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2nd Ablation woes
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Twizzle1962
in
Atrial Fibrillation Support
2 months ago
Flecainide before Cardioversion
My EP's plan was to have me start on Flecainide and then have Cardioversion in hopes that my heart would keep rhythm. EP changed his mind because my INR was below threshold and told me to not take it until AFTER the CV in case the med converted my heart. I was instructed to have an ECG done 2 days
My EP's plan was to have me start on Flecainide and then have Cardioversion in hopes that my heart would keep rhythm. EP changed his mind because my INR was below threshold and told me to not take it until AFTER the CV in case the med converted my heart. I was instructed to have an ECG done 2 days
Siebertgirl
in
Atrial Fibrillation Support
2 months ago
Excruciating jaw pain
Over the past week, pain in my jaw has been getting worse. It’s now excruciating at times. It’s not there all the time but does often coincide with eating. Had a thorough dental examination and no sign of infection or necrosis (from Zometa). I’m taking cocodamol but it’s not enough. Any similar experiences
Over the past week, pain in my jaw has been getting worse. It’s now excruciating at times. It’s not there all the time but does often coincide with eating. Had a thorough dental examination and no sign of infection or necrosis (from Zometa). I’m taking cocodamol but it’s not enough. Any similar experiences
FortyWinks
in
Advanced Prostate Cancer
2 months ago
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Vasculitis (especially CNS/cerebral) and incontinence
I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary CNS/cerebral vasculitis, or secondary brain involvement from a systemic vasculitis like GPA. But vasculitis medics frequently under recognise incontinence
I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary CNS/cerebral vasculitis, or secondary brain involvement from a systemic vasculitis like GPA. But vasculitis medics frequently under recognise incontinence
vivdunstan
Volunteer
in
Vasculitis UK
2 months ago
Thankyou
Thankyou to everyone for all the replies to my previous post. I have felt anxious because of being newly diagnosed and new to the meds so the replies have helped me greatly. I've still got an echo to come and 48hr ecg and I have the date for the ecg now. Thankyou once again.
Thankyou to everyone for all the replies to my previous post. I have felt anxious because of being newly diagnosed and new to the meds so the replies have helped me greatly. I've still got an echo to come and 48hr ecg and I have the date for the ecg now. Thankyou once again.
Exhiker
in
Atrial Fibrillation Support
2 months ago
iwatch setting - AF history or AF alert?
Prior to my ablation last October I had persistent Afib. Since then I have been in NSR. I have kept my iwatch monitor set to record “AF history” and it has consistently shown AF load to be 2% or under on the weekly notifications. Should I stay on this setting or should I now set it to show alerts the
Prior to my ablation last October I had persistent Afib. Since then I have been in NSR. I have kept my iwatch monitor set to record “AF history” and it has consistently shown AF load to be 2% or under on the weekly notifications. Should I stay on this setting or should I now set it to show alerts the
Rainfern
in
Atrial Fibrillation Support
2 months ago
Ischemic Cholangiopathy following liver transplant.
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
KateG94
in
British Liver Trust
6 months ago
Adenomyosis, Endometriosis and Autoimmune diseases
Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and autoimmune disease. Following all my symptoms (that got even worse since I have no therapy but only medication to ease the pain) now I got a possible
Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and autoimmune disease. Following all my symptoms (that got even worse since I have no therapy but only medication to ease the pain) now I got a possible
Taikaei
in
Endometriosis UK
3 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
2 months ago
May - Vasculitis Awareness Month
May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the clinicians. Take a moment to read Maxine's story! To donate to VasculitisUK ‘s campaign this month to support patients and research - https://justgiving.com
May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the clinicians. Take a moment to read Maxine's story! To donate to VasculitisUK ‘s campaign this month to support patients and research - https://justgiving.com
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Low Dose Aspirin for Heart Disease
My cardiologist wants me to take a daily low dose aspirin, but I am hesitant as I have a history of proteinuria. I know the studies are inconclusive as to whether or not it helps (and even my cardiologist admits that), but I have a bad valve and my risk is moderately high for sudden death/stroke. I'm
My cardiologist wants me to take a daily low dose aspirin, but I am hesitant as I have a history of proteinuria. I know the studies are inconclusive as to whether or not it helps (and even my cardiologist admits that), but I have a bad valve and my risk is moderately high for sudden death/stroke. I'm
GoodHealthIsAJourney
in
Early CKD Support
2 months ago
unexplained chest pain and shortness of breath .
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
Susiequest
in
NRAS
3 months ago
Fatty liver in biopsy but not scans
Hiya, I’m just curious if anyone has had a similar experience where their liver biopsy results shows signs of fatty liver but ultrasounds/CT show an enlarged liver but no fatty liver signs. I’m wondering if this means it’s extremely early stages maybe?
Hiya, I’m just curious if anyone has had a similar experience where their liver biopsy results shows signs of fatty liver but ultrasounds/CT show an enlarged liver but no fatty liver signs. I’m wondering if this means it’s extremely early stages maybe?
Chaucer89
in
British Liver Trust
6 months ago
Paroxysmal atrial fribulation
Me again all taking 1.25 mg of bisoprolol and 120 mmg of digoxin afib seems to be better at the moment still getting a few ectopic s working on these some how as nothing left in the medication bucket of the nhs at the moment just a general question my sleeping bpm seems to be about 44 to 50 anyone
Me again all taking 1.25 mg of bisoprolol and 120 mmg of digoxin afib seems to be better at the moment still getting a few ectopic s working on these some how as nothing left in the medication bucket of the nhs at the moment just a general question my sleeping bpm seems to be about 44 to 50 anyone
Aprilla12345
in
Atrial Fibrillation Support
2 months ago
Ramadan Autoimmune Health Survey (including vasculitis)
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details 👆
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details 👆
Suzi70
Administrator
in
Vasculitis UK
3 months ago
Warfarin
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Willow7733
in
Hughes Syndrome APS Forum
2 months ago
Lupus centre of excellence
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Jenfy34
in
LUPUS UK
3 months ago
I NEVER LEARN
Hello everyone, It's 5:44 AM in California and the paramedics have just left. I called them as while lying in bed I felt nauseous, and stomach felt odd so I put my oximeter on my finger and watched it go down to 29 and then back up to baseline HR for me of 50 and it really freaked me out but I tried
Hello everyone, It's 5:44 AM in California and the paramedics have just left. I called them as while lying in bed I felt nauseous, and stomach felt odd so I put my oximeter on my finger and watched it go down to 29 and then back up to baseline HR for me of 50 and it really freaked me out but I tried
kocoach
in
Atrial Fibrillation Support
2 months ago
How high is high phosphorous??
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
Bassetmommer
in
Kidney Dialysis
6 months ago
update on switching to digoxin from lopressor
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
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