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HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
Dawnm10
in
Hughes Syndrome APS Forum
1 month ago
Shingles Jab
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
Stewart64
in
LUPUS UK
1 month ago
Answer to unknown question
Jan 2024 (after lots of research and nearly 3 years on from original diagnosis of Metastatic Prostate Cancer with extensive bone metastases) I have just worked out the answer to the question I didn't know I wanted to ask. Instead of worrying about PSA and other test results my real concern was "what
Jan 2024 (after lots of research and nearly 3 years on from original diagnosis of Metastatic Prostate Cancer with extensive bone metastases) I have just worked out the answer to the question I didn't know I wanted to ask. Instead of worrying about PSA and other test results my real concern was "what
Brendan1904
in
Advanced Prostate Cancer
6 months ago
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Pain following fibroscan
Hi went for a fibroscan on friday .. the nurse struggled to get reading but kept trying.. diagnosed with liver cirrhosis.. since then i have very bad pain around right side ribs...diarrea .. is this normal.. is it sore ribs or my liver playing up..
Hi went for a fibroscan on friday .. the nurse struggled to get reading but kept trying.. diagnosed with liver cirrhosis.. since then i have very bad pain around right side ribs...diarrea .. is this normal.. is it sore ribs or my liver playing up..
Jender58
in
British Liver Trust
6 months ago
Anyone used Dr Dani Gordon @The London Resilience Clinic
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
Field007
in
Fibromyalgia Action UK
1 month ago
C-Reactive Protein Test
Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you
Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you
Canadian77
in
Pernicious Anaemia Society
1 month ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
6 months ago
Declining psa #9
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Nfler
in
Advanced Prostate Cancer
6 months ago
Understanding TSH Levels
HAD MY BLOOD TESTED IN JANUARY AND TSH Was .06 Gp said normal but no adjustment in meds as he said it was too high. Currently on 100mcg Thyroxine but feeling tired and usual symptoms of Underactive thyroid. Any advice appreciated. Thank you.
HAD MY BLOOD TESTED IN JANUARY AND TSH Was .06 Gp said normal but no adjustment in meds as he said it was too high. Currently on 100mcg Thyroxine but feeling tired and usual symptoms of Underactive thyroid. Any advice appreciated. Thank you.
JMF1
in
Thyroid UK
1 month ago
Does this look like lupus rash?
Hi everyone. I started with a flat purple rash last Tuesday. It’s spread across my stomach and down the front of my thighs. Then a more sporadic raised rash started on shoulders, back, and then my hands and arms on Friday evening. The first marks on upper body looked like I’d scratched the skin. Yesterday
Hi everyone. I started with a flat purple rash last Tuesday. It’s spread across my stomach and down the front of my thighs. Then a more sporadic raised rash started on shoulders, back, and then my hands and arms on Friday evening. The first marks on upper body looked like I’d scratched the skin. Yesterday
Hidden
in
LUPUS UK
1 month ago
Don't know what's real anymore...
Some know my story so far, but briefly, rheumatologist diagnosed sjogren's after several years of UCTD and has now referred but to a sjogren's specialist. I saw him about a month ago and he's not convinced it's sjogren's and is running more tests and told me to stop taking Amitryptiline as tris can
Some know my story so far, but briefly, rheumatologist diagnosed sjogren's after several years of UCTD and has now referred but to a sjogren's specialist. I saw him about a month ago and he's not convinced it's sjogren's and is running more tests and told me to stop taking Amitryptiline as tris can
Mctd
in
LUPUS UK
1 month ago
Join "Your Morning Wake-Up Call," a FREE virtual communication and cognition exercise series designed for individuals with Parkinson's
"Your Morning Wake-Up Call" features a comprehensive approach to enhancing communication and cognition, including: • Breath Exercises to strengthen breath support to help you communicate more effectively. • Voice and Speech Drills to improve your voice and enhance speech clarity. • Stimulating Cognitive
"Your Morning Wake-Up Call" features a comprehensive approach to enhancing communication and cognition, including: • Breath Exercises to strengthen breath support to help you communicate more effectively. • Voice and Speech Drills to improve your voice and enhance speech clarity. • Stimulating Cognitive
JMDean
in
Cure Parkinson's
6 months ago
Mr Alan M
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
TillySyd
in
British Liver Trust
6 months ago
Biomarkers to Assess Multiple Sclerosis
Some review and maybe something new.
Recent research on fluid biomarkers in multiple sclerosis (MS) frames an emerging picture of two aspects of the disease: inflammatory activity measured with
neurofilament light chain
(NfL), and disease progression independent of relapses, with promising
Some review and maybe something new.
Recent research on fluid biomarkers in multiple sclerosis (MS) frames an emerging picture of two aspects of the disease: inflammatory activity measured with
neurofilament light chain
(NfL), and disease progression independent of relapses, with promising
BettysMom
in
My MSAA Community
1 month ago
Levothyroxine side effects
I have been on 150mcg levothyroxine constant since January 1st this year. Around the 20th February I started with shortness of breath and irregular heart beats which have continued daily and my t4 and tsh have gradually got better to where last weeks blood test show they are now within range. I am adamant
I have been on 150mcg levothyroxine constant since January 1st this year. Around the 20th February I started with shortness of breath and irregular heart beats which have continued daily and my t4 and tsh have gradually got better to where last weeks blood test show they are now within range. I am adamant
Andrew36
in
Thyroid UK
1 month ago
itchy skin
hi have any of you ladies out there had itchy skin with underactive thyroid. Mine is mainly on my back. I have used most creams to get rid of it but it comes and goes and it’s back again driving me mad at the moment. Could anyone recommend any remedies to help? Thanks
hi have any of you ladies out there had itchy skin with underactive thyroid. Mine is mainly on my back. I have used most creams to get rid of it but it comes and goes and it’s back again driving me mad at the moment. Could anyone recommend any remedies to help? Thanks
Purpleprincess1963
in
Thyroid UK
1 month ago
Autoimmune Chronic Gastiritis
Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/
Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/
Karenedawson
in
Pernicious Anaemia Society
1 month ago
Lastest results
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Dahliasanddaisies
in
Thyroid UK
1 month ago
Women’s Health in RA survey
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
SarahW-NRAS
NRAS
in
NRAS
1 month ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
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