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Just diagnosed not worried ❤
Hi friends....well i am in this special group by chance i went for a hearing test which progressed to being fitted for an aid ...but ENT dept stepped in and i had an MRI which showed a 2cm diameter AN sat there smiling at us on the mri pics ....so im on this journey too...i wish you all good luck in
Hi friends....well i am in this special group by chance i went for a hearing test which progressed to being fitted for an aid ...but ENT dept stepped in and i had an MRI which showed a 2cm diameter AN sat there smiling at us on the mri pics ....so im on this journey too...i wish you all good luck in
Klatu
in
Acoustic Neuroma Support
5 years ago
Help needed
Hello I have had tinnitus now since last October I didn’t understand what it was when it started as came on suddenly I even know the date.it started off mild and I eventually got an appointment last Tuesday at ENT at the freeman hospital in Newcastle, I saw consultant and she asked how it was well at
Hello I have had tinnitus now since last October I didn’t understand what it was when it started as came on suddenly I even know the date.it started off mild and I eventually got an appointment last Tuesday at ENT at the freeman hospital in Newcastle, I saw consultant and she asked how it was well at
Jan87
in
Tinnitus UK
5 years ago
Neuromod
Hi all. I have now reluctantly cancelled my appointment with Neuromod next month. After several hearing tests which are all different, most show I have two lower range frequencies losses in one ear which are at 42.5/45 DB. Neuromod have confirmed that this definitely rules me out. I was going to chance
Hi all. I have now reluctantly cancelled my appointment with Neuromod next month. After several hearing tests which are all different, most show I have two lower range frequencies losses in one ear which are at 42.5/45 DB. Neuromod have confirmed that this definitely rules me out. I was going to chance
Dean1405
in
British Tinnitus Association
5 years ago
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Dr Graham RV Hughes Blog: July 2019
The treatment of pregnancy in Hughes Syndrome was becoming almost standardised worldwide, with low molecular weight
heparin
, plus or minus aspirin being first choice. The warfarin, if continued, could be changed to
heparin
as soon as the pregnancy test became positive.
The treatment of pregnancy in Hughes Syndrome was becoming almost standardised worldwide, with low molecular weight
heparin
, plus or minus aspirin being first choice. The warfarin, if continued, could be changed to
heparin
as soon as the pregnancy test became positive.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Heparin Dosage
What LMW
Heparin
is Fragmin, Enoxaparin or similar? What dose of LMW or standard
Heparin
is the norm for Hughes?
What LMW
Heparin
is Fragmin, Enoxaparin or similar? What dose of LMW or standard
Heparin
is the norm for Hughes?
riannabri
in
Hughes Syndrome APS Forum
5 years ago
APS - pregnant again after 3 miscarriages
I'm slightly confused if I should start taking
Heparin
Injections from today? My rheumatologist said from pregnancy so not sure plus my follow up appointment is not until 29th July. I wasnt expecting to get pregnant so quickly. I'm already on 75mg of baby Asprin and hydroxychloroquine.
I'm slightly confused if I should start taking
Heparin
Injections from today? My rheumatologist said from pregnancy so not sure plus my follow up appointment is not until 29th July. I wasnt expecting to get pregnant so quickly. I'm already on 75mg of baby Asprin and hydroxychloroquine.
Beepi
in
Hughes Syndrome APS Forum
5 years ago
Update
So went back to onc in Cleveland Wednesday sent me for cat scan found lots of clots both lungs took me by transport to seidman cancer center put on
heparin
and tons of blood work finally released me Sunday now on Lovenox shots twice a day so if you can’t breath push doctors about blood clots feeling
So went back to onc in Cleveland Wednesday sent me for cat scan found lots of clots both lungs took me by transport to seidman cancer center put on
heparin
and tons of blood work finally released me Sunday now on Lovenox shots twice a day so if you can’t breath push doctors about blood clots feeling
library2019
in
SHARE Metastatic Breast Cancer
5 years ago
Taking Imbruvica in Spain
A bit of a spurt after my now regular bloods and similar following my daily
heparin
injection. I also have Thrombophilia and following two major pulmonary embolism last summer was put on Xarelto, but it's incompatible with Imbruvica,so my only other option is daily
heparin
injections.
A bit of a spurt after my now regular bloods and similar following my daily
heparin
injection. I also have Thrombophilia and following two major pulmonary embolism last summer was put on Xarelto, but it's incompatible with Imbruvica,so my only other option is daily
heparin
injections.
Hidden
in
CLL Support
5 years ago
ENT referral
Age 16 I had an ear operation, they cut (?) the eardrum as it was badly scarred from frequent infections. So I’ve always had reduced hearing in left ear though it’s gotten worse recently. Jump forward (am now 56), I tried 2 hearing aids a year ago (private), found no improvement with LE but the aid in
Age 16 I had an ear operation, they cut (?) the eardrum as it was badly scarred from frequent infections. So I’ve always had reduced hearing in left ear though it’s gotten worse recently. Jump forward (am now 56), I tried 2 hearing aids a year ago (private), found no improvement with LE but the aid in
Catsbd
in
deafPLUS
5 years ago
Blood clot tests
Apparently a low dose of
heparin
will be prescribed if I come up positive for anything. These tests are expensive. Wondering if anyone else had such tests and they made a difference? Any experience will be useful to hear about pls.
Apparently a low dose of
heparin
will be prescribed if I come up positive for anything. These tests are expensive. Wondering if anyone else had such tests and they made a difference? Any experience will be useful to hear about pls.
Rainbowhope
in
Fertility Network UK
5 years ago
Update
To all those that wished us well for littleun’s first appointment at the RBH on Monday, I just wanted to let you know the outcome. Her fev1 was down to 47% and she very helpfully brought up some disgusting, blood streaked sputum, at which point our new named consultant phoned the bed manager in front
To all those that wished us well for littleun’s first appointment at the RBH on Monday, I just wanted to let you know the outcome. Her fev1 was down to 47% and she very helpfully brought up some disgusting, blood streaked sputum, at which point our new named consultant phoned the bed manager in front
Hidden
in
Lung Conditions Community Forum
5 years ago
Not a great day today
Hi knew it wouldn't last but realise I am.feeding my negativity, by reading post old and new on lung forum...I don't know why I can't stay in the present. I had 4 breath easy days so far, but memory rubbish. Then Instead of thanking God for my 4 good days...thst voice I will now call the future sets
Hi knew it wouldn't last but realise I am.feeding my negativity, by reading post old and new on lung forum...I don't know why I can't stay in the present. I had 4 breath easy days so far, but memory rubbish. Then Instead of thanking God for my 4 good days...thst voice I will now call the future sets
Hidden
in
Anxiety and Depression Support
5 years ago
Please help me asap
Hello. I am nearly 15 which is next month. The start of this year I think it was 7th of January I had ringing in my left ear which started from my phone because I was watching something and I was panicking. Before i even had the ringing for about a year id be listening to loud music through earphones
Hello. I am nearly 15 which is next month. The start of this year I think it was 7th of January I had ringing in my left ear which started from my phone because I was watching something and I was panicking. Before i even had the ringing for about a year id be listening to loud music through earphones
Niamh1804
in
British Tinnitus Association
5 years ago
History of obstetric APS: Heparin not required anymore for long-distance air travel?
My question is: Should I be using
Heparin
during my travels?
My question is: Should I be using
Heparin
during my travels?
Candyland
in
Hughes Syndrome APS Forum
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
With obstetric antiphospholipid syndrome treated with prophylactic dose
heparin
during pregnancy, continuation of
heparin
at prophylactic dose for six weeks after delivery should be considered to reduce the risk of maternal thrombosis.
With obstetric antiphospholipid syndrome treated with prophylactic dose
heparin
during pregnancy, continuation of
heparin
at prophylactic dose for six weeks after delivery should be considered to reduce the risk of maternal thrombosis.
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
With obstetric antiphospholipid syndrome treated with prophylactic dose
heparin
during pregnancy, continuation of
heparin
at prophylactic dose for six weeks after delivery should be considered to reduce the risk of maternal thrombosis.
With obstetric antiphospholipid syndrome treated with prophylactic dose
heparin
during pregnancy, continuation of
heparin
at prophylactic dose for six weeks after delivery should be considered to reduce the risk of maternal thrombosis.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
New Here, with Old Tinitus
Hi All, Graham here, I just joined. I have this Tinitus for about 5 years or more. Never a day go's by when it is not screaming in my ears. I have been for several hearing tests, but they all say it is hearing damage, coupled with growing old. I am 62 I like many others get very little sleep at night
Hi All, Graham here, I just joined. I have this Tinitus for about 5 years or more. Never a day go's by when it is not screaming in my ears. I have been for several hearing tests, but they all say it is hearing damage, coupled with growing old. I am 62 I like many others get very little sleep at night
All_The_Noises
in
British Tinnitus Association
5 years ago
Advice needed please
Hello everyone, If I tell my clinic that I want to go ahead with my final transfer but I want to be put on a low dose steroid and
heparin
(even though tests have been negative) do they have to go with my wishes? I feel like we need to try something different for our 4th and final transfer.
Hello everyone, If I tell my clinic that I want to go ahead with my final transfer but I want to be put on a low dose steroid and
heparin
(even though tests have been negative) do they have to go with my wishes? I feel like we need to try something different for our 4th and final transfer.
Jebby86
in
Fertility Network UK
5 years ago
Bruising won't go away don't know what to do next
out - after a 4 day stay in hospital I was released home and the nurses visited to continue with the
heparin
injections, due to the vitamin k injection the
heparin
had to be given for over 2 weeks after that - my stomach was that bruised they had to start injecting my arms - anyway this was January and
out - after a 4 day stay in hospital I was released home and the nurses visited to continue with the
heparin
injections, due to the vitamin k injection the
heparin
had to be given for over 2 weeks after that - my stomach was that bruised they had to start injecting my arms - anyway this was January and
bevjane74
in
Hughes Syndrome APS Forum
5 years ago
Anti-embolus stockings
(I have had two weeks worth of
heparin
injections too)
(I have had two weeks worth of
heparin
injections too)
Berlincat
in
Anticoagulation Support
5 years ago
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