Search
Search
About
Log in
Join
Experiences with
Gorlin syndrome
Posts
Communities
3,460 public posts
Filter results
Free of Dopamine Agonist But ...
Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is no exaggeration to say that I have not slept consistently this well for 30 years. It is absolutely a miracle. I could not be more thankful for the help I have received here that has gotten me to this place. However, there
Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is no exaggeration to say that I have not slept consistently this well for 30 years. It is absolutely a miracle. I could not be more thankful for the help I have received here that has gotten me to this place. However, there
RiversW
in
Restless Legs Syndrome
6 months ago
Magnesium type
I had my husband on Natural Calm which is the brand I take. His mood lifted, he was less tired etc etc. The problem is it affected his toilet habits! My friend said better to spray and take it trans-dermally but she's talking about Magnesium Chloride. Is that any good to take? I've only ever taken
I had my husband on Natural Calm which is the brand I take. His mood lifted, he was less tired etc etc. The problem is it affected his toilet habits! My friend said better to spray and take it trans-dermally but she's talking about Magnesium Chloride. Is that any good to take? I've only ever taken
Boldgirl45
in
Restless Legs Syndrome
6 months ago
Length of gabapentin
I have severe RLS . I have gone through hell from pramipraxole, augmentation, impulse control issues and then DAWS. I tried to go without medication for a year after getting off pramipraxole. I ended up going from morphine (that didn’t really help at all) to methadone going from 5 mg working my way to
I have severe RLS . I have gone through hell from pramipraxole, augmentation, impulse control issues and then DAWS. I tried to go without medication for a year after getting off pramipraxole. I ended up going from morphine (that didn’t really help at all) to methadone going from 5 mg working my way to
senders
in
Restless Legs Syndrome
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Severe Restless Leg
Hello all ! I have suffered from this horrible condition for 30 years. I have been on every medication known to help. It affects my life day and night! I even experience in my arms now. I currently am on anywhere from 5 to 8 mg daily of Ropinirole. And thats not helping. Long story short I accidently
Hello all ! I have suffered from this horrible condition for 30 years. I have been on every medication known to help. It affects my life day and night! I even experience in my arms now. I currently am on anywhere from 5 to 8 mg daily of Ropinirole. And thats not helping. Long story short I accidently
Gette1274
in
Restless Legs Syndrome
7 months ago
Duloxetine to Mirtazapine
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
Puggy1910
in
Restless Legs Syndrome
7 months ago
Gabapentin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
Coeso
in
Restless Legs Syndrome
7 months ago
Cold Turkey Update
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
welschrispy
in
Restless Legs Syndrome
7 months ago
Raynauds and Hypermobility
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Boudica78
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
7 months ago
Very happy with my new eating regime 🙂
So following my heart attack and 3 stents on 27th Feb 23 I have now achieved my ideal weight putting me in the middle of the healthy category. I have lost over 17 kg Down from 13 stone 7 to 10 stone 10 and a BMI of 22.8. I have also got my Blood glucose stable and back in the normal range, and Insulin
So following my heart attack and 3 stents on 27th Feb 23 I have now achieved my ideal weight putting me in the middle of the healthy category. I have lost over 17 kg Down from 13 stone 7 to 10 stone 10 and a BMI of 22.8. I have also got my Blood glucose stable and back in the normal range, and Insulin
Instructor57
in
Healthy Eating
1 year ago
taking trazodone with Gabapentin
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
Tbone87
in
Restless Legs Syndrome
7 months ago
vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
4 months ago
PLMD and withdrawal
Three weeks ago I stopped (after tapering slowly) gabapentin. I have also been reducing morphine sulphate from 8mg by .01mL every 5 days for the last three weeks. PLMD off the charts. I take 2mg lunesta every 3 nights -- and not more -- in the hopes of not getting addicted. Those nights are better
Three weeks ago I stopped (after tapering slowly) gabapentin. I have also been reducing morphine sulphate from 8mg by .01mL every 5 days for the last three weeks. PLMD off the charts. I take 2mg lunesta every 3 nights -- and not more -- in the hopes of not getting addicted. Those nights are better
wantokporo
in
Restless Legs Syndrome
7 months ago
Pregabalin doseage
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
bluffpt
in
Restless Legs Syndrome
7 months ago
What am I doing wrong!
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Shopnow1
in
IBS Network
4 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
7 months ago
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
This is, of course, a thyroid forum. But all too many members mention Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and other disorders. I'm posting this paper very largely for the [i]Treating comorbidities [/i]section which, though short, is [i]
highly
[/i] relevant to a considerable
This is, of course, a thyroid forum. But all too many members mention Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and other disorders. I'm posting this paper very largely for the [i]Treating comorbidities [/i]section which, though short, is [i]
highly
[/i] relevant to a considerable
helvella
Thyroid UK
in
Thyroid UK
4 months ago
How to switch from pramipexole to pregabalin?
How to switch from pramipexole to pregabalin?I have been taking 0.7 mg of pramipexole 2 hours before bedtime for a long time without it helping particularly well. Now so plagued by augmentation that I actually can't sleep at night. Is plagued by both pain and restlessness in the legs and feet. During
How to switch from pramipexole to pregabalin?I have been taking 0.7 mg of pramipexole 2 hours before bedtime for a long time without it helping particularly well. Now so plagued by augmentation that I actually can't sleep at night. Is plagued by both pain and restlessness in the legs and feet. During
Gibbel
in
Restless Legs Syndrome
7 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
4 months ago
Newbie 0
Hi, I've recently been diagnosed with Gilbert's syndrome/disease. It was picked up via blood tests. I'm waiting to have a liver scan but the GP hasn't come up with any other plan. My main question at the minute is does anyone suffer with itching. Its not put down as one of the main symptoms but it's
Hi, I've recently been diagnosed with Gilbert's syndrome/disease. It was picked up via blood tests. I'm waiting to have a liver scan but the GP hasn't come up with any other plan. My main question at the minute is does anyone suffer with itching. Its not put down as one of the main symptoms but it's
HomerJSimpson
in
British Liver Trust
9 months ago
1
...
12
13
14
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1504 results
Fertility Network UK
360 results
PMRGCAuk
139 results
View top 10 communities
Sort by
Most Relevant
Newest