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IBS
I had my kidney transplant 3 1/2 years ago . I now have IBS with a very bad order. I’m very embarrassed by this. Any information to stop this Thanks
I had my kidney transplant 3 1/2 years ago . I now have IBS with a very bad order. I’m very embarrassed by this. Any information to stop this Thanks
11642
in
Kidney Transplant
3 years ago
HV88 Virus
Post liver transplant 3 years. Recently diagnosed with HV88 virus which I carried pre transplant but didn't know. Thankfully copies are low and now on 1mg of Sirolimus to keep copies low Taking 0.5 Advagraf now as LFT's are still excellent and all well within range and the reduction has helped renal
Post liver transplant 3 years. Recently diagnosed with HV88 virus which I carried pre transplant but didn't know. Thankfully copies are low and now on 1mg of Sirolimus to keep copies low Taking 0.5 Advagraf now as LFT's are still excellent and all well within range and the reduction has helped renal
Geordiemac
in
British Liver Trust
3 years ago
Update
I still hope to get a few days at home before coming back in for more chemotherapy and the actual
transplant
but I can't set my
heart
on it. Unfortunately the hospital food is provided by Serco so healthy food is becoming a distant memory! However the team looking after me is fantastic.
I still hope to get a few days at home before coming back in for more chemotherapy and the actual
transplant
but I can't set my
heart
on it. Unfortunately the hospital food is provided by Serco so healthy food is becoming a distant memory! However the team looking after me is fantastic.
Otterfield
in
MPN Voice
2 years ago
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Strange reactions to surgery.
I had heart surgery about 15 months ago and have had to deal with a lot of complications. A stroke being the main one. A couple of the smaller issues got buried, but I was wondering if anyone identified. I jump out of my skin at sudden noises such as the phone ringing. I also well up at emotional moments
I had heart surgery about 15 months ago and have had to deal with a lot of complications. A stroke being the main one. A couple of the smaller issues got buried, but I was wondering if anyone identified. I jump out of my skin at sudden noises such as the phone ringing. I also well up at emotional moments
Tickertalker
in
British Heart Foundation
3 years ago
Cord blood donation Northern Ireland
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Babytwinkle
in
Pregnancy and Parenting Support
2 years ago
anyone out there with aortobifemoral bypass experience?
hi, I found out in 2020 that i need to have an aortobifemoral bypass graft as my aorta is completely blocked. I suffer from severe claudication in the legs and buttocks and can only walk very short distances without needing to rest. While assessing for the ability to survive this op, i was found to
hi, I found out in 2020 that i need to have an aortobifemoral bypass graft as my aorta is completely blocked. I suffer from severe claudication in the legs and buttocks and can only walk very short distances without needing to rest. While assessing for the ability to survive this op, i was found to
Hidden
in
British Heart Foundation
3 years ago
WARWICK's Latest Update on his POST ASCT journey thus far...
Post by MPN-MATE Admin » Sat Feb 12, 2022 10:39 pm Evening all... :D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic Stem Cell Transplant (ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/
Post by MPN-MATE Admin » Sat Feb 12, 2022 10:39 pm Evening all... :D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic Stem Cell Transplant (ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/
socrates_8
in
MPN Voice
2 years ago
Queen of Hearts
Saw my
heart
today. After being evaluated for a
transplant
they said I had an abnormal ekg. The doctors referred me to a cardiologist and today they did an echo. I saw my heart beating away. That was a strange feeling. I bright side things.
Saw my
heart
today. After being evaluated for a
transplant
they said I had an abnormal ekg. The doctors referred me to a cardiologist and today they did an echo. I saw my heart beating away. That was a strange feeling. I bright side things.
HipHopQueen
in
Kidney Dialysis
2 years ago
BK Virus
I am one month post kidney transplant however I have a BK virus that is freaking me out I do labs twice a week and it went from 0 to 57 to 461 to 12,000 haven’t got results from today but would greatly appreciate if anyone can share their experience with me to help me understand what to expect. Thank
I am one month post kidney transplant however I have a BK virus that is freaking me out I do labs twice a week and it went from 0 to 57 to 461 to 12,000 haven’t got results from today but would greatly appreciate if anyone can share their experience with me to help me understand what to expect. Thank
Alkaline1
in
Kidney Transplant
3 years ago
10 Years With CLL: Two Trials & Lifesaving CAR T-Cell Therapy
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
lankisterguy
Volunteer
in
CLL Support
2 years ago
Kidney Transplant Evaluation
I'm scheduled for a kidney transplant evaluation in a few days. I was told that the appointment can take 4 or 5 hours. Can anyone please tell me what is involved with the evaluation?
I'm scheduled for a kidney transplant evaluation in a few days. I was told that the appointment can take 4 or 5 hours. Can anyone please tell me what is involved with the evaluation?
annulla
in
Kidney Transplant
3 years ago
Tacrolimus Supply Problem?
Dear All, I have been 'on' Tacrolimus since my Kidney Transplant, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a Problem 'getting' this- however, it appears that NO-ONE else has! My Doctor's has been Great, about this, and has written the Prescription for this
Dear All, I have been 'on' Tacrolimus since my Kidney Transplant, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a Problem 'getting' this- however, it appears that NO-ONE else has! My Doctor's has been Great, about this, and has written the Prescription for this
AndrewT
in
Vasculitis UK
3 years ago
Disrupted sleep after heart surgery
Hello. First post. New mitral valve and bypass 2 November. Home to recuperate after 6 days. Initially troubled by hallucinations which slowly faded. Chest pain managed with paracetamol. Now left with disrupted sleep pattern. Normally an excellent sleeper but now unable to get to sleep and resorting
Hello. First post. New mitral valve and bypass 2 November. Home to recuperate after 6 days. Initially troubled by hallucinations which slowly faded. Chest pain managed with paracetamol. Now left with disrupted sleep pattern. Normally an excellent sleeper but now unable to get to sleep and resorting
Mog06
in
British Heart Foundation
3 years ago
The French Paradox - Why the French Have the Lowest Incidence of Heart Disease in the Developed World
Wine should be consumed in moderation. I drink one glass of red wine with my dinner, between 1 and 3 times per week. While resveratrol, which is in red wine, does provide some health benefits, the alcohol offsets those benefits. The French Paradox (high consumption of wine, cheeses and creams, yet the
Wine should be consumed in moderation. I drink one glass of red wine with my dinner, between 1 and 3 times per week. While resveratrol, which is in red wine, does provide some health benefits, the alcohol offsets those benefits. The French Paradox (high consumption of wine, cheeses and creams, yet the
sos007
Ambassador
in
Cholesterol Support
3 years ago
Poop may not be magical? Microbiome Prescription Blog discusses FMT results
http://blog.microbiomeprescription.com/2021/11/26/before-donor-after-fmt-analysis/ I'm still pro poop. Just sharing. Is FMT Worth the Risk? FMT is effectively an organ transplant. Like organ transplants, there are significant risks of rejection and no way to undo it once it happens. From correspondence
http://blog.microbiomeprescription.com/2021/11/26/before-donor-after-fmt-analysis/ I'm still pro poop. Just sharing. Is FMT Worth the Risk? FMT is effectively an organ transplant. Like organ transplants, there are significant risks of rejection and no way to undo it once it happens. From correspondence
Bolt_Upright
in
Cure Parkinson's
3 years ago
Bisopropol as pill in pocket
As my AF has progressed and I’m now experiencing longer bouts of tachycardia and sometimes irregularities I have been prescribed Bisopropol as pill in pocket by a GP. The episodes are still only 4/5 hours with my heart rate at approximately 180bpm for much of the time. When first diagnosed with AF I
As my AF has progressed and I’m now experiencing longer bouts of tachycardia and sometimes irregularities I have been prescribed Bisopropol as pill in pocket by a GP. The episodes are still only 4/5 hours with my heart rate at approximately 180bpm for much of the time. When first diagnosed with AF I
Clyde12
in
Atrial Fibrillation Support
3 years ago
New to Apixaban
Having been diagnosed with Arrhythmia, I will shortly start taking 5mg Apixaban twice a day. This causes me much concern. Will I be able to lead a normal life, eg play golf, go abroad on holiday etc and will I be able to have a couple of glasses of wine each day? I am currently a regular social drinker
Having been diagnosed with Arrhythmia, I will shortly start taking 5mg Apixaban twice a day. This causes me much concern. Will I be able to lead a normal life, eg play golf, go abroad on holiday etc and will I be able to have a couple of glasses of wine each day? I am currently a regular social drinker
Brancaster1
in
AF Association
3 years ago
What a couple of weeks…😡
Following double lung transplant assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist. These tests are so thorough as only the fittest( ironic eh!) can be put forward. Depending on the grade
Following double lung transplant assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist. These tests are so thorough as only the fittest( ironic eh!) can be put forward. Depending on the grade
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Kidney Jokes
Thought I would do something admirable this holiday season and donate a kidney I got nothing but grief from the Salvation Army bell ringer who's bucket I was trying to shove it in ~~~~~~ So I got a kidney shaped pool... It has a stone in it... ~~~ Did you hear about the man who got a brain transplant
Thought I would do something admirable this holiday season and donate a kidney I got nothing but grief from the Salvation Army bell ringer who's bucket I was trying to shove it in ~~~~~~ So I got a kidney shaped pool... It has a stone in it... ~~~ Did you hear about the man who got a brain transplant
Sophiebun11
in
Kidney Disease
3 years ago
Still fatigued and miserable
Can i feel weak and nauseas and not able to excersise well even though i have not had an irregular pulse now for 7 months. In that time i have also had shingles in my left eye which fortunately i caught reasonably quickly. The only med im on is pradaxa a d i did have a pm put in.
Can i feel weak and nauseas and not able to excersise well even though i have not had an irregular pulse now for 7 months. In that time i have also had shingles in my left eye which fortunately i caught reasonably quickly. The only med im on is pradaxa a d i did have a pm put in.
Alphakiwi
in
AF Association
3 years ago
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