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Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
8 months ago
Auto Immune Hepatitis
hi I am new here diagnosis in July Would love to connect with people with this disease Hear stories of ups & downs I need so much information and have lots of questions Thank you
hi I am new here diagnosis in July Would love to connect with people with this disease Hear stories of ups & downs I need so much information and have lots of questions Thank you
DebbyJ1
in
British Liver Trust
8 months ago
Could I have portal hypertension
Looking for any advice please. Not sure if I need to seek a second opinion from another Gastroenterologist. I had symptoms that could point to Cirrhosis or stages leading up to that. URQ pain, fatigue, malaise, GI issues with poor absorption (streatosis looking stools) and bloating, weight loss, shortness
Looking for any advice please. Not sure if I need to seek a second opinion from another Gastroenterologist. I had symptoms that could point to Cirrhosis or stages leading up to that. URQ pain, fatigue, malaise, GI issues with poor absorption (streatosis looking stools) and bloating, weight loss, shortness
Shoe2
in
British Liver Trust
8 months ago
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Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
longest bout of AF , am I doing the right thing?
Hi everybody, Before I begin , I wish everybody a merry Xmas and a happy healthy new year!! My Xmas present has come early this year with my longest bout of AF ever! 40 hours and still going . I have an ablation booked for 18th January at St Bart’s , it will be my 3rd. A brief outline is I have had
Hi everybody, Before I begin , I wish everybody a merry Xmas and a happy healthy new year!! My Xmas present has come early this year with my longest bout of AF ever! 40 hours and still going . I have an ablation booked for 18th January at St Bart’s , it will be my 3rd. A brief outline is I have had
Kjsp
in
Atrial Fibrillation Support
5 months ago
Low heart rate while resting
Hey guys. I'm kinda worried about my resting heart rate. If I'm sitting or laying it can go as low as 48bpm, even in sitting. My range is mostly between 48 and 56/57. As soon as I get up my heart rate also jumps quickly and sometimes I get a bit dizzy for few seconds like you would normally get when
Hey guys. I'm kinda worried about my resting heart rate. If I'm sitting or laying it can go as low as 48bpm, even in sitting. My range is mostly between 48 and 56/57. As soon as I get up my heart rate also jumps quickly and sometimes I get a bit dizzy for few seconds like you would normally get when
NewOne2023
in
Atrial Fibrillation Support
5 months ago
Next Oxfordshire Lupus Group meeting - 6th December 2pm!
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
michaellasmith
Administrator
in
LUPUS UK
5 months ago
Cardiolipin antibodies
Hi guys, I’m very new to this but wondering if anyone could help me out with info on Cardiolipin antibodies levels, I have just had a result of 45 and awaiting a doctors appointment. Having been ill for years with systemic symptoms, blocked blood vessels, small bowel resection,, Addisons disease with
Hi guys, I’m very new to this but wondering if anyone could help me out with info on Cardiolipin antibodies levels, I have just had a result of 45 and awaiting a doctors appointment. Having been ill for years with systemic symptoms, blocked blood vessels, small bowel resection,, Addisons disease with
BenBiscuit
in
Hughes Syndrome APS Forum
8 months ago
declining psa #6
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Nfler
in
Advanced Prostate Cancer
8 months ago
Updates to the EULAR guidelines on managing lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
Debbie_kinsey
Administrator
in
LUPUS UK
5 months ago
In a sexual relstionship with someone who has Lupus type SLE.
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
Tameeka723
in
LUPUS UK
5 months ago
Help with results please
Hi I wonder if anyone can help? I have just received these Blood Test results from my GP. My rheumatologist asked my doctor to do the Coeliac panel tests. The doctor's receptionist states that the nurse has checked and it is negative. I have continued to have multiple symptoms over the years, which
Hi I wonder if anyone can help? I have just received these Blood Test results from my GP. My rheumatologist asked my doctor to do the Coeliac panel tests. The doctor's receptionist states that the nurse has checked and it is negative. I have continued to have multiple symptoms over the years, which
lownook
in
Gluten Free Guerrillas
8 months ago
Question on Varicies
As most here know Margaret is no longer with us. And I am still digging more and more to understand what happened. Reading through her reports back in Oct of 2020, she had a fatty mass compressing the IVC and Portal. Which led to development of Varices. By December 2020 the fatty masses had vanished
As most here know Margaret is no longer with us. And I am still digging more and more to understand what happened. Reading through her reports back in Oct of 2020, she had a fatty mass compressing the IVC and Portal. Which led to development of Varices. By December 2020 the fatty masses had vanished
Wolivere
in
British Liver Trust
8 months ago
Post cardioversion
1 week post cardioversion and am in NSR, and no palpitations any more. However I am still feeling exhausted and steps and hills are a real problem ........anyone else had the same experience ?
1 week post cardioversion and am in NSR, and no palpitations any more. However I am still feeling exhausted and steps and hills are a real problem ........anyone else had the same experience ?
OldTown
in
AF Association
5 months ago
Acute on Chronic Steroids
brother has had cirrhosis for last 3 years. Still drinking. Admitted to hospital Friday jaundice. Confusion HE I believe! Now on steroids. Has anyone any experience of this. Know that they are only given to certain people! Do you think this is now certain decline? Consultant said too early to tell
brother has had cirrhosis for last 3 years. Still drinking. Admitted to hospital Friday jaundice. Confusion HE I believe! Now on steroids. Has anyone any experience of this. Know that they are only given to certain people! Do you think this is now certain decline? Consultant said too early to tell
DQ33
in
British Liver Trust
8 months ago
Thoughts and Help
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hidden
in
LUPUS UK
5 months ago
Zanubrutinib and ACE inhibitors
I am approaching the start of treatment for the first time. I have for many years been taking an ACE inhibitor (perindropril) for high blood pressure, which is now well controlled. I have CLL, my lymphocyte count is doubling quickly (~2 months) and my haematologist is considering options for treatment
I am approaching the start of treatment for the first time. I have for many years been taking an ACE inhibitor (perindropril) for high blood pressure, which is now well controlled. I have CLL, my lymphocyte count is doubling quickly (~2 months) and my haematologist is considering options for treatment
Fogey
in
CLL Support
6 months ago
Options when Docetaxel stops working
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
TerryR123
in
Advanced Prostate Cancer
8 months ago
Arginine and Taurine
Has anyone here had success with Arginine/Taurine/Magnesium? My Naturopath is willing to have me try but I am wondering if anyone has any firsthand knowledge out there of how long it takes to see results or not? Thanks!
Has anyone here had success with Arginine/Taurine/Magnesium? My Naturopath is willing to have me try but I am wondering if anyone has any firsthand knowledge out there of how long it takes to see results or not? Thanks!
MeganMN
in
AF Association
8 months ago
transplant and rheumatoid arthritis
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
Rshc
in
British Liver Trust
5 months ago
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