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Hoyeraal-Hreidarsson syndrome
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**sensitive post** screening results
Hi everyone I had my 12 week scan yesterday and I was very anxious about my screening results and unfortunately I got put into the high risk category for Down syndrome with a 1 in 57 chance, where the national average for my age is 1 in 245. Everything looked normal on the ultrasound, heartbeat was
Hi everyone I had my 12 week scan yesterday and I was very anxious about my screening results and unfortunately I got put into the high risk category for Down syndrome with a 1 in 57 chance, where the national average for my age is 1 in 245. Everything looked normal on the ultrasound, heartbeat was
Sukibubs
in
Fertility Network UK
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome' "
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
LUPUS UK
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome"
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
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Anyone else have painful knee joints after prolonged ICU stay?
I spent a month in ICU and was intubated most of the time through a tracheostomy (due to double pneumonia caused by Legionnaire's Disease). I also spend a considerable amount of that time in an induced coma and had to relearn walking, hand movements, etc. Two months later I am still suffering from very
I spent a month in ICU and was intubated most of the time through a tracheostomy (due to double pneumonia caused by Legionnaire's Disease). I also spend a considerable amount of that time in an induced coma and had to relearn walking, hand movements, etc. Two months later I am still suffering from very
holdtheprozac
in
ICUsteps
3 years ago
Hypoxia?
I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of restless legs is hypoxia. So, enhancing the blood flow by lifestyle that is beneficial to glycocalyx and eNOS, is a cure 😊 Dr Dean Ornish, Campbell
I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of restless legs is hypoxia. So, enhancing the blood flow by lifestyle that is beneficial to glycocalyx and eNOS, is a cure 😊 Dr Dean Ornish, Campbell
kicker2
in
Restless Legs Syndrome
3 years ago
MMC after heartbeat
Hi all, I found out last week my baby stopped growing at 9 weeks 1 day. Up until this point it was spot on for growth, and heart was beating perfectly. I had bleeding in the pregnancy but that was fine and due to it being an FET and not connected to the pregnancy. My question is, when a pregnancy is
Hi all, I found out last week my baby stopped growing at 9 weeks 1 day. Up until this point it was spot on for growth, and heart was beating perfectly. I had bleeding in the pregnancy but that was fine and due to it being an FET and not connected to the pregnancy. My question is, when a pregnancy is
strawberriesandcream
in
Fertility Network UK
3 years ago
Do I really need my fallopian tubes checked?
I was diagnosed with PCOS last year and was told by a gynecologist that I'd need to have a fallopian tube test (HyCoSy) prior to starting ovulation medication (Clomid I believe). I've been waiting 4 months for the test and this month is yet another cycle they're unable to fit me in for! They seem to
I was diagnosed with PCOS last year and was told by a gynecologist that I'd need to have a fallopian tube test (HyCoSy) prior to starting ovulation medication (Clomid I believe). I've been waiting 4 months for the test and this month is yet another cycle they're unable to fit me in for! They seem to
CoralCats
in
Fertility Network UK
3 years ago
Too much fluid around baby??
Hi I am carrying twin boys DCDA, and I went for my first growth scan at 24wks the sonographer told me one of my babies has a little extra fluid I was sent for an early GTT test came back normal.. Haven't heard anything else since. Was wondering if anyone has had the same experience? If so what was the
Hi I am carrying twin boys DCDA, and I went for my first growth scan at 24wks the sonographer told me one of my babies has a little extra fluid I was sent for an early GTT test came back normal.. Haven't heard anything else since. Was wondering if anyone has had the same experience? If so what was the
Sev36
in
Pregnancy and Parenting Support
3 years ago
Ropinirole and Gabapentin
Hi All, I'm 53 and based in the UK. I've had steadily worsening RLS and been taking 2mg of Ropinirole for around 8 years now. Over the last year my symptoms have got a lot worse and in the last couple of months I've developed spasms and jerking, mainly in my right shoulder (I've nearly punched myself
Hi All, I'm 53 and based in the UK. I've had steadily worsening RLS and been taking 2mg of Ropinirole for around 8 years now. Over the last year my symptoms have got a lot worse and in the last couple of months I've developed spasms and jerking, mainly in my right shoulder (I've nearly punched myself
Shaunygee
in
Restless Legs Syndrome
3 years ago
RLS and now apnea
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
grandpianoman
in
Restless Legs Syndrome
3 years ago
Lupus, Sjogrens or something else?
Last December my blood test showed positive ANA titre 1:1000 with dsDNA and histone antibodies which are typical for Lupus. I went to see rheumatologist who said that my symptoms (sinus problems for years etc.) would match to Sjogrens but he still wanted to double check results few months later. Last
Last December my blood test showed positive ANA titre 1:1000 with dsDNA and histone antibodies which are typical for Lupus. I went to see rheumatologist who said that my symptoms (sinus problems for years etc.) would match to Sjogrens but he still wanted to double check results few months later. Last
Nasty_Tony
in
LUPUS UK
3 years ago
Steroids with general anaesthetic
Do I need to double the dose of my steroids (currently 11.5) on the day of hysteroscopy under general anaesthetic and also on the day afterwards? Preop assessment didn't mention it have just been reading around and feel really nervous now. Especially as I've been taking steroids for 21 years.
Do I need to double the dose of my steroids (currently 11.5) on the day of hysteroscopy under general anaesthetic and also on the day afterwards? Preop assessment didn't mention it have just been reading around and feel really nervous now. Especially as I've been taking steroids for 21 years.
maria40
in
PMRGCAuk
3 years ago
Starting Ropinirole as a first med for RLS?
I have had more severe RLS since last March, which is possibly a Long-Covid symptom. So far I have had my iron/ferritin tested. My ferritin was on 25 initially but has gone up to 45 after taking oral iron supplement which I still continue to take. My RSL has not improved much yet though. It is still
I have had more severe RLS since last March, which is possibly a Long-Covid symptom. So far I have had my iron/ferritin tested. My ferritin was on 25 initially but has gone up to 45 after taking oral iron supplement which I still continue to take. My RSL has not improved much yet though. It is still
KassandraTroy
in
Restless Legs Syndrome
3 years ago
NAD IV ? Anyone tried
Is it a cure ? Is there any way to get IV benefit by other means. ? What is the best brand for intra nasal NAD ? R suppositories better ? NR or NMN. What's better.? What boosters (ex Resveratrol) I just want my dad to have DNA repair and have more energy! Thankyou for any guidance . Kind regards
Is it a cure ? Is there any way to get IV benefit by other means. ? What is the best brand for intra nasal NAD ? R suppositories better ? NR or NMN. What's better.? What boosters (ex Resveratrol) I just want my dad to have DNA repair and have more energy! Thankyou for any guidance . Kind regards
Vegegardner
in
Cure Parkinson's
3 years ago
Small lumps on neck
Hi, I noticed 2 small pea sized lumps on the side/back of my neck a few weeks ago. They are soft/rubbery, moveable and not painful. I have Sjogrens, so I am very used to my glands under my jaw & front of my neck swelling up & getting sore when I'm tired or in a flare, but this is different as they don't
Hi, I noticed 2 small pea sized lumps on the side/back of my neck a few weeks ago. They are soft/rubbery, moveable and not painful. I have Sjogrens, so I am very used to my glands under my jaw & front of my neck swelling up & getting sore when I'm tired or in a flare, but this is different as they don't
Tempname
in
LUPUS UK
3 years ago
Anyone else with EDS have severe asthma?
I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar
I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar
WheezyZebra
in
Ehlers-Danlos Support UK
3 years ago
RLS and Magnesium
Has anyone experienced this? I started taking Magnesium for my RLS but each time I take it I get terrible cramps in my legs and toes several times a night. Yet Magnesium is used to get rid of cramp. I am not subject to cramp normally. Perhaps it’s the same mechanism as Homeopathic remedies whereby a
Has anyone experienced this? I started taking Magnesium for my RLS but each time I take it I get terrible cramps in my legs and toes several times a night. Yet Magnesium is used to get rid of cramp. I am not subject to cramp normally. Perhaps it’s the same mechanism as Homeopathic remedies whereby a
Bruxelles
in
Restless Legs Syndrome
3 years ago
Any thoughts here?
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
RCHD
in
Restless Legs Syndrome
3 years ago
Codeine
I have been taking one 15mg codeine phosphate before bed and I have slept all night with no restless legs.
I have been taking one 15mg codeine phosphate before bed and I have slept all night with no restless legs.
Bridall
in
Restless Legs Syndrome
3 years ago
Postnatal thyroiditis ??? Test results
Hi im looking for some help. I have been getting thyroid symptoms for many years on and off never have I been medicated. I have had 4 children in 5 years and become unwel after giving birth with my previous children but I had my little boy 10 weeks ago and 6 weeks ago I became ill with all thyroid
Hi im looking for some help. I have been getting thyroid symptoms for many years on and off never have I been medicated. I have had 4 children in 5 years and become unwel after giving birth with my previous children but I had my little boy 10 weeks ago and 6 weeks ago I became ill with all thyroid
Youngandbroken
in
Thyroid UK
3 years ago
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