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Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
which steroids and what dosage.
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Leader4077
in
Advanced Prostate Cancer
6 months ago
Is my Endo back?
Hi Everyone, Looking for some advice or anyone who's been through a similar experience. I had Endo 3 years ago some of my main symptoms where bowel issues bloating, gassy, stomach cramps and diarrhea whenever I ate to much. Initially the doctor put it down to IBS. Obviously that wasn't the case and it
Hi Everyone, Looking for some advice or anyone who's been through a similar experience. I had Endo 3 years ago some of my main symptoms where bowel issues bloating, gassy, stomach cramps and diarrhea whenever I ate to much. Initially the doctor put it down to IBS. Obviously that wasn't the case and it
mo222
in
Endometriosis UK
1 month ago
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Simethicone
Been having problems due to Pelvic Floor Dysfunction. Whilst it’s improved a little bit in the last few days I’m finding that trapped gas first thing when waking is an issue. I was looking at Simethicone and whether that or Deflatine would help me. I’ve got afib and on regular medication (flec and bisoprolol
Been having problems due to Pelvic Floor Dysfunction. Whilst it’s improved a little bit in the last few days I’m finding that trapped gas first thing when waking is an issue. I was looking at Simethicone and whether that or Deflatine would help me. I’ve got afib and on regular medication (flec and bisoprolol
Profound15
in
Atrial Fibrillation Support
1 month ago
High dose Turmeric and links to low ferritin
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
Buddy195
Administrator
in
Thyroid UK
1 month ago
hepatic Encephalopathy
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
Kingbilly3
in
British Liver Trust
1 month ago
Confusing CT scan results
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
Jens99
in
Advanced Prostate Cancer
6 months ago
T4 and integrin receptors
I've come across integrin receptors mentioned in a few papers recently where t4 seems to have some activity (generally its assumed t4 is not an active hormone), so was interested to read the following paper. This is yet another good reason for t3/t4 combination treatment. "Preliminary clinical evidence
I've come across integrin receptors mentioned in a few papers recently where t4 seems to have some activity (generally its assumed t4 is not an active hormone), so was interested to read the following paper. This is yet another good reason for t3/t4 combination treatment. "Preliminary clinical evidence
Forestgarden
in
Thyroid UK
6 months ago
Diagnosed today with an acoustic Neuroma.
Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Reddington__
in
Acoustic Neuroma Support
6 months ago
heart palpitation from suboxome
Lately due to frequent cold I have to increase Buprenorphine and Naloxone to 1.5 mg sublingually (3 quarters of film (2 mg), then I have experienced horrendous heart palpitation and my heart rate goes down to 42 to 44 /minute. Even when I return to my previous dosage which is 1 mg (half film) sublingually
Lately due to frequent cold I have to increase Buprenorphine and Naloxone to 1.5 mg sublingually (3 quarters of film (2 mg), then I have experienced horrendous heart palpitation and my heart rate goes down to 42 to 44 /minute. Even when I return to my previous dosage which is 1 mg (half film) sublingually
halperinchen
in
Restless Legs Syndrome
2 months ago
Almost ready for phase 1: JHU083 (or JHU-083) a selective glutamine metabolism blocker
"The drug, JHU083, is a type of molecule called a prodrug that cells inside the body convert into an active drug. Specifically, JHU083 can only be turned into its active, glutamine-blocking form inside the tumor, preventing it from causing harmful side effects elsewhere in the body. " We all know that
"The drug, JHU083, is a type of molecule called a prodrug that cells inside the body convert into an active drug. Specifically, JHU083 can only be turned into its active, glutamine-blocking form inside the tumor, preventing it from causing harmful side effects elsewhere in the body. " We all know that
Maxone73
in
Advanced Prostate Cancer
1 month ago
Struggling with disimpaction regime
Hello, really hoping someone has some advice as I’m at the end of my tether! My son is 5, he has struggled with constipation since he was 6 months old. He went onto Movicol (just x1 sachet a day) which was working fine to keep his stools soft and passable however when he began potty training at 3y/o
Hello, really hoping someone has some advice as I’m at the end of my tether! My son is 5, he has struggled with constipation since he was 6 months old. He went onto Movicol (just x1 sachet a day) which was working fine to keep his stools soft and passable however when he began potty training at 3y/o
Lem14
in
ERIC
1 month ago
Wondering if I should get a Partial Thyroidectomy?
I have a nodule on the left side of my thyroid which grew from 11 x 5 x 7 mm to 14 x 9 x 7 mm over the last 6 months. My endocrinologist and ENT believe it’s cancer. No impact on my lymph nodes. My surgery is in a few days and I’m just nervous I’m removing a part of my body that could be fine. Any
I have a nodule on the left side of my thyroid which grew from 11 x 5 x 7 mm to 14 x 9 x 7 mm over the last 6 months. My endocrinologist and ENT believe it’s cancer. No impact on my lymph nodes. My surgery is in a few days and I’m just nervous I’m removing a part of my body that could be fine. Any
happycamper143
in
Thyroid Cancer Support
6 months ago
Vitamin B12 Sublingual - Why do I feel sleepy?
Hello Everyone Just took a tablet of Vitamin B12 Sublingual today morning just after breakfast and felt v sleepy and took a short nap after noon. Is this expected? Has anyone experienced this? This is the brand that I bought: https://www.cytoplan.co.uk/vitamin-b12-sublingual-as-methylcobalamin-adenosylcobalamin
Hello Everyone Just took a tablet of Vitamin B12 Sublingual today morning just after breakfast and felt v sleepy and took a short nap after noon. Is this expected? Has anyone experienced this? This is the brand that I bought: https://www.cytoplan.co.uk/vitamin-b12-sublingual-as-methylcobalamin-adenosylcobalamin
BookLover2020
in
Thyroid UK
1 month ago
Newly diagnosed. Looking for advice
Good morning. I've sadly recently been diagnosed with ulcerative colitis. I was suffering 5 years ago with calprotectin score 450 and had a urgent colonoscopy that found polyps and piles which were removed biopsied/ banded. Continued to have on off blood in stools for a few years each time I was blaming
Good morning. I've sadly recently been diagnosed with ulcerative colitis. I was suffering 5 years ago with calprotectin score 450 and had a urgent colonoscopy that found polyps and piles which were removed biopsied/ banded. Continued to have on off blood in stools for a few years each time I was blaming
Raerae2781
in
Crohn's and Colitis Support
1 month ago
More Evidence Linking ADT for PCa to Adverse Neurocognitive Effects -Meta-analysis shows increased risk of dementia, Parkinson's, depression
[i]As if we needed more reasons to dislike or avoid ADT, here is additional evidence of negative neurocognitive effects. This MedPage Today article will expecially be of special interest to those of us well into our "Golden Years" and on or considering ADT. [/i]
More Evidence Linking ADT for Prostate
[i]As if we needed more reasons to dislike or avoid ADT, here is additional evidence of negative neurocognitive effects. This MedPage Today article will expecially be of special interest to those of us well into our "Golden Years" and on or considering ADT. [/i]
More Evidence Linking ADT for Prostate
cujoe
in
Fight Prostate Cancer
6 months ago
Please Help Me.
Hello all! I'm a 29 year old guy from the UK. I've had diarrearh for nearly 6 weeks. I have severe bloating. I was admitted to Hospital last week, they've asked me to do a Bowel cancer sample test (which I've done) During the blood tests they've found my Liver Enzymes are elevated. They've ordered
Hello all! I'm a 29 year old guy from the UK. I've had diarrearh for nearly 6 weeks. I have severe bloating. I was admitted to Hospital last week, they've asked me to do a Bowel cancer sample test (which I've done) During the blood tests they've found my Liver Enzymes are elevated. They've ordered
Lmm4
in
British Liver Trust
1 month ago
Peripheral neuropathy and neurology's response
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
LizWilsonpa
in
Pernicious Anaemia Society
1 month ago
Bloating for 2 months
Hi, does anyone suffer with bloating but all the time? For the last couple of months my stomach has felt bloated most days and more recently I have had a gurgling stomach, mucus in my poo, lower back pain, urgency and acid reflux. I am currently having bloods, stool samples etc to rule out other things
Hi, does anyone suffer with bloating but all the time? For the last couple of months my stomach has felt bloated most days and more recently I have had a gurgling stomach, mucus in my poo, lower back pain, urgency and acid reflux. I am currently having bloods, stool samples etc to rule out other things
Starshine83
in
IBS Network
1 month ago
Functional Gerd/Heartburn
Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels like heartburn, which I have never had before. The pain is usually in bottom chest area and is accompanied with flatulence and burping. I read
Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels like heartburn, which I have never had before. The pain is usually in bottom chest area and is accompanied with flatulence and burping. I read
Canadian77
in
Pernicious Anaemia Society
1 month ago
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