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CDK12 gene mutation
My husband continues to be hormone sensitive but Sept. 4, 2023 he developed intense and unrelenting pain in his right mandible. The oncologist and palliative care nurse prescribed morphine and dilaudid to help reduce the pain. These pain meds are helping although he can still feel pain and gets breakthrough
My husband continues to be hormone sensitive but Sept. 4, 2023 he developed intense and unrelenting pain in his right mandible. The oncologist and palliative care nurse prescribed morphine and dilaudid to help reduce the pain. These pain meds are helping although he can still feel pain and gets breakthrough
Decktime
in
Advanced Prostate Cancer
6 months ago
Last vitamin results
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
Thywotsit
in
Thyroid UK
3 months ago
Inulin pre-biotic - bowels/stomach restoration aid
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Danielj1
in
Thyroid UK
6 months ago
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Just completed a whole gland TULSA procedure
This was salvage treatment after failure of SBRT by MRIdian in Mar 2020.PSA nadir after SBRT was 2.4 and it rose to 5.3 just 3 years later, when a PSMA scan showed 2 possible tumours within the gland. A subsequent biopsy confirmed local tumour recurrence with Gleason 4+4. Interventional radiotherapy
This was salvage treatment after failure of SBRT by MRIdian in Mar 2020.PSA nadir after SBRT was 2.4 and it rose to 5.3 just 3 years later, when a PSMA scan showed 2 possible tumours within the gland. A subsequent biopsy confirmed local tumour recurrence with Gleason 4+4. Interventional radiotherapy
Packidge
in
Advanced Prostate Cancer
6 months ago
Can I radiate a tumor mass abutting rectum wall & bladder wall on prostate bed?
RP w/ PLNR 03/2023 PSA RISING Nov 7, 2023 0.11ng/mL <=3.99 ng/mL Oct 10, 2023 0.09ng/mL <=3.99 ng/mL Sep 7, 2023 <0.06ng/mL <=3.99 ng/mL Aug 8, 2023 <0.06ng/mL <=3.99 ng/mL Jul 6, 2023 <0.06ng/mL <=3.99 ng/mL Isn’t it difficult to radiate a mass on prostate
RP w/ PLNR 03/2023 PSA RISING Nov 7, 2023 0.11ng/mL <=3.99 ng/mL Oct 10, 2023 0.09ng/mL <=3.99 ng/mL Sep 7, 2023 <0.06ng/mL <=3.99 ng/mL Aug 8, 2023 <0.06ng/mL <=3.99 ng/mL Jul 6, 2023 <0.06ng/mL <=3.99 ng/mL Isn’t it difficult to radiate a mass on prostate
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
1 month ago
Gastric endo - help!
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
applebird
in
Endometriosis UK
3 months ago
High Folate with PA terrible GP
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
EllaNore
in
Pernicious Anaemia Society
3 months ago
Lutetium 177 for "early" grade 4 pc or amino acid suppression ?
Dear All,It's a story of two brothers in the uk. Older brother was identified with 4+5 pc. His urologist recommended that any sibling be tested for pc. I did so and it was discovered that I had 3+4 pc. Older brother , via our national health care system, NHS, has systemic treatment ( chemo and hormone
Dear All,It's a story of two brothers in the uk. Older brother was identified with 4+5 pc. His urologist recommended that any sibling be tested for pc. I did so and it was discovered that I had 3+4 pc. Older brother , via our national health care system, NHS, has systemic treatment ( chemo and hormone
Wishyouwerehere
in
Prostate Cancer Network
6 months ago
Continuing my journey, rectal spacer and fiducials
Continuing my journey…..first a quick recap. Had a TRUS biopsy at the end of September. Left Base 4+3=7,percentage of pattern 4: 50-75% Tumor involves 17% of overall specimen (1 of 2 cores). Perineural invasion is identified. Left mid, 3+3=6, Tumor involves 6% of overall specimen (1 of 2 cores). Most
Continuing my journey…..first a quick recap. Had a TRUS biopsy at the end of September. Left Base 4+3=7,percentage of pattern 4: 50-75% Tumor involves 17% of overall specimen (1 of 2 cores). Perineural invasion is identified. Left mid, 3+3=6, Tumor involves 6% of overall specimen (1 of 2 cores). Most
ToolBeltZia
in
Prostate Cancer Network
6 months ago
Post ablation tubal sterilisation syndrome (PATTS)
Has anyone else had both of these surgeries and gone on to have excruciating pain? During my surgery they found endometriosis and I've since had an MRI and CT scan (as well as lots of useless ultrasounds that find nothing). I've been diagnosed with deep infiltrating endo on ovaries, peritoneum and bowel
Has anyone else had both of these surgeries and gone on to have excruciating pain? During my surgery they found endometriosis and I've since had an MRI and CT scan (as well as lots of useless ultrasounds that find nothing). I've been diagnosed with deep infiltrating endo on ovaries, peritoneum and bowel
MalachiteAli
in
Endometriosis UK
3 months ago
NAC with ferritin deficiency or PA
Hi all. Just thought I’d pop in and ask my new friends if they know of any reason NAC shouldn’t be taken with iron tablets or B12, or whether NAC could actually have a negative effect on ferritin/B12 levels. Can’t find any info on this, so here I am 😊 I am awaiting latest blood results, so don’t
Hi all. Just thought I’d pop in and ask my new friends if they know of any reason NAC shouldn’t be taken with iron tablets or B12, or whether NAC could actually have a negative effect on ferritin/B12 levels. Can’t find any info on this, so here I am 😊 I am awaiting latest blood results, so don’t
MLJ2024
in
Pernicious Anaemia Society
3 months ago
Anaemia
Hello gorgeous women. Photo is just for the cuteness level. My little girl, Stevie. NOTE: THIS POST IS FROM FRIDAY 17TH NOVEMBER. I’M GETTING ASSESSED FOR THE TRAIL TODAY. 20/11/23 I PROMISE I WILL UPDATE EVERYONE. It’s me again, Chris. From Oz. Having a little bit of a teary tonight. Feeling
Hello gorgeous women. Photo is just for the cuteness level. My little girl, Stevie. NOTE: THIS POST IS FROM FRIDAY 17TH NOVEMBER. I’M GETTING ASSESSED FOR THE TRAIL TODAY. 20/11/23 I PROMISE I WILL UPDATE EVERYONE. It’s me again, Chris. From Oz. Having a little bit of a teary tonight. Feeling
Timtam56
in
SHARE Metastatic Breast Cancer
6 months ago
consultant Gastroenterologist
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
Doris11
in
Pernicious Anaemia Society
2 months ago
Will I be able to Radiate Prostate Bed Fossa, mass is abutting rectum and bladder?
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
Shorehousejam
in
Fight Prostate Cancer
6 months ago
Suspected IBS
I've had IBS symptoms for about 15 years. At first I thought it was intolerance to a few foods, and cutting those out seemed to help. But the symptoms seem to get worse and more frequent as I age. I am now 42 and get scared to go out to eat or be in the office all day (thankfully I WFH 4 days a week)
I've had IBS symptoms for about 15 years. At first I thought it was intolerance to a few foods, and cutting those out seemed to help. But the symptoms seem to get worse and more frequent as I age. I am now 42 and get scared to go out to eat or be in the office all day (thankfully I WFH 4 days a week)
Gaia_1
in
IBS Network
3 months ago
Smear test problems
So I went for a smear on Tuesday and it was pretty awful. She couldn't find my cervix and I was bleeding (because I'm always bleeding). She tried all different sizes and had me lying on my side at one point but no joy. She said I'd have to come back in 6 weeks. Has anyone else had problems with smears
So I went for a smear on Tuesday and it was pretty awful. She couldn't find my cervix and I was bleeding (because I'm always bleeding). She tried all different sizes and had me lying on my side at one point but no joy. She said I'd have to come back in 6 weeks. Has anyone else had problems with smears
Sunset-lady
in
Endometriosis UK
6 months ago
Need Help With Results From Blood Test
Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue. Also had a red rash under both of my eyes.My GP ordered blood work and my platelets were high, iron low, protein and
Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue. Also had a red rash under both of my eyes.My GP ordered blood work and my platelets were high, iron low, protein and
Jadaboo4
in
LUPUS UK
2 months ago
First line of treatment
Well, I finally got to see my oncologist at Fred Hutchinson cancer center today. And finally a treatment plan! This all took time because I moved from South Carolina to Seattle for cancer treatment and to be with my kids. My oncologist was grateful I had done all the tests and biopsies prior to my appointment
Well, I finally got to see my oncologist at Fred Hutchinson cancer center today. And finally a treatment plan! This all took time because I moved from South Carolina to Seattle for cancer treatment and to be with my kids. My oncologist was grateful I had done all the tests and biopsies prior to my appointment
monkeygirl62
in
SHARE Metastatic Breast Cancer
6 months ago
Generic B12-symptoms news article
Occasionally I see what I call a generic news article on issues pertaining to B12 deficiency. Typically the articles are not very good, misrepresenting some things, wrong about other things, and so forth. So I was surprised today when I saw one that is not so bad. Sure, it could be better, could be more
Occasionally I see what I call a generic news article on issues pertaining to B12 deficiency. Typically the articles are not very good, misrepresenting some things, wrong about other things, and so forth. So I was surprised today when I saw one that is not so bad. Sure, it could be better, could be more
WiscGuy
in
Pernicious Anaemia Society
3 months ago
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