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Signing off, happy New Year to all
Hi all, didn't want to leave this site without saying goodbye and wishing everyone all the very best for the coming New Year.The last year has been intense for me and looks to continue in the same vein into 2024 and as I haven't posted/ commented for so long it's become obvious to me that I simply
Hi all, didn't want to leave this site without saying goodbye and wishing everyone all the very best for the coming New Year.The last year has been intense for me and looks to continue in the same vein into 2024 and as I haven't posted/ commented for so long it's become obvious to me that I simply
Hidden
in
Macular Society
7 months ago
vitamin deficiencies
I had most of my sigmoid removed because of diverticulitis five years ago. My question is my surgeon said that it should not affect my vitamin or mineral intake because the sigmoid doesn’t involve that. Got on finding that it most certainly does I get a B12 injection because I’m a vegetarian so that
I had most of my sigmoid removed because of diverticulitis five years ago. My question is my surgeon said that it should not affect my vitamin or mineral intake because the sigmoid doesn’t involve that. Got on finding that it most certainly does I get a B12 injection because I’m a vegetarian so that
Gardeningbuff
in
Bowel Disease Support
4 months ago
Promising (maybe for PCa): World’s First Allogenic mRNA CAR-T Treatment for Solid Tumor by Ever Supreme Bio Technology, Phase 1 started.
The world's first to use mRNA electroporation technology, enhancing product safety. The world's first to use artificial intelligence to identify Target HLA-G, employing AI to identify critical tumor targets of human leukocyte antigen-G (HLA-G). The technology, “Allogeneic Non-viral Gene-Edited Multi-targeted
The world's first to use mRNA electroporation technology, enhancing product safety. The world's first to use artificial intelligence to identify Target HLA-G, employing AI to identify critical tumor targets of human leukocyte antigen-G (HLA-G). The technology, “Allogeneic Non-viral Gene-Edited Multi-targeted
Maxone73
in
Advanced Prostate Cancer
7 months ago
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Has anyones Endo returning after hysterectomy?
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
Jasmin24
in
Endometriosis UK
7 months ago
Low B12 levels
it’s not an area I know much about with a B12 level of 433 (187-833) would I qualify for B12 injections?
it’s not an area I know much about with a B12 level of 433 (187-833) would I qualify for B12 injections?
Bollieforme
in
Thyroid UK
4 months ago
still confused about my iron results
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
Mazes
in
Thyroid UK
4 months ago
Is Cold Water Therapy (cold plunge) for metastasis to bones or lymph nodes beneficial or harmful?? Slow progression?
Any insight would be greatly appreciated. TA??
Any insight would be greatly appreciated. TA??
Longterm101
in
Advanced Prostate Cancer
6 months ago
Xeloda
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
YogaGRL52
in
SHARE Metastatic Breast Cancer
7 months ago
Biopsy Results
Hi all, went to clinic today and as I suspected, my adenoid cystic carcinoma has metastersised to my lungs. I am told I am being refered to the head & neck cancer in Liverpool where I sent 21yrs ago! Still no idea of treatment until I go for my appointment whenever that may be! Frustrating 3 months on
Hi all, went to clinic today and as I suspected, my adenoid cystic carcinoma has metastersised to my lungs. I am told I am being refered to the head & neck cancer in Liverpool where I sent 21yrs ago! Still no idea of treatment until I go for my appointment whenever that may be! Frustrating 3 months on
Mindini1964
in
The Roy Castle Lung Cancer Foundation
7 months ago
AML update
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Otterfield
in
MPN Voice
7 months ago
Scared and Frustrated
The beginning of February i thought i had the beginnings of maybe a stomach bug. Bloating, gas, sudden urge and need to use the bathroom.... only nothing would come, just mucus and very very small amounts if unformed fluff. This continued till I noticed i hadn't had a real movement for nearly two weeks
The beginning of February i thought i had the beginnings of maybe a stomach bug. Bloating, gas, sudden urge and need to use the bathroom.... only nothing would come, just mucus and very very small amounts if unformed fluff. This continued till I noticed i hadn't had a real movement for nearly two weeks
Tummytroubles1
in
Colon Cancer Connected
4 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
3 months ago
Does biopsy spread cancer?
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
Eadgbe
in
Prostate Cancer Network
7 months ago
Maybe an alternative to Nattokinase et al, though not yet
Free link to WSJ article https://www.wsj.com/health/pharma/blood-thinners-prevent-clots-bleeding-abd9fdae?st=ofx7h2a2im27x9c&reflink=desktopwebshare_permalink I will study later, but the chemistry is probably beyond me and, anyway, it is not yet available. Factor XI, it turns out, is crucial for
Free link to WSJ article https://www.wsj.com/health/pharma/blood-thinners-prevent-clots-bleeding-abd9fdae?st=ofx7h2a2im27x9c&reflink=desktopwebshare_permalink I will study later, but the chemistry is probably beyond me and, anyway, it is not yet available. Factor XI, it turns out, is crucial for
cigafred
in
Fight Prostate Cancer
4 months ago
Anal fissure
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Dubher
in
IBS Network
4 months ago
Help I don’t understand
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
Jadaboo4
in
LUPUS UK
3 months ago
Adding Kisqali to Letrozale treatment
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
mimosa412
in
SHARE Metastatic Breast Cancer
7 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Prostate Cancer Network
7 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now.
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
Docetaxel not working so stopped
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
Benkaymel
in
Advanced Prostate Cancer
7 months ago
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