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Have someone tried Radagiline
I had PD for 5 years, now, have Dystonia and Dyskinesia after took Sinemet, Doctor asks me try Rasagiline, I worry that I take too much med. Dose anyone have experience of Rasagiline?
I had PD for 5 years, now, have Dystonia and Dyskinesia after took Sinemet, Doctor asks me try Rasagiline, I worry that I take too much med. Dose anyone have experience of Rasagiline?
Grandsonlover
in
Cure Parkinson's
3 months ago
Seeking Rytary experience and feedback
I'm switching from sinemet to Rytary because of the fewer doses throughout the day. I'm struggling with the morning dose. It makes my off time worse and I end up taking 1 sinemet after 1 - 2 hours to relieve symptoms (primarily slow movement and rigidity). The Rytary seems to be effective after my
I'm switching from sinemet to Rytary because of the fewer doses throughout the day. I'm struggling with the morning dose. It makes my off time worse and I end up taking 1 sinemet after 1 - 2 hours to relieve symptoms (primarily slow movement and rigidity). The Rytary seems to be effective after my
al315
in
Cure Parkinson's
3 months ago
Macuna Pruriens capsules
Hi all, just wondering if anyone has experience of using these capsules, 700mg macuna pruriens. https://www.macudopa.com/ Currently I take 1 +1/2 Sinemet 3 x daily but I find it doesn’t completely stop my tremor (left hand and leg/foot). I’m only recently diagnosed and feel I’m already dependent on
Hi all, just wondering if anyone has experience of using these capsules, 700mg macuna pruriens. https://www.macudopa.com/ Currently I take 1 +1/2 Sinemet 3 x daily but I find it doesn’t completely stop my tremor (left hand and leg/foot). I’m only recently diagnosed and feel I’m already dependent on
Lamadre
in
Cure Parkinson's
3 months ago
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Anyone Taking Both Sinemet and CR ?
When first diagnosed by my primary care physician he prescribed Sinemet CR 25/100 to be taken at 6 hour intervals 4 times daily , today I met with a Neurologist/Parkinson’s movement disorder specialist, she changed my regiment to the quick release Sinemet 25/100 three times daily at 5 hour intervals
When first diagnosed by my primary care physician he prescribed Sinemet CR 25/100 to be taken at 6 hour intervals 4 times daily , today I met with a Neurologist/Parkinson’s movement disorder specialist, she changed my regiment to the quick release Sinemet 25/100 three times daily at 5 hour intervals
BoomMate112055
in
Cure Parkinson's
1 year ago
Selegiline - Noticeably improved symptoms
My new neurologist started me on Selegiline 10 mg/day. In two weeks I reduced my Sinemet from two pills per day to one. My tremor is much calmer and I feel more clear. So far no negative side effects and I take the first 5 mg on an empty stomach.
My new neurologist started me on Selegiline 10 mg/day. In two weeks I reduced my Sinemet from two pills per day to one. My tremor is much calmer and I feel more clear. So far no negative side effects and I take the first 5 mg on an empty stomach.
Armyman
in
Cure Parkinson's
3 months ago
Onset of severe tremor
My wife was diagnosed with PSP late 2021.She broke her hip in early February whilst taking part in a PD Warriors exercise class. She has been transferred to a Rehab Hospital. Progress has been slow but positive with he walking with a U Step and practicing on the stairs on Friday. I was called to the
My wife was diagnosed with PSP late 2021.She broke her hip in early February whilst taking part in a PD Warriors exercise class. She has been transferred to a Rehab Hospital. Progress has been slow but positive with he walking with a U Step and practicing on the stairs on Friday. I was called to the
Wombatz
in
PSP Association
3 months ago
Pramipexole
I was diagnosed with PD ten years ago, bradykenesia, facial mask, no left arm swing and now both aren't in time, no tremor. Have anxiety/looping thoughts and general low mood. Have a physical job and have been able to carry on but this year festination developed, walking often turns into running short
I was diagnosed with PD ten years ago, bradykenesia, facial mask, no left arm swing and now both aren't in time, no tremor. Have anxiety/looping thoughts and general low mood. Have a physical job and have been able to carry on but this year festination developed, walking often turns into running short
grower
in
Parkinson's New Zealand
4 months ago
Little tablets 🎶
Going through the medicine routine this morning I found myself making up a song - If you want to sing along it’s to the tune of “Little boxes” 🎶 Little tablets in the pill box Little tablets getting hard to swallow Little tablets, five compartments Little tablets every day Little tablets in
Going through the medicine routine this morning I found myself making up a song - If you want to sing along it’s to the tune of “Little boxes” 🎶 Little tablets in the pill box Little tablets getting hard to swallow Little tablets, five compartments Little tablets every day Little tablets in
Bergenser
in
PSP Association
4 months ago
Side effect of Sinemet
- [ ] I am 70 years old,was diagnosed PD 5 years ago. The first 4 years, I was OK with Sinemet as 100/25, 3 times a day. But from last Summer, after taking the same amount of Sinemet 30 minutes or one hour, my left body got Muscle tightness and serious dystonia of left foot and shoulder until off time
- [ ] I am 70 years old,was diagnosed PD 5 years ago. The first 4 years, I was OK with Sinemet as 100/25, 3 times a day. But from last Summer, after taking the same amount of Sinemet 30 minutes or one hour, my left body got Muscle tightness and serious dystonia of left foot and shoulder until off time
Grandsonlover
in
Cure Parkinson's
4 months ago
Sinemet has saved my life, for now.
Great depressive crisis last night with accelerated breathing, tremors, stiffening. When you have no one competent to share your condition with and have some comfort, it is dangerous not to have Sinemet at hand. I had to run and get it while I was still sane enough to avoid taking another kind of pills
Great depressive crisis last night with accelerated breathing, tremors, stiffening. When you have no one competent to share your condition with and have some comfort, it is dangerous not to have Sinemet at hand. I had to run and get it while I was still sane enough to avoid taking another kind of pills
michelagvolpe
in
Cure Parkinson's
4 months ago
Off Dyskinesia-anyone else have it? What's your fix?
Approximate 11 years into taking sinemet my pharmacy started only carrying generic versions. Which I'd when I started experiencing dyskinesia when the Carbidopa/levadopa started to wear off. And was told snd treated by a movement specialist that I was over medicated and attempted to reduce my dosage
Approximate 11 years into taking sinemet my pharmacy started only carrying generic versions. Which I'd when I started experiencing dyskinesia when the Carbidopa/levadopa started to wear off. And was told snd treated by a movement specialist that I was over medicated and attempted to reduce my dosage
YOParky
in
Cure Parkinson's
4 months ago
Parkinson sufferer looking insomnia cure
I was diagnosed with Parkinsons about 3 years ago … I am currently on no medication but for the last few months I have been suffering from chronic insomnia and now it’s so bad I only get about 1 hour of rest per night … I am looking for advice on any medication people found helpful or any tips that helped
I was diagnosed with Parkinsons about 3 years ago … I am currently on no medication but for the last few months I have been suffering from chronic insomnia and now it’s so bad I only get about 1 hour of rest per night … I am looking for advice on any medication people found helpful or any tips that helped
MgtMc
in
Cure Parkinson's
5 months ago
B1 HDT Protocol with Sinemet
Does anyone happen to know should the thiamine be taken before, after, or at the same time as sinemet?Or does it even matter?
Does anyone happen to know should the thiamine be taken before, after, or at the same time as sinemet?Or does it even matter?
lionessroar
in
Cure Parkinson's
5 months ago
Request for Information
Request for Information Hi from the UK, I take trihexyphenidyl (2 mg 2 x day) I want to take Citicoline but I’m sure I read somewhere that the two are not compatible as one stops the other from working. I’d be very glad if anyone has any experience of this. I am twenty years in and have been taking
Request for Information Hi from the UK, I take trihexyphenidyl (2 mg 2 x day) I want to take Citicoline but I’m sure I read somewhere that the two are not compatible as one stops the other from working. I’d be very glad if anyone has any experience of this. I am twenty years in and have been taking
Palmar
in
Cure Parkinson's
5 months ago
IPX203 shows sustained safety, efficacy in RISE-PD extension trial
Using IPX203, an extended-release formulation of carbidopa/levodopa (CD/LD), was associated with a sustained control of symptoms for Parkinson’s disease patients who participated in the open-label extension of the RISE-PD Phase 3 trial. Final results from the nine-month extension study (NCT03877510
Using IPX203, an extended-release formulation of carbidopa/levodopa (CD/LD), was associated with a sustained control of symptoms for Parkinson’s disease patients who participated in the open-label extension of the RISE-PD Phase 3 trial. Final results from the nine-month extension study (NCT03877510
Farooqji
in
Cure Parkinson's
6 months ago
Frightening Experience
Last night, we were returning from the mall and when we reached home, I could not get out of the car. My wife was driving as she always does. I had started the day off with a later than usual dose of Sinemet (25/250) and had given enough time - about an hour for the most recent dose to kick in. Yet
Last night, we were returning from the mall and when we reached home, I could not get out of the car. My wife was driving as she always does. I had started the day off with a later than usual dose of Sinemet (25/250) and had given enough time - about an hour for the most recent dose to kick in. Yet
pdpatient
in
Cure Parkinson's
6 months ago
Interesting paper
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8634393/ Dietary approaches to supplement Sinemet therapy.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8634393/ Dietary approaches to supplement Sinemet therapy.
pdpatient
in
Cure Parkinson's
6 months ago
Mucuna without Sinemet?
Can anyone tell me how to get more symptom relief from just taking mucuna, (specifically NOW brand) alone, WITHOUT taking any Sinemet? I’ve read about green tea enhancing its effectiveness….any other ideas?
Can anyone tell me how to get more symptom relief from just taking mucuna, (specifically NOW brand) alone, WITHOUT taking any Sinemet? I’ve read about green tea enhancing its effectiveness….any other ideas?
Ob6842
in
Cure Parkinson's
6 months ago
Horizant tapering
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
JustVisiting23
in
Restless Legs Syndrome
6 months ago
Need advice on my tremor symptoms
Hi all, I would very much appreciate some advice on my symptoms. I am not on medication yet but am taking mucana, b1, l-tyryosine, b complex and magnesium. I am a year away from diagnosis. Is this typical of PD? My Dr. is unsure as well. He is going to probably put me on sinemet to see how I respond
Hi all, I would very much appreciate some advice on my symptoms. I am not on medication yet but am taking mucana, b1, l-tyryosine, b complex and magnesium. I am a year away from diagnosis. Is this typical of PD? My Dr. is unsure as well. He is going to probably put me on sinemet to see how I respond
Hope-full1970
in
Cure Parkinson's
6 months ago
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