Search
Search
About
Log in
Join
Experiences with
Heart transplant
Posts
Communities
8,552 public posts
Filter results
How bad does it have to be before...
Oxygen. Thing is I have severe COPD (emphysema and bronchiectasis) at stage four. Last FEV1 32%. I am 78. Now I have also had arrhythmia and some oedema so I was diagnosed with congestive heart failure as well. But two echo- cardiograms showed a healthy heart, two E CGs have showed the rhythm is now
Oxygen. Thing is I have severe COPD (emphysema and bronchiectasis) at stage four. Last FEV1 32%. I am 78. Now I have also had arrhythmia and some oedema so I was diagnosed with congestive heart failure as well. But two echo- cardiograms showed a healthy heart, two E CGs have showed the rhythm is now
Timberman
in
Lung Conditions Community Forum
3 years ago
Post Kasai and Need for Liver Transplant
My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and come down around 1400 now. His stool is pigmented yellow, orange and sometimes pale yellow. Surgeon told liver was hard while kasai but all Ultrasound
My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and come down around 1400 now. His stool is pigmented yellow, orange and sometimes pale yellow. Surgeon told liver was hard while kasai but all Ultrasound
manhealth
in
Children's Liver Disease Foundation
3 years ago
Anyone been prescribed a drug to lower heart rate for procedure to see if you have narrow arteries?
Hello , just been told I’m going to be prescribed something ( not beta blockers) to make my heart rate under 60 then I’ll have an ECG to check , after that I’ll have a procedure of which I forgot the name to check my circulation for any narrowing etc Has anyone had this done and I wondered what happened
Hello , just been told I’m going to be prescribed something ( not beta blockers) to make my heart rate under 60 then I’ll have an ECG to check , after that I’ll have a procedure of which I forgot the name to check my circulation for any narrowing etc Has anyone had this done and I wondered what happened
Hazel1010
in
AF Association
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update
I’m getting released today from the hospital. I had my defibrillator wire removed this past Wednesday. A very delicate procedure considering the wire has been in for 17 years. The wire has damaged my Tricuspid valve in my heart allowing blood to back up into my liver and cause cardiac cirrhosis. Hopefully
I’m getting released today from the hospital. I had my defibrillator wire removed this past Wednesday. A very delicate procedure considering the wire has been in for 17 years. The wire has damaged my Tricuspid valve in my heart allowing blood to back up into my liver and cause cardiac cirrhosis. Hopefully
Bluegirl52
in
Living with Fatty Liver and NASH
3 years ago
Jaw spasm & neck muscle problems?
Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post stem cell transplant. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving
Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post stem cell transplant. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving
AnnW22
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Dr. Ondo have an appt with this dr in December. Can anyone tell me if they have seen him or had any experience with him and their thoughts
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
ESRDRLS
in
Restless Legs Syndrome
3 years ago
I need the rest
You sound exactly like a mirror of myself. I agree, the augmentation and withdrawal are horrible. I take Gabapentin, 600 mg. about 7 p.m. and 900 mg. at 9 p.m. About 8:30 I take 100 mg. Tramadol. I am weaning off my last .5 mg. Ropinirole and usually take that at 7:15 p.m. I had about 1 week of beautiful
You sound exactly like a mirror of myself. I agree, the augmentation and withdrawal are horrible. I take Gabapentin, 600 mg. about 7 p.m. and 900 mg. at 9 p.m. About 8:30 I take 100 mg. Tramadol. I am weaning off my last .5 mg. Ropinirole and usually take that at 7:15 p.m. I had about 1 week of beautiful
Agent54
in
Restless Legs Syndrome
3 years ago
7 months post kidney transplant. I’m up to 40 minutes of walking 3-4 times a week. Day after exercise tired , useless. Any others?
Tired day after exercise
Tired day after exercise
3KMa
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant Patient Support
3 years ago
Educating the public about the need for living kidney donors.
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Disease
3 years ago
Sudden Lymph Node Enlargement
I am a 58 year old female and was diagnosed a year ago. I have great bloodwork and have been without symptoms until a month ago & now have an enlarged lymph node that will require surgical removal for biopsy. The PET scan results are “worrisome for advanced lymphoma” and its hard not to mentally go
I am a 58 year old female and was diagnosed a year ago. I have great bloodwork and have been without symptoms until a month ago & now have an enlarged lymph node that will require surgical removal for biopsy. The PET scan results are “worrisome for advanced lymphoma” and its hard not to mentally go
StrengthHopeLove
in
CLL Support
3 years ago
Where are all the husbands talking about their wives and partners alcohol-related liver disease?
I had a most enjoyable coffee with a fellow liver transplantee this afternoon. I’ve not seen this lady (due to Covid) for almost two years, so it was nice to catch up. Her liver transplant was due to PBC (Primary biliary cholangitis). This poor lady does understandably get frustrated as she is often
I had a most enjoyable coffee with a fellow liver transplantee this afternoon. I’ve not seen this lady (due to Covid) for almost two years, so it was nice to catch up. Her liver transplant was due to PBC (Primary biliary cholangitis). This poor lady does understandably get frustrated as she is often
Richard-Allen
in
British Liver Trust
3 years ago
AM I ELIGIBLE FOR KIDNEY TRANSPLANT?
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
pigeonman
in
Early CKD Support
3 years ago
Cardioversion Sat.A fib today.
Evening all.Im so disappointed but I think I have flipped back into a fib after a successful CV on Sat.I know its not a cure but was hoping it would last a bit longer.Went for a flat 2 mile walk with my friend this morning and suddenly realised I was working hard..I checked my amazbit when I got home
Evening all.Im so disappointed but I think I have flipped back into a fib after a successful CV on Sat.I know its not a cure but was hoping it would last a bit longer.Went for a flat 2 mile walk with my friend this morning and suddenly realised I was working hard..I checked my amazbit when I got home
ETHEL103
in
AF Association
3 years ago
How do you get ESRD Medicare if you get a preemptive kidney transplant (before dialysis has begun).
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Hidden
in
Kidney Transplant
3 years ago
Skin biopsy bleeding
Hi all, I started treatment in April (Ibrutinib) and it’s doing what it should do. I had a skin biopsy on my leg on Tuesday with 4 stitches. The wound is still bleeding today 4 days later!! Just a slow bleed but having to change dressings a few times a day! Does anybody have any experience of similar
Hi all, I started treatment in April (Ibrutinib) and it’s doing what it should do. I had a skin biopsy on my leg on Tuesday with 4 stitches. The wound is still bleeding today 4 days later!! Just a slow bleed but having to change dressings a few times a day! Does anybody have any experience of similar
Suzanne1970
in
CLL Support
3 years ago
Just want to sleep
Just want to sleep, feel absolutely shocking got a upper respiratory infection, stuffed what feels like cottonwool stuck it’s horrendous , never experienced this before in all my 43 years .need to ring docs tomo morn first thing ! Got my little boy off school he seems off it just had a enough . Scared
Just want to sleep, feel absolutely shocking got a upper respiratory infection, stuffed what feels like cottonwool stuck it’s horrendous , never experienced this before in all my 43 years .need to ring docs tomo morn first thing ! Got my little boy off school he seems off it just had a enough . Scared
Binkynoo
in
Anxiety Support
3 years ago
Post Liver transplant
Post liver transplant my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Post liver transplant my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Brahmatv
in
Children's Liver Disease Foundation
3 years ago
Sanjay Gupta and anticoagulants
I just watched Sanjay Gupta's YouTube video on anticoagulants. He said it is not the Afib but the company it keeps that is responsible for a stroke therefore anticoagulation is only advised if you have other factors i.e high blood pressure, diabetes, heart failure etc. If that is the case why are all
I just watched Sanjay Gupta's YouTube video on anticoagulants. He said it is not the Afib but the company it keeps that is responsible for a stroke therefore anticoagulation is only advised if you have other factors i.e high blood pressure, diabetes, heart failure etc. If that is the case why are all
Swimsyroke
in
AF Association
3 years ago
1
...
97
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
1842 results
British Heart Foundation
987 results
Lung Conditions Community Forum
754 results
View top 10 communities
Sort by
Most Relevant
Newest