
Hydrea
with ET does anyone get night sweats
Windy51
in
MPN Voice
4 years ago
Hydrea caps
Hi everyone I started taking
Hydrea
last Saturday 500 mg a day I want to know what is the best time on the day to take it ? And what are the most common side effects? Thank you in advance.
Hi everyone I started taking
Hydrea
last Saturday 500 mg a day I want to know what is the best time on the day to take it ? And what are the most common side effects? Thank you in advance.
Tcperez
in
MPN Voice
4 years ago
ET ( Jack 2 )
Hydrea
last nigh Any suggestions?
Hydrea
last nigh Any suggestions?
Tcperez
in
MPN Voice
4 years ago
Mouth sores
Hi again friends, So I've been on hydroxurea for over a month now 2 /500mg daily I'm not sure if it's the meds or the mask we have to wear now but I'm starting to experience mouth sores Is this a side effect of
hydrea
? If so any recommendations to help ? Thank you 😊
Hi again friends, So I've been on hydroxurea for over a month now 2 /500mg daily I'm not sure if it's the meds or the mask we have to wear now but I'm starting to experience mouth sores Is this a side effect of
hydrea
? If so any recommendations to help ? Thank you 😊
Lorid68
in
MPN Voice
4 years ago
Blood clots
Hi everyone I have had the pain in my back for awhile my Doctor sent me for a chest X-Ray today I had a canular in with dye to see if I have a clot I hope not I go back next week I got a good report from my last blood test I had around 890 in platelets I am on 1000mg a day of
Hydrea
I have gone down
Hi everyone I have had the pain in my back for awhile my Doctor sent me for a chest X-Ray today I had a canular in with dye to see if I have a clot I hope not I go back next week I got a good report from my last blood test I had around 890 in platelets I am on 1000mg a day of
Hydrea
I have gone down
Windy51
in
MPN Voice
4 years ago
New here!
I’m off
Hydrea
now to let my counts stabilize and I will get another FBC next week to see what’s happening. I have been very fortunate that I haven’t really had any negative side effects from
Hydrea
other than hair thinning and some fatigue, which could also be related to age...Lol.!
I’m off
Hydrea
now to let my counts stabilize and I will get another FBC next week to see what’s happening. I have been very fortunate that I haven’t really had any negative side effects from
Hydrea
other than hair thinning and some fatigue, which could also be related to age...Lol.!
lunasurf
in
MPN Voice
4 years ago
Hydrea
started a blood pressure tablet I have blood tests every month at the moment so I feel
Hydrea
has helped me even though I hate the thought of taking this poison hope all are ok I find this sight so comforting because there is no one that understands what we are all going through 🙂
started a blood pressure tablet I have blood tests every month at the moment so I feel
Hydrea
has helped me even though I hate the thought of taking this poison hope all are ok I find this sight so comforting because there is no one that understands what we are all going through 🙂
Windy51
in
MPN Voice
4 years ago
Hydrea
It just got worse on
Hydrea
. And have decided to start an excercise program designed for seniors to see if that also helps.
It just got worse on
Hydrea
. And have decided to start an excercise program designed for seniors to see if that also helps.
Scrollernut
in
MPN Voice
4 years ago
Windy51
Hi I’m on
Hydrea
has anyone noticed a change in there complexion I have been using for 2 months and it has got pale but looks good I didn’t expect it I hope it stays this way it’s seems clearer it’s weird I thought I was imagining it my my husband said he noticed it too
Hi I’m on
Hydrea
has anyone noticed a change in there complexion I have been using for 2 months and it has got pale but looks good I didn’t expect it I hope it stays this way it’s seems clearer it’s weird I thought I was imagining it my my husband said he noticed it too
Windy51
in
MPN Voice
4 years ago
Interferon and Liver Condition
Its been 5 weeks I have switched to Interferon from
Hydrea
and found out that my SGPT(ALT) and SGOT (AST) is high and increasing rapidly. Anyone faced such thing ? I don’t want to stop interferon. Its working fine and I don’t have any side effects, its just the liver that m worried about.
Its been 5 weeks I have switched to Interferon from
Hydrea
and found out that my SGPT(ALT) and SGOT (AST) is high and increasing rapidly. Anyone faced such thing ? I don’t want to stop interferon. Its working fine and I don’t have any side effects, its just the liver that m worried about.
MrThara
in
MPN Voice
4 years ago
bloodtest
Hi this is Windy51 Jak 2 neg Cal-R neg Whatever it means I had plateletcountof 890 a month ago I was put on
Hydrea
two 500mg a day .I had a blood test yesterday my platelets have gone down to 680 so the tablets are doing the job I feel fine on it I think my pain isn’t as bad but the full blood count
Hi this is Windy51 Jak 2 neg Cal-R neg Whatever it means I had plateletcountof 890 a month ago I was put on
Hydrea
two 500mg a day .I had a blood test yesterday my platelets have gone down to 680 so the tablets are doing the job I feel fine on it I think my pain isn’t as bad but the full blood count
Windy51
in
MPN Voice
4 years ago
Increased meds
Duribg the consult she informed me that my Bloods had increased to 46.3 and that she would arrange a Venesection, my first since going on
Hydrea
. She also said she was increasing the
Hydrea
to 5 days a week Mon to Fri with a break at the weekend. Fingers crossed! Keep well all and stay safe. Garry
Duribg the consult she informed me that my Bloods had increased to 46.3 and that she would arrange a Venesection, my first since going on
Hydrea
. She also said she was increasing the
Hydrea
to 5 days a week Mon to Fri with a break at the weekend. Fingers crossed! Keep well all and stay safe. Garry
redumbrella
in
MPN Voice
4 years ago
Has anyone experienced loss of collagen to the face muscles? Photo included
It was the time I started taking
Hydrea
but it correlates with the time I became very ill with pneumonia. Ironically the worse I feel the more the eyes drop. At first it was the left eye, now it’s the whole face. My GP has done tests, and I have also under gone research to no avail.
It was the time I started taking
Hydrea
but it correlates with the time I became very ill with pneumonia. Ironically the worse I feel the more the eyes drop. At first it was the left eye, now it’s the whole face. My GP has done tests, and I have also under gone research to no avail.
Hidden
in
MPN Voice
4 years ago
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